Results 41 to 50 of about 20,502 (189)

The Effect of Online Parent Training With and Without Coaching Support on the Well‐Being of Families of Children With Neurodisabilities: A Randomized Controlled Trial

Autism Research, EarlyView.
ABSTRACT Families of children with neurodisabilities often face significant child behavioral challenges that can affect overall family functioning and well‐being. This randomized controlled trial (RCT) used family resilience theory as the investigative framework to examine the impact of an online parenting program designed to address child behavioral ...
Jeffrey McCrossin, Ali Filali‐Mouhim, Michael Ungar, Karen McEwan, Kathleen O'Grady, Donna Thomson, Parent Advisory Group, Patricia Lingley‐Pottie, Patrick McGrath, Lucyna M. Lach   +9 more
wiley   +1 more source

Advances in spina bifida care: The global journey toward dignity, inclusion, and innovation

Journal of Pediatric Rehabilitation Medicine
For nearly a decade, the special issue for spina bifida (SB) in the Journal of Pediatric Rehabilitation Medicine (JPRM) has become an epicenter for qualitative, state of the art, and innovative SB research.
Jonathan Castillo, Judy K Thibadeau, Tim Brei, Heidi Castillo   +3 more
doaj   +1 more source

Spina Bifida: Pathogenesis, Mechanisms, and Genes in Mice and Humans

Scientifica, 2017
Spina bifida is among the phenotypes of the larger condition known as neural tube defects (NTDs). It is the most common central nervous system malformation compatible with life and the second leading cause of birth defects after congenital heart defects.
Siti W. Mohd-Zin, Ahmed I. Marwan, Mohamad K. Abou Chaar, Azlina Ahmad-Annuar, Noraishah M. Abdul-Aziz   +4 more
doaj   +1 more source

SPINA BIFIDA. [PDF]

JAMA: The Journal of the American Medical Association, 1907
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openaire   +2 more sources

Identification of major congenital malformations based on healthcare databases in France: A proof‐of‐concept study using the epi‐meres nationwide mother–child register

British Journal of Clinical Pharmacology, EarlyView.
Abstract Aim Besides registries, healthcare databases can provide useful information for assessing the frequency of major congenital malformations (MCMs) and investigating their risk factors, particularly medication exposures. This study aimed to assess the validity of MCMs identification based on French national, comprehensive healthcare databases ...
Tom Duchemin, Lise Marty, Jérôme Drouin, Sara Miranda, Jérémie Botton, Valérie Olié, Alain Weill, Rosemary Dray‐Spira   +7 more
wiley   +1 more source

Paying to pee: A national survey of urinary catheter users’ costs and coverage

Journal of Pediatric Rehabilitation Medicine
Purpose This study aimed to survey individuals who regularly use urinary catheters to understand health insurance coverage and out-of-pocket costs they experience to advocate for health-policy change.
Maryellen S. Kelly, Hannah Damico, Dawne Widener-Burrows, Judy Thibadeau, Kimberly A. Beer, Alexandra Bennewith, Jane M. Wierbicky, Sara Struwe   +7 more
doaj   +1 more source

Integument: Guidelines for the care of people with spina bifida

Journal of Pediatric Rehabilitation Medicine, 2020
PURPOSE: Skin-related issues have a significant impact on health, activities of daily living, and quality of life among people with spina bifida. Data presented by select clinics that participate in the National Spina Bifida Patient Registry reported ...
Patricia Beierwaltes, Sharon Munoz, Jennifer Wilhelmy   +2 more
doaj   +1 more source

Case‐malformed signal detection and prioritisation using EUROmediCAT data for pharmacovigilance in pregnancy

British Journal of Clinical Pharmacology, EarlyView.
Aim Many women take medications during pregnancy. However, the risk to the fetus from most medications is uncertain. Congenital anomalies are one of the leading causes of infant death and contribute to long‐term disability. Signal detection methods can be used to systematically identify possible medication–anomaly associations that require further ...
Hannah Johnson, Helen Dolk, Maria Loane, Christine Damase‐Michel, Joanne Given, Hedvig Nordeng, Jorieke E. H. Bergman, Iain Carey, Elly Den Hond, Ester Garne, Florence Rouget, Lea Bruneau, Isabelle Monier, Anke Rissmann, Mary O'Mahony, Miriam Gatt, Renée Lutke, Joanna Sichitiu, Elisa Ballardini, Alessio Coi, Clara Cavero Carbonell, David Tucker, Joan Morris   +22 more
wiley   +1 more source

Association between maternal pre‐pregnancy body mass index and maternal and neonatal outcomes in Saudi Arabia: A retrospective cohort study

International Journal of Gynecology &Obstetrics, EarlyView.
Abstract Objective The body mass index (BMI, calculated as weight in kilograms divided by the square of height in meters) of the mother before pregnancy and the growth of weight during pregnancy are both important perinatal health determinants. The aim of the present study was to examine the association between the maternal BMI and obstetric and ...
Randa Elsayed, Eman Al Ali, Rawabi AlAbdulgader, Shouq ALshuwayfie, Hasna Almutawa, Zahra Alhawaj, Bayan Albesher, Fatimah Almuaybid   +7 more
wiley   +1 more source

β3‐Adrenoceptor Agonists for Neurogenic Lower Urinary Tract Dysfunction: Evidence and Clinical Rationale for First‐Line Therapy

Neurourology and Urodynamics, EarlyView.
ABSTRACT Aims To summarize current evidence on β3‐adrenoceptor agonists for managing neurogenic lower urinary tract dysfunction (NLUTD), focusing on their efficacy, safety, and clinical role in optimizing bladder storage and protecting upper tracts. Methods Evidence from randomized controlled trials, meta‐analyses, and observational studies in spinal ...
Sharon E. Fishberg, Rano Matta
wiley   +1 more source