Results 81 to 90 of about 264,137 (313)

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Active involvement of the formal Caregiver: operative strategies and interventions in home care.

, 2023
reservedCoinvolgimento attivo del caregiver formale: strategie ed interventi efficaci in assistenza domiciliare.active involvement of the formal caregiver: operative strategies and interventions in home ...
MILINO, CAROLINA
core  

Electroencephalographic Normalization as a Biomarker of Clinical Recovery in Down Syndrome Regression Disorder

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Down syndrome regression disorder is a syndrome characterized by subacute loss of cognitive, behavioral, and functional abilities in individuals with Down syndrome. Electroencephalography abnormalities are frequently observed during evaluation, but it remains unclear whether these findings represent a dynamic marker of disease ...
Jonathan D. Santoro, Mackenzie Silverman, Maeve C. Lucas, Mariam M. Yousuf, Samuel T. Otey, Stella V. Gray, Brittany Jordan, Madeline D. Kahan, Latanya D. Agurs, Michelle Van Hirtum Das, Deborah Holder, Devin King, Eileen A. Quinn, Ryan Kammeyer, Michael S. Rafii   +14 more
wiley   +1 more source

The Use of Behavior and Mood Medications by Care-recipients in Dementia and Caregiver Depression and Perceived Overall Health [PDF]

The mental and physical health of dementia caregivers has been shown to be worse than that of non-caregivers. The present study was undertaken to investigate whether the caregivers of persons who take medications for behavior and mood problems in ...
Hossein Yazdi, Parminder Raina, Mark Oremus   +2 more
core  

Cognitive Behavioral Therapy for Youth With Childhood‐Onset Lupus: A Randomized Clinical Trial

Arthritis Care &Research, EarlyView.
Objective Our objective was to determine the feasibility and acceptability of the Treatment and Education Approach for Childhood‐Onset Lupus (TEACH), a six‐session cognitive behavioral intervention addressing depressive, fatigue, and pain symptoms, delivered remotely to individual youth with lupus by a trained interventionist.
Natoshia R. Cunningham, Thea Senger‐Carpenter, Jocelyn Zuckerman, Michelle Adler, Mallet R. Reid, Ashley Danguecan, Luana Flores Pereira, Sarah I. Mossad, Samantha L. Ely, Khalid Abulaban, Elizabeth A. Kessler, Natalie Rosenwasser, Tamar B. Rubinstein, Ekemini A. Ogbu, Emily A. Smitherman, Alaina Miller, Taylor Abounader, Elizabeth Ross, Livie Timmerman, Dhriti Sharma, Jennifer N. Stinson, Stacy Allen, Kabita Nanda, Tala El Tal, Deborah M. Levy, Linda T. Hiraki, Hermine I. Brunner, Mathew Reeves, Steven J. Pierce, Andrea Knight   +29 more
wiley   +1 more source

Legionnaires' disease at a medical center in southern Taiwan

Journal of Microbiology, Immunology and Infection, 2018
Background/purpose: Legionella pneumophila had been recognized as a pathogen for both healthcare-associated and community-acquired pneumonia. We aimed to evaluate clinical features and outcomes of patients with Legionnaires' disease at a tertiary medical
Tzu-Lun Hung, Ming-Chi Li, Li-Rong Wang, Ching-Chuan Liu, Chia-Wen Li, Po-Lin Chen, Ling-Shan Syue, Nan-Yao Lee, Wen-Chien Ko   +8 more
doaj   +1 more source

Being a caregiver for young people with disabilities: a full-time job [PDF]

openIl ruolo del caregiver familiare è importantissimo perché di essenziale supporto alla mancanza di un'adeguata e integrale rete di servizi a sostegno e gestione della vita delle persone con disabilità.
DONATO, ALICE
core  

The Unprepared Caregiver [PDF]

The Gerontologist, 2016
Years of studying health care financing and delivery does not prepare you for the actuality of dealing with a serious health event. The practical challenges of our extremely fragmented and complex health care system make it difficult to navigate this world-even when someone is there to help the patient.
openaire   +2 more sources

Improving Childhood Immunization Service Delivery in Cameroon: A Synthesis of Caregiver Experiences and Recommendations

Vaccines
Background/Objectives: A “people-centered” approach is one of the core principles of the Immunization Agenda (IA) 2030 and emphasizes the need for services to be organized around the needs and expectations of individuals and the community.
Yauba Saidu, Jessica Gu, Budzi Michael Ngenge, Sangwe Clovis Nchinjoh, Amani Adidja, Nnang Edwidge, Nkwain Muteh, Clarence Mbanga, Diaby Ousmane, Andreas Njoh, Junie Flegere, Demba Diack, Emanuele Montomoli, Sue Ann Costa Clemens   +13 more
doaj   +1 more source

Pengalaman Keluarga dalam Merawat Pasien Pascapasung

Jurnal Keperawatan Indonesia, 2015
Pasien pasung yang telah pulang dari rumah sakit jiwa (RSJ) oleh keluarga akan berpotensi untuk dipasung kembali. Tujuan penelitian menguraikan pengalaman keluarga dalam merawat pasien pascapasung.
Wahyu Reknoningsih, Novy Helena Catharina Daulima, Yossie Susanti Eka Putri   +2 more
doaj   +1 more source