Validation of the Investigator's Global Assessment Scale for Epidermolysis Bullosa Simplex
ABSTRACT Background There is a lack validated outcome measures to assess wound severity in epidermolysis bullosa simplex (EBS). Objectives To assess the reliability and validity of the Investigator's Global Assessment (IGA) scale and a newly developed palms/soles subscale through in‐clinic scoring and review of patient‐submitted photographs.
Pirunthan Pathmarajah +13 more
wiley +1 more source
Caregiving among American Indian/Alaska Native adults [2015-2018] [Spanish]
Caregiving among American Indian/Alaska Native adults [2015-2018] [Spanish]Datos del Sistema de Vigilancia de Factores de Riesgo del Comportamiento (BRFSS, por sus siglas en ingle\u301s), del 2015 al 2018, correspondientes a adultos indoamericanos y ...
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The SAAD‐41 is a 41‐item scale developed to comprehensively assess Alopecia Areata psychosocial patient‐reported outcomes. Results support scoring the scale at the subdomain level and provisionally at the total‐score level. The total‐score can be calculated as a sum of the 41 SAAD items, with the sum referred to as the SAAD‐41‐Total.
Kristina Gorbatenko‐Roth +5 more
wiley +1 more source
Leveraging partnerships to address substance use among American Indian and Alaska Native populations: A commentary on research within the NIDA Clinical Trials Network. [PDF]
Crouch MC +10 more
europepmc +1 more source
We used GPS video camera collar data from barren‐ground caribou in the Porcupine and Western Arctic herds to validate antler‐ and movement‐based methods for estimating annual reproductive metrics. Antler retention was highly accurate for estimating parturition, but the movement methods we tested performed marginally for estimating parturition and ...
Heather E. Johnson +6 more
wiley +1 more source
Colorectal Cancer in the American Indian and Alaska Native Community: A Holistic Review. [PDF]
Monetathchi AR +7 more
europepmc +1 more source
Military Service and Survival Among Persons With ALS in the U.S. National ALS Registry, 2011–2023
ABSTRACT Introduction/Aims Military service has been associated with increased risk of amyotrophic lateral sclerosis (ALS) but less is known about survival after diagnosis. We evaluated the association between military service and survival after ALS diagnosis among U.S. National ALS Registry participants. Methods Participants who completed the Registry'
D. Kevin Horton +5 more
wiley +1 more source
Vision Screening and Vision Loss-Related Conditions Among American Indian or Alaska Native Children.
Cederberg LE +5 more
europepmc +1 more source
Focus Groups With American Indian/Alaska Native Adults to Discuss Substance Misuse and Access to Services. [PDF]
Woods C +4 more
europepmc +1 more source
Comprehensive cancer plan for the Alaska Tribal Health System 2011 to 2017
Cancer continues to be the number one cause of death for the Alaska Native people. However, many people live a long time after a cancer diagnosis and cancer is now considered a chronic disease like heart disease.
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