Results 321 to 330 of about 1,827,024 (396)

Resiliency in Child-Caregiver Dyads and the Impact on Health Outcomes in Sickle Cell Disease. [PDF]

Children (Basel)
Zavadil JA, Azul M, Carpenter BD, Calhoun C.   +3 more
europepmc   +1 more source

‘I Have my Beliefs, but Then I Have my Reality’: Reflections of Black and South Asian Parents Living in England on Screening and Genetic Diagnosis in Pregnancy

Prenatal Diagnosis, Volume 45, Issue 7, Page 857-866, June 2025.
ABSTRACT Objectives Black and South Asian women in the UK face disproportionately worse pregnancy and maternal outcomes. Yet, they are underrepresented in research. Understanding their attitudes towards prenatal tests (screening tests and diagnostic genetic tests) is critical for offering equitable prenatal care. Methods Focus groups examined attitudes
Michelle Peter, Rashida Baptiste, Rachael Buabeng, Lily Islam, Jane Fisher, Kerry Leeson‐Beevers, Melissa Hill, Lyn S. Chitty   +7 more
wiley   +1 more source

Determinants of immunisation in children with sickle cell disease in Libreville. [PDF]

J Public Health Afr
Ngoungou EB, Bisvigou UJ, Engohang-Ndong J, Anguezomo V, Sydney MN, Ibinga E.   +5 more
europepmc   +1 more source

Regional outbreak of parvovirus B19 acute myocarditis in preschool children

Pediatric Investigation, Volume 9, Issue 2, Page 181-184, June 2025.
We recently came across an outbreak of parvovirus B19 related acute myocarditis in preschool children in a specific region in northern Greece. The children exhibited serious morbidity and mortality. All children had very poor left ventricular ejection fraction and required inotropic intensive care unit support.
Filippos‐Paschalis Rorris, Maria Kontou, Meletios Kanakis, Dimitrios Bobos   +3 more
wiley   +1 more source

The use of race and ethnicity in sickle cell disease research. [PDF]

BMC Med Res Methodol
Kidane Gebremeskel AS, Rab MA, van Werkhoven ED, Petersen TB, Cnossen MH, M'charek A, Meeks KAC, Rijneveld AW.   +7 more
europepmc   +1 more source

“You Can Rest Knowing That We Know What You Want”—Longitudinal Advance Care Planning Discussions With Young Adults Receiving Hematopoietic Stem Cell Transplantation

Psycho-Oncology, Volume 34, Issue 6, June 2025.
ABSTRACT Objective Young adults (YAs) undergoing hematopoietic stem cell transplantation (HSCT) often face significant transplant‐related morbidity and mortality. Advance care planning (ACP) discussions can provide YAs with the opportunity to address treatment goals and care preferences with their family members and healthcare team.
Anna Katharina Vokinger, Brian Pennarola, Paige Kube, Devon Ciampa, Gisela Michel, Jennifer Hendricks, Brigit Rweikiza, Sara K. Silbert, Lori Wiener   +8 more
wiley   +1 more source

Performance of a smartphone-based malaria screener in detecting malaria in people living with Sickle cell disease. [PDF]

PLOS Digit Health
Obeng DNS, Osei S, Brown NK, Nana Adjei D, Amoah LE, Owusu EDA.   +5 more
europepmc   +1 more source

End points for sickle cell disease clinical trials: Patient-reported outcomes, pain, and the brain [PDF]

, 2019
al., et, Farrell, Ann T., King, Allison A.   +2 more
core   +1 more source

The phenotypes of sickle cell disease: strategies to aid the identification of undiagnosed patients in the Italian landscape. [PDF]

Ital J Pediatr
Casale M, Benemei S, Gallucci C, Graziadei G, Ferrero GB.   +4 more
europepmc   +1 more source

The wider perspective: Barriers and recommendations for transfusion support for patients with sickle cell disease in low‐ and middle‐income countries

British Journal of Haematology, Volume 206, Issue 6, Page 1585-1592, June 2025.
Globally, sickle cell disease (SCD) is the most common inherited haemoglobinopathy. The highest burden of SCD is encountered in low‐ and middle‐income countries (LMICs), most of which lack the resources to contend with the disease. Blood transfusion remains central to the emergent treatment and prevention of complications of SCD.
Jeremy W. Jacobs, Luiz Amorim, France Pirenne, Claude Tayou, Ijele Adimora, Lydia H. Pecker, Aaron A. R. Tobian, Jeannie Callum, Julie Makani, Mark T. Gladwin, Meghan Delaney, Darrell J. Triulzi, Isaac Odame, Evan M. Bloch   +13 more
wiley   +1 more source