Results 61 to 70 of about 2,231,651 (291)

Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Adrenoleukodystrophy is a rare inherited peroxisomal disease caused by pathogenic variants in the ABCD1 gene located on the X chromosome. Although the most severe central nervous system and adrenal complications typically affect only men with adrenoleukodystrophy, the majority of women develop myeloneuropathy symptoms in adulthood.
Chenwei Yan   +3 more
wiley   +1 more source

Delighting Our Customers: Building Services Collaboratively with Learners at a Distance [PDF]

open access: yes, 2016
The Open University (OU) is the largest academic institution dedicated to distance learning in the United Kingdom, with over 173,000 students. Distance learning students can provide a unique perspective on the experience of the library.
Dick, Sam, Killick, Selena
core  

Buck-I-SERV: Uruguay [PDF]

open access: yes, 2020
STEP Category: Service-Learning and Community ServiceSTEP Expo poster about Buck-I-SERV experience in Uruguay.The Ohio State University Second-year Transformational Experience Program (STEP)Academic Major: Computer Science and ...
Kondaveeti, Raj
core  

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler   +20 more
wiley   +1 more source

Development of a Personalized Visualization and Analysis Tool to Improve Clinical Care in Complex Multisystem Diseases With Application to Scleroderma

open access: yesArthritis Care &Research, EarlyView.
Objective In complex diseases, it is challenging to assess a patient's disease state, trajectory, treatment exposures, and risk of multiple outcomes simultaneously, efficiently, and at the point of care. Methods We developed an interactive patient‐level data visualization and analysis tool (VAT) that automates illustration of the trajectory of a ...
Ji Soo Kim   +18 more
wiley   +1 more source

Rethinking Professional Experience Through a Learning Community Model: Toward a Culture Change

open access: yesFrontiers in Education, 2019
Preparing pre-service teachers to become effective future educators has become increasingly complex in an environment of rapid change, economic uncertainty, technological advancements, and cultural diversity.
Tania Broadley   +2 more
doaj   +1 more source

Service-learning in problem solving in the community: pre-service teachers’ reflection on their experience

open access: yesSocial Welfare: Interdisciplinary Approach, 2020
The article substantiates the relevance of service-learning in the study process of pre-service teachers solving problems relevant to the community. The multifaceted benefits of service-learning for both learners and the community have been highlighted.
Jurgita Lenkauskaitė
doaj   +1 more source

Students service learning experiencies in Mexican Microenterprises

open access: yesProceedings of the 3rd International Conference on Higher Education Advances, 2017
This paper presents an experience of a service learning program in underprivileged Microenterprises. It shares the experience of Program for Research, Assistance and Teaching of Small Enterprises, an innovative model of assistance to deliver Business Development Services to low value added Microenterprises, including technical assistance and training ...
Mungaray-Lagarda, Alejandro   +2 more
openaire   +4 more sources

The Effectiveness of Customer Education: evaluating synchronous and asynchronous e-learning technologies [PDF]

open access: yes, 2018
This paper considers the role played by customer education in enhancing their engagement by enriching the customer experience. Enrichment may be seen in terms of enhanced customer communication or service co-creation.
Dadd, Deneise, Hinton, Matthew
core  

Lived and Care Experiences of Chronic Musculoskeletal Shoulder Pain in Australian Adults: A Qualitative Study

open access: yesArthritis Care &Research, EarlyView.
Objective Australian evidence on lived and care experiences of chronic musculoskeletal shoulder pain (CMSP), irrespective of disorder classification or disease, is limited. However, such evidence is important for person‐centered care and informing local service pathways and care guidelines or standards.
Sonia Ranelli   +8 more
wiley   +1 more source

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