Results 51 to 60 of about 208,093 (305)

153 Caregiving burden and resilience: a mixed methods analysis in dyads managing a VAD in the home

Journal of Clinical and Translational Science, 2022
OBJECTIVES/GOALS: Caregivers of patients with ventricular assist devices (VAD) are invaluable contributors to patient health, but they may experience psychological symptoms or worsening quality of life related to caregiving.
Anna Peeler, Martha Abshire Saylor, Lauren Choy, Lyndsay DeGroot, Noelle Pavlovic, Patricia Davidson, Julie T. Bidwell   +6 more
doaj   +1 more source

Does an Intervention Designed to Improve Self-management, Social Support and Awareness of Palliative-care Address Needs of Persons with Heart Failure, Family Caregivers and Clinicians? [PDF]

, 2018
Aims and Objectives To conduct a formative evaluation of the iPad‐Enhanced Shared Care Intervention for Partners (iSCIP) among persons with heart failure (HF), family caregivers and clinicians. Together, persons with HF and family caregivers are referred
Garnier-Villarreal, Mauricio, Sebern, Margaret, Sebern, Mark J., Sulemanjee, Nasir, Whitlatch, Carol J.   +4 more
core   +2 more sources

Fluid and Neuroimaging Biomarkers in Microgliopathy Colony‐Stimulating Factor‐1 Receptor‐Related Disorders

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective This study aims to identify both fluid and neuroimaging biomarkers for CSF1R‐RD that can inform the optimal timing of treatment administration to maximize therapeutic benefit, while also providing sensitive quantitative measurements to monitor disease progression.
Tomasz Chmiela, Madison Reeves, Karen Jansen‐West, Judith Dunmore, Yuping Song, Audrey Strongosky, Sunil Gandhi, Gilana Pikover, Matt Blurton‐Jones, Robert C. Spitale, Erik H. Middlebrooks, Leonard Petrucelli, Mercedes Prudencio, Zbigniew K. Wszolek   +13 more
wiley   +1 more source

Stroke survivors’ health literacy is not associated with caregiver burden: a cross-sectional study

Scientific Reports
Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association ...
Andrea Hess Engström, Sebastian Lindblom, Maria Flink, Susanna Söderberg, Lena von Koch, Charlotte Ytterberg   +5 more
doaj   +1 more source

Caregiver's burden in rehabilitation of patients with neurological deficits following traumatic spinal cord injury

Journal of Spinal Surgery, 2017
Introduction: Traumatic spinal cord injury (SCI) is an emerging public health problem reaching epidemic proportions. Reduced functional capacity after SCI not only affects the quality of life (QOL) of the patient, but also creates an added social ...
Vinu V Gopal, P T Baburaj, P K Balakrishnan   +2 more
doaj   +1 more source

Lived experiences of informal caregivers of people with chronic musculoskeletal pain: a systematic review and meta-ethnography [PDF]

, 2021
BACKGROUND: People with chronic pain often seek support from friends and family for everyday tasks. These individuals are termed informal caregivers. There remains uncertainty regarding the lived experiences of these people who care for individuals with ...
Bowlby J., Bronfenbrenner U, GBD, Major CH, Mease P., Merskey H, Sofaer-Bennett B   +6 more
core   +1 more source

Association of Corticospinal Tract Asymmetry With Ambulatory Ability After Intracerebral Hemorrhage

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Ambulatory ability after intracerebral hemorrhage (ICH) is important to patients. We tested whether asymmetry between ipsi‐ and contra‐lesional corticospinal tracts (CSTs) assessed by diffusion tensor imaging (DTI) is associated with post‐ICH ambulation.
Yasmin N. Aziz, Carl D. Langefeld, Mary E. Comeau, Miranda C. Marion, Tyler P. Behymer, Lee A. Gilkerson, Padmini Sekar, Weihong Yuan, Vivek Khandwala, Brady J. Williamson, Thomas Maloney, Achala Vagal, Pierce Boyne, Kari Dunning, Matthew L. Flaherty, Steven J. Kittner, Prachi Mehndiratta, Gunjan Y. Parikh, Michael L. James, David Roh, Fernando D. Testai, Farhaan S. Vahidy, James Thornton, Ranjit Bagga, Daniel Woo, Stacie L. Demel   +25 more
wiley   +1 more source

Heart Failure Caregiver Burden and Outcomes: A Systematic Review

Journal of Primary Care & Community Health, 2022
Introduction/Objective: This review aimed to summarize articles describing caregiver burden and the relationship between health outcomes as well as describing interventions focusing on this population.
Wanich Suksatan, Thitipong Tankumpuan, Patricia M. Davidson   +2 more
doaj   +1 more source

Age‐Related Characteristics of SYT1‐Associated Neurodevelopmental Disorder

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives We describe the clinical manifestations and developmental abilities of individuals with SYT1‐associated neurodevelopmental disorder (Baker‐Gordon syndrome) from infancy to adulthood. We further describe the neuroradiological and electrophysiological characteristics of the condition at different ages, and explore the associations ...
Sam G. Norwitz, Josefine Eck, Joel S. Winston, Kate Baker   +3 more
wiley   +1 more source

Does family confidence bridge child functioning and caregiver burden in early intervention?

PLoS ONE
BackgroundEnhancing caregivers' confidence and competence in early childhood intervention is a priority, focusing on collaboration between professionals and families to improve family well-being and quality of life.
Gabriel Martínez-Rico, Pau García-Grau, Margarita Cañadas-Pérez, Rómulo J González-García   +3 more
doaj   +1 more source