Sociodemographic and Clinical Profile of Adult Males With Duchenne Muscular Dystrophy
ABSTRACT Introduction/Aims Due to improvements in clinical care, individuals with Duchenne muscular dystrophy (DMD) are living into adulthood, but little has been published about adults with DMD. We describe key characteristics of adults with DMD using US population‐based surveillance data.
Manju Jayasimha Pula Jayaram +12 more
wiley +1 more source
Effectiveness of coronavirus disease 2019 (COVID-19) original vaccines to prevent COVID-19-related hospitalisations among Alaska Native peoples, January 2021-October 2022. [PDF]
Blake I +5 more
europepmc +1 more source
Abstract Background The landscape of nutrition support faces challenges, including rising costs, product shortages, reimbursement gaps, and infusion providers closing. This nationwide survey aimed to describe the perceptions and attitudes related to costs, therapy access, and mental health among households with at least one family member requiring ...
Gabriela Gardner +2 more
wiley +1 more source
Correction: Rural/Urban Differences Among American Indian/Alaska Native Peoples in Health Care Access and Outcomes, 2019-2023. [PDF]
Kozhimannil KB +5 more
europepmc +1 more source
Caregiving among American Indian/Alaska Native adults [2015-2018]
2015\u20132018 Behavioral Risk Factor Surveillance System (BRFSS) Data from American Indian and Alaska Native adults in 44 States, Puerto Rico, and the District of ColumbiaCS 294325-A April 2020AM.IND_.NAT_.AM_.-CAREGIVING-2018 ...
core
Multifaceted burden of short bowel syndrome for patients and caregivers: The landmark survey
Abstract Background Short bowel syndrome is a debilitating condition often requiring long‐term parenteral support to maintain hydration, nutrition, and survival. Methods As part of the noninterventional, cross‐sectional Landmark Survey study, we evaluated burdens associated with short bowel syndrome and parenteral support dependency from patient and ...
Jenny E. Harrison +11 more
wiley +1 more source
Definitions Matter: BIPOC Nonprofits and Racial Disparities in Nonprofit Funding
ABSTRACT BIPOC (Black, Indigenous, and People of Color) nonprofits have gained increased attention and funding; however, a lack of clear definition and identification persists. This ambiguity hinders our understanding of the BIPOC nonprofits population and racial disparities in nonprofit funding.
Shuyi Deng
wiley +1 more source
ABSTRACT Adverse childhood experiences (ACEs) are strongly linked to negative long‐term health outcomes. Sexual minority (SM) individuals face disproportionate exposure to ACEs and their consequences compared to heterosexual peers. However, the mechanisms connecting ACEs to these outcomes remain poorly understood.
Marvin A. Schilt‐Solberg +1 more
wiley +1 more source
Grief, mental health, historical trauma, and alcohol use among American Indian and Alaska Native populations. [PDF]
Gameon JA, Grubin F, Skewes MC.
europepmc +1 more source

