Results 281 to 290 of about 324,037 (354)

American College of Rheumatology Guidance Statement for Diagnosis and Management of VEXAS Developed by the International VEXAS Working Group Expert Panel

Arthritis &Rheumatology, EarlyView.
Objective Vacuoles E1 enzyme X‐linked autoinflammatory somatic syndrome (VEXAS) is a recently identified rare genetic disorder associated with somatic mutations in the UBA1 gene. VEXAS presents with a combination of inflammatory and hematologic manifestations, leading to increased morbidity and mortality.
Arsene Mekinian, Sophie Georgin‐Lavialle, Marcela A. Ferrada, Sinisa Savic, Matthew J. Koster, Olivier Kosmider, Thibault Comont, Mael Heilblig, Juan I. Arostegui, Annmarie Bosco, Rim Bourguiba, Katherine R. Calvo, Catherine Cargo, Chiara Cattaneo, François Chasset, Henrique Coelho, Corrado Campochiaro, Francesca Crisafulli, Stephanie Ducharme‐Benard, Raquel Faria, Franco Franceschini, Micol Frassi, Emma M. Groarke, Carmelo Gurnari, Yervand Hakobyan, Yvan Jamilloux, Ciprian Jurcut, Yohei Kirino, Austin Kulasekararaj, Hiroyoshi Kunimoto, Lauren M. Madigan, Heřman F. Mann, Chiara Marvisi, Marcin Milchert, Sara Morais, Katja Sockel, Francesco Muratore, Hideaki Nakajima, Mrinal M. Patnaik, Luísa Regadas, Marie Robin, Abraham Rutgers, Carlo Salvarani, Anthony M. Sammel, Joerg Seebach, Pierre Sujobert, Alessandro Tomelleri, Geoffrey Urbanski, Frédéric Vandergheynst, Romana Vieira, David S. Viswanatha, Ewa Więsik‐Szewczyk, Elisa Diral, Benjamin Terrier, Bhavisha A. Patel, Pierre Fenaux, Peter C. Grayson, David B. Beck, on behalf of the International VEXAS working group, and with endorsement of EuroBloodNet, the European Reference Network in Rare Hematological Diseases, Heřman Mann, Benjamin Terrier, François Chasset, Sophie Georgin Lavialle, Alessandro Tomelleri, Campochiaro Corrado, Carlo Salvarani, Francesca Crisafulli, Franco Franceschini, Micol Frassi, Yohei Kirino, Ewa Więsik‐Szewczyk, Marcin Milchert, Raquel Faria, Ciprian Jurcut, Joerg Seebach, Sinisa Savic, David Beck, Lauren Madigan, Matthew Koster, Patnaik Mrinal, Olivier Kosmider, Pierre Sujobert, Juan I. Arostegui, Catherine Cargo, David Viswanatha, Yervand Hagopian, Mael Heilblig, Pierre Fenaux, Thibault Comont, Bruno Alessandro, Chiara Cattaneo, Elisa Diral, Sara Morais, Austin Kulasekarara, Emma Groarke, Katherine Calvo, Patel Bhavisha, Anthony Sammel, Arsene Mekinian, Benjamin Terrier, Marie Robin, Sophie Georgin Lavialle, Katja Sockel, Yvan Jamilloux, Carmelo Gurnari, Henrique Coelho, Romana Vieira, Rim Bourguiba, Marcela Ferrada, Peter Grayson   +111 more
wiley   +1 more source

Extending the reach of palliative care-a double-edged sword: a qualitative study of clinicians' experiences of delivering telehealth in Australia and Aotearoa New Zealand. [PDF]

BMC Palliat Care
Collier A, Appachoo S, Frey R, Jones V, Birtwistle J, Allsop M, Bloomfield K.   +6 more
europepmc   +1 more source

“Lives and times”: The case for qualitative longitudinal research in anatomical sciences education

Anatomical Sciences Education, EarlyView.
Abstract Qualitative longitudinal research (QLR) focuses on changes in perceptions, interpretations, or practices through time. Despite longstanding traditions in social science, QLR has only recently appeared in anatomical sciences education (ASE).
Charlotte E. Rees, Ella Ottrey
wiley   +1 more source

Self-reported adherence of ambulance nurses to acute chest pain guidelines in Southern Sweden: a cross-sectional study. [PDF]

BMJ Open
Hansen MU, Axelsson M, Vejzovic V, Jakobsson U, Zdravkovic S.   +4 more
europepmc   +1 more source

Personal, social and health education in secondary schools [PDF]

, 2005

core  

Body donor programs in Australia and New Zealand: Current status and future opportunities

Anatomical Sciences Education, Volume 18, Issue 3, Page 301-328, March 2025.
Abstract Body donation is critical to anatomy study in Australia and New Zealand. Annually, more than 10,000 students, anatomists, researchers, and clinicians access tissue donated by local consented donors through university‐based body donation programs. However, little research has been published about their operations.
Rebekah A. Jenkin, Kevin A. Keay
wiley   +1 more source

"We are running on the fumes of goodwill" Professionals' experiences of delivering 24/7 end-of-life care to children and their families: a qualitative study. [PDF]

BMC Palliat Care
Barrett L, Fraser L, Ziegler L, Jarvis S, Picton S, Hackett J.   +5 more
europepmc   +1 more source

Creating security for the child in grief: a delicate task for the school nurse - findings from a web-based survey on school nurses' experiences. [PDF]

J Res Nurs
El Gharbawi N, Karlsson A, Clausson E, Sjövall K.   +3 more
europepmc   +1 more source

Factors influencing the intention of the intensive care unit nurses to take preventive measures against deep vein thrombosis: a multicenter, cross sectional study. [PDF]

Front Med (Lausanne)
Nie J, Jiang Z.
europepmc   +1 more source