Results 41 to 50 of about 146,314 (303)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Brugerinddragelse – ny professionalisme og nye omsorgsrum?

Nordisk Välfärdsforskning, 2018
Brugerinddragelse er i stigende grad omdrejningspunktet i bestræbelser på at reformere sundhedsvæsenet i de nordiske lande og må forventes potentielt at forandre autoritets- og videnshierarkier i omsorgsarbejdet.
Mari Holen, Annette Kamp
doaj   +1 more source

Kan tjenestedesign bidra til økt medvirkning og involvering for pasienter og brukere på individnivå i helse- og omsorgstjenestene?

Nordisk Tidsskrift for Helseforskning, 2021
Pasient – og brukermedvirkning er en lovfestet rettighet som skal sikre pasienter og brukere økt innflytelse i helse og omsorgstjenesten. Forskning viser imidlertid at helsepersonell anvender en paternalistisk tilnærming i sin yrkesutøvelse, noe som ...
Trude Fløystad Eines, Ingunn Pernille Mundal, Cecilie Katrine Utheim Grønvik   +2 more
doaj   +1 more source

User involvement in healthcare technology development and assessment: Structured literature review

, 2006
Purpose – Medical device users are one of the principal stakeholders of medical device technologies. User involvement in medical device technology development and assessment is central to meet their needs.
Ian Robinson, Shah, SGS, Syed Ghulam Sarwar Shah, Robinson, I   +3 more
core   +1 more source

User-Involvement in der Praxis & Forschung Sozialer Arbeit Analyse der Sozialen Stadtrundgänge des Vereins Surprise aus der Perspektive von Stadtführern [PDF]

, 2018
Mit dem Begriff User-Involvement wird in der Sozialen Arbeit eine Kooperation zwischen Professionellen und AdressatInnen beschrieben, welche die Expertise aller Beteiligten anerkennt.
Bitsch, Kevin
core   +1 more source

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source

Discrepancy in Ratings of Shared Decision Making Between Patients and Health Professionals: A Cross Sectional Study in Mental Health Care

Frontiers in Psychology, 2020
BackgroundA defined goal in mental health care is to increase the opportunities for patients to more actively participate in their treatment. This goal includes integrating aspects of user empowerment and shared decision-making (SDM) into treatment ...
Karin Drivenes, Karin Drivenes, Vegard Ø. Haaland, Vegard Ø. Haaland, Yina L. Hauge, John-Kåre Vederhus, Audun C. Irgens, Kristin Klemmetsby Solli, Kristin Klemmetsby Solli, Kristin Klemmetsby Solli, Hilde Regevik, Hilde Regevik, Ragnhild S. Falk, Lars Tanum, Lars Tanum   +14 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Changing what researchers 'think and do': Is this how involvement impacts on research?

Research for All, 2017
Much has been written about the impact of involvement on research and the people involved, but much less is known about the impact on researchers. Based on previous experience of evaluating involvement, I was aware that researchers often report learning
doaj   +2 more sources

Service user involvement in pre-registration children’s nursing education: the impact and influence on practice: a case study on the student perspective

, 2013
This paper reports on a study that aimed to conduct an in-depth investigation into the impact of user involvement on student learning and subsequent influence on practice as a qualified nurse. This was undertaken through a single case study that followed
Rhodes, Christine Amanda, Rhodes, Christine   +1 more
core   +1 more source