Results 71 to 80 of about 48,500 (236)

Condition-related knowledge among children and adolescents with spina bifida in a Swedish county

Scandinavian Journal of Disability Research, 2012
Spina bifida is a congenital birth defect, resulting in physical and cognitive dysfunctions. Condition-related knowledge among children and adolescents with spina bifida is essential to facilitate independent management of their condition. The aim was to
Lina Strömfors, Lars Falk, Susan Wilhelmsson, Gunnar E. Höst   +3 more
doaj   +1 more source

Care coordination guidelines for the care of people with spina bifida

Journal of Pediatric Rehabilitation Medicine, 2020
Care coordination is the deliberate organization of patient care activities between two or more participants (including the patient) involved in a person’s care to facilitate the appropriate delivery of health care services.
Alexander Van Speybroeck, Patricia Beierwaltes, Betsy Hopson, Suzanne McKee, Lisa Raman, Ravindra Rao, Rebecca Sherlock   +6 more
doaj   +1 more source

Sexualidade nas lesões medulares congénitas: spina bifida [PDF]

, 2008
A sexualidade é uma vertente complexa que contempla múltiplas questões biopsicossociais. Em indivíduos com alterações do desenvolvimento do tubo neural, nomeadamente spina bifida, a construção da sexualidade está ainda pouco estudada.
Garrett, Ana, Martins, Fernando, Teixeira, Zélia   +2 more
core   +1 more source

Exome Sequencing in Prenatally Diagnosed Isolated Neural Tube Defects: A Subtype‐Specific Analysis

Prenatal Diagnosis, EarlyView.
ABSTRACT Objective To explore potential genetic contributors across different subtypes of isolated neural tube defects (NTDs) ‐ acrania–exencephaly–anencephaly sequence (AEAS), spinal dysraphism, and encephalocele ‐ using exome sequencing (ES) in a prenatal cohort, with the goal of gaining insight into the molecular diversity underlying these distinct ...
Adi Botvinik, Vered Offen Glasner, Adi Reches, Hadas Miremberg, Karina Krajden Haratz, Tal brill, Liron Malki, Michal Rozenzwaig, Yuval Yaron, Michal Levy   +9 more
wiley   +1 more source

From prenatal care to spina bifida related mortality: The lifespan is marked by transitions experienced by increasing immigrant and international populations

Journal of Pediatric Rehabilitation Medicine, 2023
Whether it is for collaboration on folic acid fortification or the standardization of care efforts concerning neurogenic bowel dysfunction, a global forum on neural tube defects related issues is needed. Propitiously, the 2023 Spina Bifida World Congress
Jonathan Castillo, Judy K. Thibadeau, Tim Brei, Heidi Castillo   +3 more
doaj   +1 more source

Epidemiology of neural tube defects in northern Iran, 1998-2003 [PDF]

, 2007
We determined the rates of neural tube defects at a referral hospital in Gorgan, north Islamic Republic of Iran, and the relations of these abnormalities to sex, maternal ethnicity, maternal age and season.
Golalipour, M.J., Keshtkar, A.A., Mobasheri, E., Vakili, M.A.   +3 more
core  

Fetal Instability and Resuscitative Management During Fetal Intervention: A Retrospective, Descriptive Analysis of 245 Fetal Cardiac and Spina Bifida Procedures

Prenatal Diagnosis, EarlyView.
ABSTRACT Objective The heterogeneity of fetal surgery has led to variability in the nature and frequency of fetal instability. Understanding these differences is critical for optimizing management. Methods We reviewed all fetal atrial septal interventions (FASI) and fetoscopic myelomeningocele (fMMC) repairs with fetal instability performed at our ...
Claire A. Naus, Betul Yilmaz Furtun, Jessian L. Munoz, Rebecca M. Johnson, Carolyn A. Altman, Michael A. Belfort, Luc Joyeux, Alice King, David G. Mann, Shaine Morris, Athar M. Qureshi, Magdalena Sanz Cortes, William E. Whitehead, Caitlin D. Sutton   +13 more
wiley   +1 more source

Simultaneous tubeless supine percutaneous nephrolithotomy and cystolitholapaxy in a patient with spina bifida

Urology Case Reports
Spina bifida is a congenital condition that often leads to significant urological complications, including an increased risk of kidney and bladder stones.
Zoltán Kiss, Gyula Drabik, János Dócs, Tibor Flaskó   +3 more
doaj   +1 more source

Assessing the prevalence of spina bifida and encephalocele in a Kenyan hospital from 2005-2010: implications for a neural tube defects surveillance system

The Pan African Medical Journal, 2014
INTRODUCTION: Neural tube defects such as anencephaly, spina bifida, and encephalocele are congenital anomalies of the central nervous system. Data on the prevalence of neural tube defects in Kenya are limited.
Jane N Githuku, Alejandro Azofeifa, Diana Valencia, Trong Ao, Heather Hamner, Samuel Amwayi, Zeinab Gura, Jared Omolo, Leland Albright, Jing Guo2, Wences Arvelo   +10 more
doaj   +1 more source

Examining professionals' and parents' views of using transanal irrigation with children: Understanding their experiences to develop a shared health resource for education and practise [PDF]

, 2013
Irrigation as a bowel management approach has been reportedly used with children for more than 20 years. Parents managing their child's chronic bowel problem have previously been shown to have increased emotional stress.
Bray, L., Sanders, C
core   +1 more source