Results 41 to 50 of about 19,774,358 (302)

Patient-centered outcomes for clinical trials in chronic rhinosinusitis with or without nasal polyps and allergic fungal rhinosinusitis

Journal of Patient-Reported Outcomes
Background Chronic rhinosinusitis (inclusive of subtypes with nasal polyps [CRSwNP], without nasal polyps [CRSsNP], and allergic fungal rhinosinusitis [AFRS]) causes inflammation of the nose mucosa and paranasal sinuses.
Brittany Klooster, Kaitlin Chatterton, Nazifa Ibrahim, Madison C. Bernstein, Alan L. Shields, Veleka Allen   +5 more
doaj   +1 more source

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia, Giulia Reggiani, Elizabeth J. Maran, Maria Elisa Delle Fave, Ilaria Baido, Anna Chiara Frigo, Maria Paola Boaro, Raffaella Colombatti   +7 more
wiley   +1 more source

The patient reported intraocular lens questionnaire (PR-ILQ): content validity, psychometric performance, and use in a regulated clinical trial to evaluate safety and effectiveness outcomes

Journal of Patient-Reported Outcomes
Background Patient-reported outcomes (PROs) are underutilized in medical device evaluations, including in ophthalmology and intraocular lens (IOL) replacements.
Alan L. Shields, Nina Galipeau, Leighann Litcher-Kelly, Alejandro Moreno-Koehler, Jimmy Chacko   +4 more
doaj   +1 more source

Values-Based Leadership: How Our Personal Values Impact the Workplace [PDF]

, 2012
As an individual’s personal values ostensibly impact others and influence their actions, values-based leaders can benefit greatly by exercising their own values to develop vision and to inspire ...
Dean, Katherine W
core   +1 more source

The logic of p-values [PDF]

, 2017
Wagenmakers et al. addressed the illogic use of p-values in 'Psychological Science under Scrutiny'. While historical criticisms mostly deal with the illogical nature of null hypothesis significance testing (NHST), Wagenmakers et al.
Perezgonzalez, JD
core   +2 more sources

Imaging of High‐Risk Neuroblastoma: Recommendations From SIOPEN Radiology and Nuclear Medicine Specialty Committees

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma is the most common extracranial solid tumor in early childhood. Its clinical behavior is highly variable, ranging from spontaneous regression to fatal outcome despite intensive treatment. The International Society of Pediatric Oncology Europe Neuroblastoma Group (SIOPEN) Radiology and Nuclear Medicine Specialty Committees ...
Annemieke Littooij, Catia Olianti, Herve Brisse, Pier Luigi Di Paolo, Maria Garganese, Tejas Kapadia, Jurgen Schaefer, Hugh Wallace, Simon Wan, Bart de Keizer, Irmina Sefic Pasic, Julian Rogasch   +11 more
wiley   +1 more source

Psychometric evaluation of the HFDD, PROMIS SD SF 8b, and MENQOL questionnaire in women experiencing vasomotor symptoms associated with menopause

Journal of Patient-Reported Outcomes
Background Vasomotor symptoms (VMS; hot flashes) associated with menopause have significant impacts on health-related quality of life and are a leading cause for women seeking medical attention.
Andrew Trigg, Melissa Barclay, Sophie Whyman, Asha Lehane, Helena Bradley, Christoph Gerlinger, Christian Seitz, Adam Gater, Claudia Haberland   +8 more
doaj   +1 more source

Interpolated Schur multiple zeta values [PDF]

, 2017
Inspired by a recent work of M. Nakasuji, O. Phuksuwan and Y. Yamasaki we combine interpolated multiple zeta values and Schur multiple zeta values into one object, which we call interpolated Schur multiple zeta values.
Bachmann, Henrik
core   +3 more sources

Effects of Cancer Treatment on Somatosensory and Nociceptive Processing in Children and Adolescents: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Chemotherapy‐induced peripheral neuropathy remains a major complication in pediatric cancer, with disrupted somatosensory and nociceptive processing being a key aspect. This review synthesizes empirical studies on alterations in somatosensory and nociceptive processing in children and adolescents with cancer.
Julia Schweiger, Laura Walz, Michael C. Frühwald, Stefan Lautenbacher, Miriam Kunz   +4 more
wiley   +1 more source

Initial Psychometric Evaluation of the Barth Syndrome Symptom Assessment (BTHS-SA) for Adolescents and Adults in a Phase 2 Clinical Study

Orphanet Journal of Rare Diseases
Background Barth syndrome (BTHS) is a rare, X-linked disorder that stems from mutations in the TAFAZZIN (TAZ) gene with varying disease severity among patients.
Chad Gwaltney, Alan Shields, Emily Love, Sarah Ollis, Jonathan Stokes, Iyar Mazar, Ethan Arenson, Anthony Aiudi, R. J. Wirth, Carrie Houts   +9 more
doaj   +1 more source