Results 21 to 30 of about 26,930 (292)

Access to Biobanks: Harmonization Across Biobank Initiatives [PDF]

Biopreservation and Biobanking, 2014
The current study investigates whether access arrangements relevant for biobanking contain clear information on key access conditions. It furthermore assesses the extent to which these access conditions are harmonized across biobank initiatives.A comparative analysis was conducted of access arrangements developed by 26 organizations, 36 biobank ...
Michiel, Verlinden, Herman, Nys, Nadine, Ectors, Isabelle, Huys   +3 more
openaire   +3 more sources

Unraveling the Ethical, Legal, and Social Implications of Neurobiobanking and Stroke Genomic Research in Africa: A Study Protocol of the African Neurobiobank for Precision Stroke Medicine ELSI Project

International Journal of Qualitative Methods, 2020
The ethical, legal, and social implications (ELSI) of emerging neurobiobanks and data resources are unclear in an African scientific landscape with unique cultural, linguistic, and belief systems.
Rufus O. Akinyemi, Carolyn Jenkins, Michelle Nichols, Arti Singh, Kolawole Wahab, Albert Akpalu, Fred S. Sarfo, Lukman F. Owolabi, Reginald Obiako, Joshua Akinyemi, Babatunde Ojebuyi, Muyiwa Adigun, Rabiu Musbahu, Abiodun Bello, Musibau Titiloye, Benedict Calys-Tagoe, Mayowa Ogunronbi, Ezinne Uvere, Ruth Laryea, Adekunle Fakunle, Osi Adeleye, Olorunyomi Olorunsogbon, Adebayo Ojo, Deborah Adesina, Nathaniel Mensah, Wisdom Oguike, Nathaniel Coleman, Aliyu Mande, Muhammed Uthman, Rajesh N. Kalaria, Ayodele Jegede, Mayowa Owolabi, Bruce Ovbiagele, Oyedunni Arulogun   +33 more
doaj   +1 more source

Neurofilament light chain is increased in the parahippocampal cortex and associates with pathological hallmarks in Parkinson’s disease dementia

Translational Neurodegeneration, 2023
Background Increased neurofilament levels in biofluids are commonly used as a proxy for neurodegeneration in several neurodegenerative disorders.
Irene Frigerio, Max A. Laansma, Chen-Pei Lin, Emma J. M. Hermans, Maud M. A. Bouwman, John G. J. M. Bol, Yvon Galis-de Graaf, Dagmar H. Hepp, Annemieke J. M. Rozemuller, Frederik Barkhof, Wilma D. J. van de Berg, Laura E. Jonkman   +11 more
doaj   +1 more source

Public views on the donation and use of human biological samples in biomedical research: a mixed methods study [PDF]

, 2013
Objective A mixed methods study exploring the UK general public's willingness to donate human biosamples (HBSs) for biomedical research.<p></p> Setting Cross-sectional focus groups followed by an online survey.<p></p> ...
Clotworthy, M., Corfield, J., Hilton, S., Lewis, C., MaGee, C., Robertson, M.J., Stubbins, L.J.   +6 more
core   +1 more source

LAS: a software platform to support oncological data management [PDF]

, 2012
The rapid technological evolution in the biomedical and molecular oncology fields is providing research laboratories with huge amounts of complex and heterogeneous data.
A El Akadi, A Tolopko, Alberto Grand, Alessandro Fiori, Andrea Bertotti, Elena Baralis, H Maier, J Wang, K Kuhn, S Clément, S Haquin, TR Golub   +11 more
core   +1 more source

Newspaper coverage of biobanks [PDF]

PeerJ, 2014
Background. Biobanks are an important research resource that provides researchers with biological samples, tools and data, but have also been associated with a range of ethical, legal and policy issues and concerns.
Ubaka Ogbogu, Maeghan Toews, Adam Ollenberger, Pascal Borry, Helene Nobile, Manuela Bergmann, Timothy Caulfield   +6 more
doaj   +2 more sources

Dwarna : a blockchain solution for dynamic consent in biobanking [PDF]

, 2019
Dynamic consent aims to empower research partners and facilitate active participation in the research process. Used within the context of biobanking, it gives individuals access to information and control to determine how and where their biospecimens ...
Desira, Maria, Ebejer, Jean Paul, Ellul, Bridget, Mamo, Nicholas, Martin, Gillian M.   +4 more
core   +1 more source

Molecular Portrait of an Athlete

Diagnostics, 2021
Sequencing of the human genome and further developments in “omics” technologies have opened up new possibilities in the study of molecular mechanisms underlying athletic performance.
Kristina A. Malsagova, Tatyana V. Butkova, Arthur T. Kopylov, Alexander A. Izotov, Vladimir R. Rudnev, Mikhail S. Klyuchnikov, Alexander A. Stepanov, Anna L. Kaysheva   +7 more
doaj   +1 more source

Biobanking from the patient perspective [PDF]

, 2015
Biobanks and biobanking research plays an increasingly important role in healthcare research and delivery as health systems become more patient-centred and medicine becomes more personalised. There is also growing acceptance and appreciation of the value
Geissler, Jan, Keulen, Hans, Matharoo-Ball, Balwir, Mitchell, Derick, Parry-Jones, Alison, Schmitt, Doris C., Vavassori, Rosaria   +6 more
core   +1 more source

Samples and data accessibility in research biobanks. An explorative survey [PDF]

, 2016
Biobanks, which contain human biological samples and/or data, provide a crucial contribution to the progress of biomedical research. However, the effective and efficient use of biobank resources depends on their accessibility.
Anagnostou, Paolo, Bisol, Giovanni Destro, Capocasa, Marco, D'Abramo, Flavio, Dominici, Valentina, Matteucci, Giulia, Rufo, Fabrizio   +6 more
core   +2 more sources