Results 91 to 100 of about 1,051,283 (173)

Security and privacy requirements and secure storage architecture

, 2016
Privacy and security are fundamental concepts that must be built into BBMRI-ERIC IT services by design, as trust and transparency are the key element of each medical research infrastructure.
Muhammad, Salman, Niazi, Khan, Parák, Boris, Holub, Petr, Dowling, Jim, Hakimzadeh, Kamal   +5 more
core   +1 more source

How-to Guide: Governance in Biobanking

, 2019
This how-to guide focuses on addressing general issues relating to governance that are commonly seen as challenge areas, notwithstanding varying regulatory requirements.
Goisauf, Melanie, Mayrhofer, Michaela, Durnová, Anna, Grewal, Jasjote   +3 more
core   +1 more source

Getting your DUCs in a row - standardising the representation of Digital Use Conditions

Scientific Data
Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions.
Francis Jeanson, Spencer J. Gibson, Pinar Alper, Alexander Bernier, J. Patrick Woolley, Daniel Mietchen, Andrzej Strug, Regina Becker, Pim Kamerling, Maria del Carmen Sanchez Gonzalez, Nancy Mah, Ann Novakowski, Mark D. Wilkinson, Oussama Mohammed Benhamed, Annalisa Landi, Georg Philip Krog, Heimo Müller, Umar Riaz, Colin Veal, Petr Holub, Esther van Enckevort, Anthony J. Brookes   +21 more
doaj   +1 more source

Best practice document for optimal usage of omics  technologies for biomarkers

, 2017
Different omics technologies are expected to accelerate biomarker discovery and validation but translation of these technologies into clinically actionable tools has been slow. Multiple technical platforms exist for omics profiling and there
Anu Jalanko, Iiro Hämäläinen, Marialuisa Lavitrano, Kurt  Zatloukal , Gert‐Jan van Ommen, Michael Hisbergues,  Kyriacos Kyriacou, Annelies Debucquoy, Outi Törnwall (8225934), Anu Jalanko, Iiro Hämäläinen, Marialuisa Lavitrano, Kurt  Zatloukal , Gert‐Jan van Ommen, Michael Hisbergues,  Kyriacos Kyriacou, Annelies Debucquoy, Outi Törnwall   +1 more
core   +1 more source

A roadmap for personalized medicine: the findings of the IC2PerMed project

Frontiers in Medicine
IntroductionPersonalized Medicine (PM) tailors prevention and treatment to individuals based on their unique characteristics. It has the potential to improve health outcomes and healthcare sustainability by optimizing resource allocation.
Flavia Beccia, Francesco Andrea Causio, Marzia Di Marcantonio, Ilda Hoxhaj, Chiara Cadeddu, Melissa Campagno, Lena Schleicher, Carmen Fotino, Maike Tauchert, Marta Lomazzi, Lili Wang, Wenya Wang, Huiyao Huang, Walter Ricciardi, Stefania Boccia, Stefania Boccia   +15 more
doaj   +1 more source

BBMRI-NL Biobank Catalogue

, 2023
Het betreft informatie over beschikbare collecties lichaamsmateriaal en daarmee geassocieerde gegevens. Met de BBMRI-NL Biobankcatalogus kunt u: Een overzicht krijgen van de biobanken die verbonden zijn aan BBMRI-NL.
De geregistreerden
core  

Common conditions of use elements. Atomic concepts for consistent and effective information governance

Scientific Data
Myriad policy, ethical and legal considerations underpin the sharing of biological resources, implying the need for standardised and yet flexible ways to digitally represent diverse ‘use conditions’. We report a core lexicon of terms that are atomic, non-
Maria del Carmen Sanchez Gonzalez, Pim Kamerling, Mariapia Iermito, Sara Casati, Umar Riaz, Colin D. Veal, Monika Maini, Francis Jeanson, Oussama Mohammed Benhamed, Esther van Enckevort, Annalisa Landi, Yanis Mimouni, Clèmence Le Cornec, Domenico A. Coviello, Tiziana Franchin, Francesca Fusco, Jose Antonio Ramírez García, Loes F. M. van der Zanden, Alexander Bernier, Mark D. Wilkinson, Heimo Mueller, Spencer J. Gibson, Anthony J. Brookes   +22 more
doaj   +1 more source

What public health challenges and unmet medical needs would benefit from interdisciplinary collaboration in the EU? A survey and multi-stakeholder debate

Frontiers in Public Health
In the past decade, significant European calls for research proposals have supported translational collaborative research on non-communicable and infectious diseases within the biomedical life sciences by bringing together interdisciplinary and ...
Francesca Pistollato, Gregor Burkhart, Pierre Deceuninck, Camilla Bernasconi, Sergio Di Virgilio, Luca Emili, Anne-Charlotte Fauvel, Luisa Ferreira Bastos, Annalisa Gastaldello, Chiara Gerardi, Jens K. Habermann, Ioan Hanes, Christina Kyriakopoulou, Uma Lanka, Paolo Lauriola, Hugh Laverty, Benoit G. C. Maisonneuve, Milena Mennecozzi, Francesco Pappalardo, Roberta Pastorino, Vilma Radvilaite, Erwin L. Roggen, Helder Constantino   +22 more
doaj   +1 more source

Special Issue: '‘Vulnerability’ within Contemporary Feminist Politics and Theory'

Redescriptions, 2020
Mónica Cano Abadía, Tuija Pulkkinen
doaj   +1 more source

Leveraging innovative research tools to meet public health challenges: a BioMed21 workshop report

NAM Journal
The biomedical research landscape is undergoing a transformative shift towards human-centric, interdisciplinary approaches aimed to enhance translational relevance, amplify research impact, and address pressing public health challenges and unmet medical ...
Francesca Pistollato, Fabia Furtmann, Sarah Abitbol, Marta Agostinho, Toni Andreu, Bianca Baluta, Regina G.H. Beets-Tan, Sonja Beken, Silvia Ciotti, Sandra Coecke, Tiago Correia, Christian Desaintes, Frédéric Destrebecq, Philippe Detilleux, Sergio Di Virgilio, Antigoni Effraimidou, Luisa Ferreira Bastos, Annalisa Gastaldello, Jens K. Habermann, Ioan Hanes, Mihajlo Jakovljevic, Hugh Laverty, Benoit Maisonneuve, Lindsay J Marshall, Dania Movia, Giorgia Pallocca, Francesco Pappalardo, Roberta Pastorino, Vilma Radvilaite, Kirsty Reid, Silke Riegger, Giulia Russo, Daniela Salvatori, Valerie Speirs, Marco Straccia, Danilo A Tagle, Jan Turner, Janny van den Eijnden–van Raaij, Laura Viviani, Helder Constantino   +39 more
doaj   +1 more source