Results 71 to 80 of about 762,970 (169)

Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity

Developing World Bioethics, Volume 24, Issue 3, Page 139-150, September 2024.
Abstract Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of informed consent, the reporting of incidental findings and the use of Transfer Agreements remain a vast ...
Olga Tzortzatou‐Nanopoulou, Kaya Akyüz, Melanie Goisauf, Łukasz Kozera, Signe Mežinska, Michaela Th. Mayrhofer, Santa Slokenberga, Jane Reichel, Talishiea Croxton, Alexandra Ziaka, Marina Makri   +10 more
wiley   +1 more source

Analysis of requirements on biobank and study workflows [PDF]

, 2016
Human biobanks, which are the core of BBMRI-ERIC medical research infrastructure, are repositories of biological material and data associated with the research participants (donors or patients willing to participate in the research).
Morris Swertz, Pieter Neerincx, Petr Holub, Ondřej Vojtíšek   +3 more
core   +1 more source

An ethics framework for the transition to an operational learning healthcare system

Learning Health Systems, Volume 8, Issue 3, July 2024.
Abstract Introduction While Learning Healthcare Systems (LHSs) have received increasing attention in health care and research, the amount of operational LHSs remains limited. Given the investment of resources in these projects, a moral responsibility to pursue the transition toward an LHS falls on projects and their participating stakeholders.
Marieke J Hollestelle, Rieke van der Graaf, Miriam CJM Sturkenboom, Johannes JM van Delden   +3 more
wiley   +1 more source

Abstracts

Molecular Oncology, Volume 19, Issue S1, Page 1-940, June 2025.
Abstracts submitted to the ‘EACR 2025 Congress: Innovative Cancer Science’, from 16–19 June 2025 and accepted by the Congress Organising Committee are published in this Supplement of Molecular Oncology, an affiliated journal of the European Association for Cancer Research (EACR).
wiley   +2 more sources

What Are The Key Factors For The Success Of Bbmri-Eric?

, 2014
The general aim of the breakout sessions during the 1st Scientific Retreat was to identify 3-5 key factors that are considered indicators for the success of BBMRI-ERIC by National Node Directors and their Representatives respectively. This White Paper represents the results and concensus reached among the Members of the Management Committee ...
Kemal Baysal, Edvard Beem, Georges Dagher, Annelies Debucquoy, Alex Felice, Araceli Diez-Fraile, Joakim Dillner, Isabell Hahn, Michael Hummel, Anu Jalanko, Marialuisa Lavitrano, Michaela Th. Mayrhofer, Maimuna Mendy, Andres Metspalu, Markus Pasterk, Ulrike Rohrer, Gert-Jan van Ommen, Joanna Vella, Kurt Zatloukal, Jan-Eric Litton   +19 more
openaire   +2 more sources

Biobanks in cardiovascular disease research

Кардиоваскулярная терапия и профилактика
A systematic review of publications from the PubMed and eLibrary. ru databases, Biobanking and Biomolecular Resources Research Infrastructure — European Research Infrastructure Consortium (BBMRI-ERIC) and ClinicalTrials.gov studies was carried out for 15
A. M. Gusakova, E. S. Kravchenko, T. E. Suslova, S. V. Popov, A. A. Boshchenko   +4 more
doaj   +1 more source

From the creation of the European research area in 2000 to a Mission on cancer in Europe in 2021‐lessons learned and implications

Molecular Oncology, Volume 18, Issue 4, Page 785-792, April 2024.
This report briefly describes the actions embraced by the cancer community and cancer organizations in reponse to Commissioner Busquin´s proposals in 2000 and 2002 that led to the creation of the EU Mission on Cancer. In the year 2000, cancer research in Europe had the potential to make a difference as it had several unique strengths, such as a strong ...
Julio Celis, Ulrik Ringborg
wiley   +1 more source

D8.1 Requirements specification for data harmonisation and terminology mapping tools

, 2016
BBMRI-ERIC aims to facilitate the joint establishment and operation of research infrastructures of European interest that will provide access to the collections of partner biobanks and biomolecular resources, their expertise and services on a non ...
Schüttler, Christina, Miettinen, Timo, Prokosch, Hans-Ulrich, Silander, Kaisa, Eklund, Niina, Knuuttila, Juha, Mate, Sebastian   +6 more
core   +1 more source

biobank.cy: the Biobank of Cyprus past, present and future

Scientific Reports
The Cyprus Biobank collects biosamples, medical and lifestyle information with the aim of reaching 16,500 Cypriots aged ≥ 18-years, by year 2027, as part of a multitasked EU funded project. Volunteers are both from the general population and from disease
Eleni M. Loizidou, Maria Kyratzi, Maria A. Tsiarli, Andrea C. Kakouri, Georgia Charalambidou, Stella Antoniou, Stylianos Pieri, Panagiota Veloudi, Michaela Th. Mayrhofer, Andrea Wutte, Lukasz Kozera, Jens Habermann, Heimo Muller, Kurt Zatloukal, Karine Sargsyan, Alexandros Michaelides, Maria Papaioannou, Christos Schizas, Apostolos Malatras, Gregory Papagregoriou, Constantinos Deltas   +20 more
doaj   +1 more source

Advanced technologies towards improved HPV diagnostics

Journal of Medical Virology, Volume 96, Issue 2, February 2024.
Abstract Persistent infection with high‐risk types of human papillomaviruses (HPV) is a major cause of cervical cancer, and an important factor in other malignancies, for example, head and neck cancer. Despite recent progress in screening and vaccination, the incidence and mortality are still relatively high, especially in low‐income countries.
Martin Bartosik, Ludmila Moranova, Nasim Izadi, Johana Strmiskova, Ravery Sebuyoya, Jitka Holcakova, Roman Hrstka   +6 more
wiley   +1 more source