Adult Congenital Heart Disease
Congenital heart disease (CHD) is the most common birth defect and affects approximately 9 per 1,000 newborns. Major advances in the management of children with CHD has yielded a dramatic change in age distribution, with more adults living with CHD nowadays than children.
Paul Schoenhagen, Frank Dong
+6 more sources
Histone deacetylase adaptation in single ventricle heart disease and a young animal model of right ventricular hypertrophy. [PDF]
BackgroundHistone deacetylase (HDAC) inhibitors are promising therapeutics for various forms of cardiac diseases. The purpose of this study was to assess cardiac HDAC catalytic activity and expression in children with single ventricle (SV) heart disease ...
A Cevik +49 more
core +1 more source
Background: Advance care planning is essential for patient-centered care at the end of life, yet little is known about the end-of-life experience for adults with congenital heart disease.
Adam J. Small +4 more
doaj +1 more source
Infective Endocarditis in Adults With Congenital Heart Disease
A challenging case of infective endocarditis in a young woman with repaired tetralogy of Fallot and a diagnosis of ankylosing spondylitis is described.
Anna Selvaggia Roma, MD +5 more
doaj +1 more source
A simple screening method for determining knowledge of the appropriate levels of activity and risk behaviour in young people with congenital cardiac conditions [PDF]
Objective: To assess a novel method for assessing risk and providing advice about activity to children and young people with congenital cardiac disease and their parents. Design and setting: Questionnaire survey in outpatient clinics at a tertiary centre
Kendall, L +3 more
core +1 more source
The development of a new measure of quality of life for children with congenital cardiac disease [PDF]
The purpose of the study was to develop a questionnaire measuring health-related R1 quality of life for children and adolescents with congenital heart disease, the ConQol, that would have both clinical and research applications.
Birks, Y +8 more
core +1 more source
Successful heart transplantation in a patient with Ivemark syndrome combined with situs inversus, single atrium and ventricle after total cavo-pulmonary connection [PDF]
Heart transplantation represents a valuable therapeutical option for patients with congenital heart disease and end-stage heart failure. We report the case of a young adult patient with a situs inversus and additional complex congenital malformations of ...
Althaus, Ulrich +3 more
core
The views of young people with congenital cardiac disease on designing the services for their treatment [PDF]
Background and purpose: There is little documented evidence of young people with congenital cardiac disease being consulted as to what help, if any, they really need in relation to their condition. Most research concentrates on the medical aspects of the
Kendall, L. +3 more
core +1 more source
Pulmonary arterial hypertension with left to right shunts: When to treat and/or close?
Pulmonary arterial hypertension (PAH) is defined as increase in mean pulmonary arterial pressure and pulmonary vascular resistance (PVR). It can be associated with congenital heart disease (CHD) with the following subtypes: 1) uncorrected left-to-right ...
Michele D'Alto +9 more
doaj +1 more source
Lifetime cardiovascular management of patients with previous Kawasaki disease. [PDF]
Kawasaki disease (KD) is an inflammatory disorder of young children, associated with vasculitis of the coronary arteries with subsequent aneurysm formation in up to one-third of untreated patients.
Brogan, Paul +14 more
core +1 more source

