Results 71 to 80 of about 315,529 (311)

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Caregiver Employment Status and Time to Institutionalization of Persons with Dementia [PDF]

Background - This study was undertaken to examine the association between caregiver employment status and the time to institutionalization of persons with dementia. No study has previously examined this association. Methods - The database of the Canadian
Parminder Raina, Mark Oremus
core  

Activity Book 1: Coast Salish Laws Relating to Child and Caregiver Nurturance & Safety [PDF]

, 2022
NIȽ TU,O Child and Family Services, in partnership with the Indigenous Law Research Unit (ILRU), is excited to launch a new toolkit on Child and Caregiver Nurturance and Safety centred on Coast Salish knowledge and law.
Paige, Lesie-Ann, Asch, Jessica, Williamson, Tara   +2 more
core  

Percutaneous endoscopic gastrostomy placement: Caregiver decision making in Taiwan

Journal of the Formosan Medical Association, 2013
To explore Taiwanese caregivers' decision making experiences of accepting a percutaneous endoscopic gastrostomy tube for their family member. Methods: A phenomenological approach was used for the interview and analysis.
Lily Yeh, Susan J. Fetzer, Shu-Yin Chen, Feng-Hwa Lu, Chiao-Hsiung Chuang, Ching-Huey Chen   +5 more
doaj   +1 more source

Electroencephalographic Normalization as a Biomarker of Clinical Recovery in Down Syndrome Regression Disorder

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Down syndrome regression disorder is a syndrome characterized by subacute loss of cognitive, behavioral, and functional abilities in individuals with Down syndrome. Electroencephalography abnormalities are frequently observed during evaluation, but it remains unclear whether these findings represent a dynamic marker of disease ...
Jonathan D. Santoro, Mackenzie Silverman, Maeve C. Lucas, Mariam M. Yousuf, Samuel T. Otey, Stella V. Gray, Brittany Jordan, Madeline D. Kahan, Latanya D. Agurs, Michelle Van Hirtum Das, Deborah Holder, Devin King, Eileen A. Quinn, Ryan Kammeyer, Michael S. Rafii   +14 more
wiley   +1 more source

Caregiver Health Related Quality of Life and Burden When Caring for Children with Traumatic Brain Injury [PDF]

, 2012
Often family members take on the responsibility of caregiver when another family member sustains a traumatic brain injury (TBI). The caregiving role is a stressful task which may impact negatively upon caregivers’ psychological and physical health ...
Rose, Wallis
core  

Digital Cognitive Phenotyping for Differential Diagnosis and Monitoring in Neurological Conditions

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To assess the utility, accessibility, and equivalence to supervised scales of online cognitive assessment in older individuals with cognitive impairment. Methods Patients with Alzheimer's disease (AD, n = 31), idiopathic normal pressure hydrocephalus (iNPH, n = 26), and traumatic brain injury (TBI, n = 23) completed online cognitive ...
Martina Del Giovane, Valentina Giunchiglia, Michael C. B. David, Magdalena A. Kolanko, William R. Trender, Peter J. Hellyer, Harmeena Kaur, David J. Sharp, Christopher Carswell, Paresh A. Malhotra, Adam Hampshire   +10 more
wiley   +1 more source

Activity Book 2: Coast Salish Laws Relating to Child and Caregiver Nurturance & Safety [PDF]

, 2021
NIȽ TU,O Child and Family Services, in partnership with the Indigenous Law Research Unit (ILRU), is excited to launch a new toolkit on Child and Caregiver Nurturance and Safety centred on Coast Salish knowledge and law.
Paige, Leslie-Ann, Asch, Jessica, Williamson, Tara   +2 more
core  

Caregiver- and adolescent-reported social and economic impacts of the COVID-19 pandemic among adolescents living with HIV in western Kenya, with comparisons by engagement cohort at enrollment in parent study.

, 2021
Caregiver- and adolescent-reported social and economic impacts of the COVID-19 pandemic among adolescents living with HIV in western Kenya, with comparisons by engagement cohort at enrollment in parent study.
Michael Scanlon (791403), Josephine Aluoch (11056425), Rami Kantor (7863), Suzanne Goodrich (7456445), Ashley Chory (11056419), Leslie A. Enane (5076689), Jayne Lewis Kulzer (11419020), Rachel C. Vreeman (8081882), Giorgos Bakoyannis (791550), Adrian Gardner (2741962), Batya Elul (164684), Zachary Kwena (266589), Edith Apondi (8081873), Kara Wools-Kaloustian (375804)   +13 more
core   +1 more source

Empowering Caregivers to Improve Working Posture Management for Preventing Musculoskeletal Injuries in Long Term Care Settings

Ahmar Metakarya
Physically demanding tasks in long-term care, such as lifting and repositioning patients, increase caregivers' risk of musculoskeletal disorders, highlighting the need for empowerment through targeted education and skills training to ensure safe ...
Ni Luh Dwi Indrayani, Ni Luh Putu Inca Agustini Buntari, I Gede Putu Darma Suyasa, Ni Kadek Sutini, Sergul Duygulu, Vitug Portia, Israfil Israfil, Ni Wayan Riska Sagita   +7 more
doaj   +1 more source