Results 81 to 90 of about 56,390 (285)

A Framework for Prenatal Counselling Recommendations in Congenital Diaphragmatic Hernia: A RAND‐Modified Delphi Study

Prenatal Diagnosis, EarlyView.
ABSTRACT Objective To develop a consensus‐based framework to support individualized prenatal counselling for congenital diaphragmatic hernia. Method A RAND‐modified Delphi study was conducted with an expert panel of parents (n = 10) and healthcare professionals (n = 17) working in Dutch or Flemish CDH European Reference Network (ERN) centres.
Leonie Lof, Robin van der Lee, Anke Oerlemans, Anne Debeer, Jan Deprest, Francesca Russo, Philip DeKoninck, Suzan Cochius‐den Otter, Horst Daniels, Esther Sikkel, Anita Huis, Rosa Geurtzen, Neeltje Crombag   +12 more
wiley   +1 more source

Arsenic modifies the effect of folic acid in spina bifida prevention, a large hospital-based case-control study in Bangladesh

Environmental Health
Background Spina bifida, a developmental malformation of the spinal cord, is associated with high rates of mortality and disability. Although folic acid-based preventive strategies have been successful in reducing rates of spina bifida, some areas ...
Chih-Fu Wei, Sudipta Kumer Mukherjee, Sheikh Muhammad Ekramullah, D. M. Arman, Md Joynul Islam, Mubinul Azim, Asifur Rahman, Md Nafaur Rahman, Md Ziauddin, Gwen Tindula, Hafiza Sultana Suchanda, Diana F. Gomberg, Marc G. Weisskopf, Liming Liang, Benjamin C. Warf, David C. Christiani, Maitreyi Mazumdar   +16 more
doaj   +1 more source

Epidemiology and morbidity of spina bifida in Hispanic Americans: a systematic review

BMJ Public Health
Objective To comprehensively describe the epidemiology and morbidity of spina bifida in Hispanic Americans and identify risk factors associated with the increased prevalence of spina bifida.Design A systematic review was conducted in accordance with ...
Roxanna M Garcia, Sandi K Lam, Sunny Abdelmageed, Megan Votoupal   +3 more
doaj   +1 more source

Women’s health guidelines for the care of people with spina bifida

Journal of Pediatric Rehabilitation Medicine, 2020
Women and girls with spina bifida have specific health care concerns. It is essential that they, and their health care providers have access to information to help them make healthy choices throughout their lifespan.
Anne Berndl, Margaret Nosek, Ashley Waddington   +2 more
doaj   +1 more source

Factors Affecting the Quality of Life of Parents of Children With Spina Bifida: The Mediating Role of Family Resilience. [PDF]

J Adv Nurs
ABSTRACT Aims To investigate factors affecting the quality of life of parents of children with spina bifida and examine how family resilience mediates between parental depression and quality of life. Design Cross–sectional study. Methods Secondary data analysis was performed using first‐year data from a five‐year spina bifida cohort project (2022–2026)
Kim K, Yun H, Lee H, Song K, Van Riper M, Choi EK.   +5 more
europepmc   +2 more sources

Involvement of deprivation and environmental lead in neural tube defects:a matched case-control study. [PDF]

, 2009
OBJECTIVE. To analyse the prevalence of neural tube defects in small geographical areas and seek to explain any spatial variations with reference to environmental lead and deprivation. SETTING.
Awwad, Fuad, Bound, John P., Francis, Brian J., Gatrell, Tony, Harvey, Peter W.   +4 more
core   +1 more source

Association between fetal brain diffusion‐weighted imaging and postnatal neurodevelopmental outcome after prenatal myelomeningocele repair

Ultrasound in Obstetrics &Gynecology, EarlyView.
ABSTRACT Objective Myelomeningocele (MMC) is associated with significant alterations of the brain microstructure, which can impair long‐term neurodevelopmental outcomes. By measuring the random displacement of water molecules within the brain, magnetic resonance imaging (MRI)‐based diffusion‐weighted imaging (DWI) can provide objective metrics, such as
R. Corroenne, T. A. G. M. Huisman, W. E. Whitehead, A. A. Nassr, J. L. Munoz, J. Castillo, H. Castillo, R. M. Johnson, R. V. Donepudi, M. A. Belfort, M. Sanz‐Cortes   +10 more
wiley   +1 more source

Emergency department utilization among pediatric spina bifida patients

Journal of Pediatric Rehabilitation Medicine, 2019
PURPOSE: There is a gap in knowledge regarding the use of emergency services by pediatric spina bifida patients. The goal of this study was to describe Emergency Department utilization patterns in this population.
Stefanie Riddle, Jareen Meinzen-Derr, Meredith Tabangin, Jason Woodward, Susan Wiley   +4 more
doaj   +1 more source

Key Modules and Hub Genes Identified by Coexpression Network Analysis for Revealing Novel Biomarkers for Spina Bifida

Frontiers in Genetics, 2020
Spina bifida is a common neural tube defect (NTD) accounting for 5–10% of perinatal mortalities. As a polygenic disease, spina bifida is caused by a combination of genetic and environmental factors, for which the precise molecular pathogenesis is still ...
Zijian Li, Zijian Li, Juan Feng, Zhengwei Yuan   +3 more
doaj   +1 more source

Pregnancy Decision‐Making Among Women With Physical Disabilities: Cross‐Sectional Survey Study

BJOG: An International Journal of Obstetrics &Gynaecology, EarlyView.
ABSTRACT Objective Understand the pregnancy informational needs and decision‐making of women with physical disabilities. Design Cross‐sectional. Setting Community. Sample 114 adult American women with physical disabilities who had experience making a decision about pregnancy while disabled. Methods Online survey.
Claire Z. Kalpakjian, Susan D. Ernst, Heidi J. Haapala, Melissa L. Barber, Brittany R. Orians, Lukonde Mulenga, Shannen M. McIntosh, Julia Shah, Jodi M. Kreschmer, Rebecca Parten, Sara Rosenblum, Gina M. Jay   +11 more
wiley   +1 more source