Results 61 to 70 of about 130 (105)

What Are The Key Factors For The Success Of Bbmri-Eric?

, 2014
The general aim of the breakout sessions during the 1st Scientific Retreat was to identify 3-5 key factors that are considered indicators for the success of BBMRI-ERIC by National Node Directors and their Representatives respectively. This White Paper represents the results and concensus reached among the Members of the Management Committee ...
Kemal Baysal, Edvard Beem, Georges Dagher, Annelies Debucquoy, Alex Felice, Araceli Diez-Fraile, Joakim Dillner, Isabell Hahn, Michael Hummel, Anu Jalanko, Marialuisa Lavitrano, Michaela Th. Mayrhofer, Maimuna Mendy, Andres Metspalu, Markus Pasterk, Ulrike Rohrer, Gert-Jan van Ommen, Joanna Vella, Kurt Zatloukal, Jan-Eric Litton   +19 more
openaire   +2 more sources

From the creation of the European research area in 2000 to a Mission on cancer in Europe in 2021‐lessons learned and implications

Molecular Oncology, Volume 18, Issue 4, Page 785-792, April 2024.
This report briefly describes the actions embraced by the cancer community and cancer organizations in reponse to Commissioner Busquin´s proposals in 2000 and 2002 that led to the creation of the EU Mission on Cancer. In the year 2000, cancer research in Europe had the potential to make a difference as it had several unique strengths, such as a strong ...
Julio Celis, Ulrik Ringborg
wiley   +1 more source

biobank.cy: the Biobank of Cyprus past, present and future

Scientific Reports
The Cyprus Biobank collects biosamples, medical and lifestyle information with the aim of reaching 16,500 Cypriots aged ≥ 18-years, by year 2027, as part of a multitasked EU funded project. Volunteers are both from the general population and from disease
Eleni M. Loizidou, Maria Kyratzi, Maria A. Tsiarli, Andrea C. Kakouri, Georgia Charalambidou, Stella Antoniou, Stylianos Pieri, Panagiota Veloudi, Michaela Th. Mayrhofer, Andrea Wutte, Lukasz Kozera, Jens Habermann, Heimo Muller, Kurt Zatloukal, Karine Sargsyan, Alexandros Michaelides, Maria Papaioannou, Christos Schizas, Apostolos Malatras, Gregory Papagregoriou, Constantinos Deltas   +20 more
doaj   +1 more source

ASPECTE JURIDICE ȘI MEDICALE PRIVIND PROTECȚIA DATELOR DIN BIOBANCA USMF „NICOLAE TESTEMIȚANU”

Buletinul Academiei de Ştiinţe a Moldovei: Ştiinţe Medicale
ucrarea prezintă analiza cadrului normativ și tehnologic aplicabil protecției datelor cu caracter personal în biobanca USMF „Nicolae Testemițanu”. Scopul cercetării a fost evaluarea conformității infrastructurii digitale cu legislația națională și ...
Galina BUTA, Raisa PUIA , Mihail TODIRAȘ, Ghenadie CUROCICHIN   +3 more
doaj   +1 more source

Advanced technologies towards improved HPV diagnostics

Journal of Medical Virology, Volume 96, Issue 2, February 2024.
Abstract Persistent infection with high‐risk types of human papillomaviruses (HPV) is a major cause of cervical cancer, and an important factor in other malignancies, for example, head and neck cancer. Despite recent progress in screening and vaccination, the incidence and mortality are still relatively high, especially in low‐income countries.
Martin Bartosik, Ludmila Moranova, Nasim Izadi, Johana Strmiskova, Ravery Sebuyoya, Jitka Holcakova, Roman Hrstka   +6 more
wiley   +1 more source

Privacy-preserving data quality assessment for federated health data networks

BMC Medical Informatics and Decision Making
Background Assessing data quality in federated health data systems presents unique challenges, particularly when data custodians cannot expose raw data due to privacy regulations. Traditional quality assessment approaches often require centralised access,
Radovan Tomášik, Tobias Kussel, Zdenka Dudová, Radoslava Kacová, Roman Hrstka, Martin Lablans, Petr Holub   +6 more
doaj   +1 more source

Four simple recommendations to encourage best practices in research software [version 1; referees: 2 approved]

F1000Research, 2017
Scientific research relies on computer software, yet software is not always developed following practices that ensure its quality and sustainability. This manuscript does not aim to propose new software development best practices, but rather to provide ...
Rafael C. Jiménez, Mateusz Kuzak, Monther Alhamdoosh, Michelle Barker, Bérénice Batut, Mikael Borg, Salvador Capella-Gutierrez, Neil Chue Hong, Martin Cook, Manuel Corpas, Madison Flannery, Leyla Garcia, Josep Ll. Gelpí, Simon Gladman, Carole Goble, Montserrat González Ferreiro, Alejandra Gonzalez-Beltran, Philippa C. Griffin, Björn Grüning, Jonas Hagberg, Petr Holub, Rob Hooft, Jon Ison, Daniel S. Katz, Brane Leskošek, Federico López Gómez, Luis J. Oliveira, David Mellor, Rowland Mosbergen, Nicola Mulder, Yasset Perez-Riverol, Robert Pergl, Horst Pichler, Bernard Pope, Ferran Sanz, Maria V. Schneider, Victoria Stodden, Radosław Suchecki, Radka Svobodová Vařeková, Harry-Anton Talvik, Ilian Todorov, Andrew Treloar, Sonika Tyagi, Maarten van Gompel, Daniel Vaughan, Allegra Via, Xiaochuan Wang, Nathan S. Watson-Haigh, Steve Crouch   +48 more
doaj   +1 more source

BBMRI-ERIC Colorectal Cancer Cohort (CRC-Cohort): Data Protection Policy

, 2023
Colorectal Cancer Cohort (CRC-Cohort) is developed by BBMRI-ERIC, its BBMRI-ERIC Na- tional/Organisational Nodes, and BBMRI-ERIC partner biobanks. The CRC-Cohort is de- veloped as a part of the ADOPT BBMRI-ERIC project1 and will become permanent asset of BBMRI-ERIC research infrastructure after the end of the project in order to enable re- search to ...
Holub, Petr, Schlünuder, Irene, Zatloukal, Kurt, Törnwall, Outi, Adeniran, Ayodeji, Lavitrano, Marialuisa, Hummel, Michael   +6 more
openaire   +2 more sources

The Rare Disease Moonshot: Paradigms Shift, Translational Medicine, and Regulatory Science for the World's Rarest Conditions

Clinical Pharmacology &Therapeutics, Volume 116, Issue 6, Page 1387-1390, December 2024.
Cécile Ollivier, Solange Corriol‐Rohou, Marta del Álamo, Roseline Favresse, Johanna Kostenzer, Mathieu Boudes, Anton E. Ussi, Klaus Viel, R. Michael Linden, Magda Chlebus   +9 more
wiley   +1 more source

Rda Data Fabric Ig (Dfig): Bbmri-Eric It

, 2015
This document has been written as a BBMRI-ERIC use case description for Research Data Alliance (RDA) Data Fabric IG (DFIG). References to existing RDA work are minimized on purpose, as it focuses on description of the use case itself. The structure of section complies with the RDA DFIG.
Petr Holub, Michaela Th. Mayrhofer, Jan-Eric Litton, CS IT contributors   +3 more
openaire   +2 more sources