Results 301 to 310 of about 1,827,024 (396)

Using mixed methods for genetic counseling research

Journal of Genetic Counseling, Volume 34, Issue 3, June 2025.
Abstract Mixed methods research encompasses methodological approaches that involve the collection, analysis, and integration of qualitative and quantitative data. Mixed methods are useful for complex research questions, applied research settings, and when end users value multiple forms of evidence, which makes mixed methods suitable for many areas of ...
Kennedy Borle, Jehannine Austin
wiley   +1 more source

Caregiver signaling questions in sickle cell disease. [PDF]

Blood Adv
Schatz J, Schlenz AM.
europepmc   +1 more source

Survey research in genetic counseling

Journal of Genetic Counseling, Volume 34, Issue 3, June 2025.
Abstract Questionnaires are one of the most common tools for collecting data in genetic counseling research and practice. In this manuscript, we present an overview of survey methods in the context of genetic counseling research. Approaches for administering surveys, designing good questions, and identifying study samples are addressed. We also discuss
Melanie F. Myers, Carrie L. Atzinger
wiley   +1 more source

Oral Health Status of People with Sickle Cell Disease at a Major Hospital in Cameroon. [PDF]

Int J MCH AIDS
Agbor AM, Mekendja KF, Che B, Naidoo S.
europepmc   +1 more source

Sickle Cell Disease in Africa: SickleInAfrica Registry in Ghana, Nigeria and Tanzania

eJHaem, Volume 6, Issue 3, June 2025.
ABSTRACT Introduction Sickle cell disease (SCD) is most prevalent in Sub‐Saharan Africa (SSA), where incomplete patient profiles and limited management strategies hinder research and healthcare standards. Methods We describe the first large‐scale and multinational assessment of 13,403 SCD patients enrolled from 2017–2021 across 31 facilities in Ghana ...
Jack Morrice, Wilson Mupfururirwa, Reuben I. Chianumba, Evans Xorse Amuzu, Daniel Kandonga, Victoria Nembaware, Mario Jonas, Jade Hotchkiss, Upendo Masamu, Arthemon Nguweneza, Bruno P. Mmbando, Irene Minja, Agnes Jonathan, Nicola Mulder, Emmanuel Balandya, Alex Osei‐Akoto, Vivian Paintsil, Julie Makani, Obiageli Nnodu, Members of SPARCO Nigeria, Raphael Z. Sangeda, Andre Pascal Kengne, Gaston Kuzamunu, Ambroise Wonkam   +23 more
wiley   +1 more source

Implementing ASH's guidelines for acute medical care for incarcerated children and adults with sickle cell disease. [PDF]

Blood Adv
DeBaun MR, Staples-Horne M, Sadacharan R, Braverman P, Shah N, Strouse J, Orsini D, Lee CD, Barnert ES.   +8 more
europepmc   +1 more source

Optimisation of the Danish national haemoglobinopathy screening programme – A prospective intervention study

eJHaem, Volume 6, Issue 3, June 2025.
Abstract Introduction The Danish national haemoglobinopathy screening programme offers screening to at‐risk pregnant women. Despite efforts to increase awareness of the screening programme, most women in the target population remain unscreened. In contrast, > 90% of pregnant women in Denmark attend a screening for chromosomal abnormalities by combined ...
Esther Agnethe Ejskjær Gravholt, Finn Stener Jørgensen, Charlotte Holm, Jesper Petersen, Amina Nardo‐Marino, Mathis Mottelson, Andreas Glenthøj   +6 more
wiley   +1 more source

Sickle Cell Disease and Antimicrobial Resistance: A Systematic Review and Meta-Analysis. [PDF]

Infect Dis Rep
Opoku-Asare B, Ntim OK, Awere-Duodu A, Donkor ES.   +3 more
europepmc   +1 more source