Results 181 to 190 of about 1,084,211 (259)

Sociodemographic and Clinical Profile of Adult Males With Duchenne Muscular Dystrophy

open access: yesMuscle &Nerve, EarlyView.
ABSTRACT Introduction/Aims Due to improvements in clinical care, individuals with Duchenne muscular dystrophy (DMD) are living into adulthood, but little has been published about adults with DMD. We describe key characteristics of adults with DMD using US population‐based surveillance data.
Manju Jayasimha Pula Jayaram   +12 more
wiley   +1 more source

Survey to assess the economic stability and mental health of households with people receiving enteral and parenteral nutrition

open access: yesNutrition in Clinical Practice, EarlyView.
Abstract Background The landscape of nutrition support faces challenges, including rising costs, product shortages, reimbursement gaps, and infusion providers closing. This nationwide survey aimed to describe the perceptions and attitudes related to costs, therapy access, and mental health among households with at least one family member requiring ...
Gabriela Gardner   +2 more
wiley   +1 more source

Caregiving among American Indian/Alaska Native adults [2015-2018]

open access: yes
2015\u20132018 Behavioral Risk Factor Surveillance System (BRFSS) Data from American Indian and Alaska Native adults in 44 States, Puerto Rico, and the District of ColumbiaCS 294325-A April 2020AM.IND_.NAT_.AM_.-CAREGIVING-2018 ...

core  

Multifaceted burden of short bowel syndrome for patients and caregivers: The landmark survey

open access: yesNutrition in Clinical Practice, EarlyView.
Abstract Background Short bowel syndrome is a debilitating condition often requiring long‐term parenteral support to maintain hydration, nutrition, and survival. Methods As part of the noninterventional, cross‐sectional Landmark Survey study, we evaluated burdens associated with short bowel syndrome and parenteral support dependency from patient and ...
Jenny E. Harrison   +11 more
wiley   +1 more source

Definitions Matter: BIPOC Nonprofits and Racial Disparities in Nonprofit Funding

open access: yesNonprofit Management and Leadership, EarlyView.
ABSTRACT BIPOC (Black, Indigenous, and People of Color) nonprofits have gained increased attention and funding; however, a lack of clear definition and identification persists. This ambiguity hinders our understanding of the BIPOC nonprofits population and racial disparities in nonprofit funding.
Shuyi Deng
wiley   +1 more source

The Mediating Role of Disengaged Coping in the Relationship Between Adverse Childhood Experiences and Substance Use Among Sexual Minority Adults

open access: yesResearch in Nursing &Health, EarlyView.
ABSTRACT Adverse childhood experiences (ACEs) are strongly linked to negative long‐term health outcomes. Sexual minority (SM) individuals face disproportionate exposure to ACEs and their consequences compared to heterosexual peers. However, the mechanisms connecting ACEs to these outcomes remain poorly understood.
Marvin A. Schilt‐Solberg   +1 more
wiley   +1 more source

Virtual Culturally Grounded Interventions for Substance Use in Urban American Indian and Alaska Native Emerging Adults: A Randomized Clinical Trial.

open access: yesJAMA Netw Open
D'Amico EJ   +12 more
europepmc   +1 more source

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