Results 31 to 40 of about 90,976 (257)

Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge, Maite E. Houwing, Rowena L. Grohssteiner, Ferdows Atiq, Sonja A. M. C. Teuben, Mirjam P. Fransen, Marjon H. Cnossen   +6 more
wiley   +1 more source

Stroke survivors’ health literacy is not associated with caregiver burden: a cross-sectional study

Scientific Reports
Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association ...
Andrea Hess Engström, Sebastian Lindblom, Maria Flink, Susanna Söderberg, Lena von Koch, Charlotte Ytterberg   +5 more
doaj   +1 more source

Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte, Hannah Koch, Olivia A. Coughlin, Jillian R. Bouck, Allie Carter, Seethal A. Jacob   +5 more
wiley   +1 more source

Family resilience and social support as mediators of caregiver burden and capacity in stroke caregivers: a cross-sectional study

Frontiers in Psychology
IntroductionCaring for stroke survivors poses significant challenges to survivors and caregivers; understanding these relationships can inform targeted interventions and support systems.AimThis study investigates the influencing factors of caregiver ...
Qihang Xu, Jingjing Ma, Yiqing Zhang, Jiehua Gan   +3 more
doaj   +1 more source

The Characteristics of Patients Associated With High Caregiver Burden in Parkinson's Disease in Singapore

Frontiers in Neurology, 2019
Introduction: Given the complex multitude of Parkinson's disease (PD) symptoms, caregiving for PD patients can be highly demanding. Our study was aimed to investigate the characteristics of PD patients related to different levels of caregiver burden ...
Mark M. J. Tan, Ee Chien Lim, Nivedita Vikas Nadkarni, Weng Kit Lye, Eng King Tan, Eng King Tan, Kumar M. Prakash, Kumar M. Prakash   +7 more
doaj   +1 more source

BMT4me En Español: Multisite Feasibility and Usability Testing of a Spanish‐Language mHealth Adherence Support App for Spanish‐Speaking Caregivers of Children After Hematopoietic Stem Cell Transplantation and Cancer Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Medication nonadherence during the first 100 days after pediatric hematopoietic stem cell transplantation (HSCT) and during oncology treatment increases risk for complications. BMT4me is a caregiver‐facing mobile health (mHealth) application providing medication reminders, symptom tracking, and note‐taking features to support ...
Micah A. Skeens, Madeline R. Peek, Bianca Franklin, Emre Sezgin, Melissa Beauchemin   +4 more
wiley   +1 more source

Factors influencing the caregiver burden for family caregivers of people with moderate-to-severe dementia: A structural equation modeling analysis.

PLoS ONE
BackgroundDementia poses an increasingly serious public health challenge worldwide, particularly in China, where home-based care remains the primary form of management. Family caregivers of older adults with moderate-to-severe dementia often experience a
Hong Qi, Jingjing Ban, Nana Wang, Tian Yao, Li Li, Shan Tang   +5 more
doaj   +1 more source

Association between apathy and caregiver burden in patients with amyotrophic lateral sclerosis: a cross-sectional study

BMJ Open
Objectives To investigate the relationship among patients’ apathy, cognitive impairment, depression, anxiety, and caregiver burden in amyotrophic lateral sclerosis (ALS).Design A cross-sectional study design was used.Setting The study was conducted at a ...
Min Zhang, Zhenxiang Gong, Wenhua Deng, Zehui Li, Jiahui Tang   +4 more
doaj   +1 more source

153 Caregiving burden and resilience: a mixed methods analysis in dyads managing a VAD in the home

Journal of Clinical and Translational Science, 2022
OBJECTIVES/GOALS: Caregivers of patients with ventricular assist devices (VAD) are invaluable contributors to patient health, but they may experience psychological symptoms or worsening quality of life related to caregiving.
Anna Peeler, Martha Abshire Saylor, Lauren Choy, Lyndsay DeGroot, Noelle Pavlovic, Patricia Davidson, Julie T. Bidwell   +6 more
doaj   +1 more source

ASSIST: Refinement of a Benefits Navigator Intervention Among Low‐Income Pediatric Oncology Families

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Children with cancer living in poverty experience worse survival and quality of life. Interventions connecting low‐income families to benefits (e.g., Supplemental Nutrition Assistance Program [SNAP] improve health outcomes; yet nearly 50% of SNAP‐eligible pediatric oncology families are unenrolled.
Puja J. Umaretiya, Selena Murcia Mendez, Jennifer Kellett, Sarah Wright, Marisel Ponton, Robin T. Higashi, Rahela Aziz‐Bose, Colleen A. Kelly, Ayesha Zia, Joanne Wolfe, Sandi L. Pruitt, Kira Bona   +11 more
wiley   +1 more source