Results 81 to 90 of about 762,970 (169)

ASPECTE JURIDICE ȘI MEDICALE PRIVIND PROTECȚIA DATELOR DIN BIOBANCA USMF „NICOLAE TESTEMIȚANU”

Buletinul Academiei de Ştiinţe a Moldovei: Ştiinţe Medicale
ucrarea prezintă analiza cadrului normativ și tehnologic aplicabil protecției datelor cu caracter personal în biobanca USMF „Nicolae Testemițanu”. Scopul cercetării a fost evaluarea conformității infrastructurii digitale cu legislația națională și ...
Galina BUTA, Raisa PUIA , Mihail TODIRAȘ, Ghenadie CUROCICHIN   +3 more
doaj   +1 more source

BBMRI-ERIC/directory-scripts: v0.1

<h2>What's Changed</h2> <ul> <li>Merge geocoding.py changes by @EvaGarciaAlvarez in https://github.com/BBMRI-ERIC/directory-scripts/pull/18</li> <li>Creates a script to add orphacodes to directory emx file by @svituz ...
Esther van Enckevort, Vittorio Meloni, Petr Holub, EvaGarciaAlvarez   +3 more
core   +1 more source

Harmonised Access Procedure to Samples and Data

, 2016
This framework document describes basic access criteria and procedures under which the access and use of samples and data facilitated by BBMRI-ERIC are realized.
Michaela Th. Mayrhofer, Philip Quinlan, Petr Holub, Michael Hummel, Kurt Zatloukal, Georges Dagher, Mats Hansson, Maimuna Mendy, Kaisa Silander, Marialuisa Lavitrano, Irene Schlünder, Anu Jalanko, Outi Törnwall   +12 more
core   +1 more source

Four simple recommendations to encourage best practices in research software [version 1; referees: 2 approved]

F1000Research, 2017
Scientific research relies on computer software, yet software is not always developed following practices that ensure its quality and sustainability. This manuscript does not aim to propose new software development best practices, but rather to provide ...
Rafael C. Jiménez, Mateusz Kuzak, Monther Alhamdoosh, Michelle Barker, Bérénice Batut, Mikael Borg, Salvador Capella-Gutierrez, Neil Chue Hong, Martin Cook, Manuel Corpas, Madison Flannery, Leyla Garcia, Josep Ll. Gelpí, Simon Gladman, Carole Goble, Montserrat González Ferreiro, Alejandra Gonzalez-Beltran, Philippa C. Griffin, Björn Grüning, Jonas Hagberg, Petr Holub, Rob Hooft, Jon Ison, Daniel S. Katz, Brane Leskošek, Federico López Gómez, Luis J. Oliveira, David Mellor, Rowland Mosbergen, Nicola Mulder, Yasset Perez-Riverol, Robert Pergl, Horst Pichler, Bernard Pope, Ferran Sanz, Maria V. Schneider, Victoria Stodden, Radosław Suchecki, Radka Svobodová Vařeková, Harry-Anton Talvik, Ilian Todorov, Andrew Treloar, Sonika Tyagi, Maarten van Gompel, Daniel Vaughan, Allegra Via, Xiaochuan Wang, Nathan S. Watson-Haigh, Steve Crouch   +48 more
doaj   +1 more source

BBMRI-ERIC Colorectal Cancer Cohort (CRC-Cohort): Data Protection Policy

, 2023
Colorectal Cancer Cohort (CRC-Cohort) is developed by BBMRI-ERIC, its BBMRI-ERIC Na- tional/Organisational Nodes, and BBMRI-ERIC partner biobanks. The CRC-Cohort is de- veloped as a part of the ADOPT BBMRI-ERIC project1 and will become permanent asset of BBMRI-ERIC research infrastructure after the end of the project in order to enable re- search to ...
Holub, Petr, Schlünuder, Irene, Zatloukal, Kurt, Törnwall, Outi, Adeniran, Ayodeji, Lavitrano, Marialuisa, Hummel, Michael   +6 more
openaire   +2 more sources

The Rare Disease Moonshot: Paradigms Shift, Translational Medicine, and Regulatory Science for the World's Rarest Conditions

Clinical Pharmacology &Therapeutics, Volume 116, Issue 6, Page 1387-1390, December 2024.
Cécile Ollivier, Solange Corriol‐Rohou, Marta del Álamo, Roseline Favresse, Johanna Kostenzer, Mathieu Boudes, Anton E. Ussi, Klaus Viel, R. Michael Linden, Magda Chlebus   +9 more
wiley   +1 more source

Rda Data Fabric Ig (Dfig): Bbmri-Eric It

, 2015
This document has been written as a BBMRI-ERIC use case description for Research Data Alliance (RDA) Data Fabric IG (DFIG). References to existing RDA work are minimized on purpose, as it focuses on description of the use case itself. The structure of section complies with the RDA DFIG.
Petr Holub, Michaela Th. Mayrhofer, Jan-Eric Litton, CS IT contributors   +3 more
openaire   +2 more sources

Security and privacy requirements and secure storage architecture

, 2016
Privacy and security are fundamental concepts that must be built into BBMRI-ERIC IT services by design, as trust and transparency are the key element of each medical research infrastructure.
Muhammad, Salman, Niazi, Khan, Parák, Boris, Holub, Petr, Dowling, Jim, Hakimzadeh, Kamal   +5 more
core   +1 more source

Getting your DUCs in a row - standardising the representation of Digital Use Conditions

Scientific Data
Improving patient care and advancing scientific discovery requires responsible sharing of research data, healthcare records, biosamples, and biomedical resources that must also respect applicable use conditions.
Francis Jeanson, Spencer J. Gibson, Pinar Alper, Alexander Bernier, J. Patrick Woolley, Daniel Mietchen, Andrzej Strug, Regina Becker, Pim Kamerling, Maria del Carmen Sanchez Gonzalez, Nancy Mah, Ann Novakowski, Mark D. Wilkinson, Oussama Mohammed Benhamed, Annalisa Landi, Georg Philip Krog, Heimo Müller, Umar Riaz, Colin Veal, Petr Holub, Esther van Enckevort, Anthony J. Brookes   +21 more
doaj   +1 more source

How-to Guide: Governance in Biobanking

, 2019
This how-to guide focuses on addressing general issues relating to governance that are commonly seen as challenge areas, notwithstanding varying regulatory requirements.
Goisauf, Melanie, Mayrhofer, Michaela, Durnová, Anna, Grewal, Jasjote   +3 more
core   +1 more source