Results 41 to 50 of about 90,976 (257)

Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study

BMC Palliative Care, 2020
Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden ...
Zati Sabrina Ahmad Zubaidi, Farnaza Ariffin, Cindy Teoh Cy Oun, Diana Katiman   +3 more
doaj   +1 more source

The Caregiver Burden of Mothers of Patients Who Received Tracheostomy in a University Hospital Pediatric Intensive Care Unit

Journal of Pediatric Emergency and Intensive Care Medicine, 2022
Introduction:The aim of this study was to determine the caregiver burden of mothers of patients who were treated in a university hospital pediatric intensive care unit and had tracheostomy.Methods:The mothers of 41 patients who were hospitalized and ...
Dilek Öztoprak Hacıoğlu, Caner Hacıoğlu, Ökkeş Özgür Mart, Dinçer Yıldızdaş   +3 more
doaj   +1 more source

Bridging the Gap in Neuroblastoma Care: Consensus‐Based Statements With Recommendations for Improved Patient and Caregiver Experiences

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma's complex, heterogeneous biology poses significant diagnostic and therapeutic challenges, often requiring caregivers to absorb complex information and participate in time‐sensitive decisions. However, caregivers often feel unprepared to evaluate options.
Vickie Buenger, Joseph Bauer, Jennifer Diamond, Maggie Fader, Shae Hansen, Jacqueline M. Kraveka, Johanna Schoen, Amber Shearer, Dena Sherwood   +8 more
wiley   +1 more source

Caregiver Burden in Alzheimer's Disease: Differential Associations in Adult-Child and Spousal Caregivers in the GERAS Observational Study

Dementia and Geriatric Cognitive Disorders Extra, 2014
Background/Aims: To examine factors influencing the caregiver burden in adult-child and spousal caregivers of community-dwelling patients with Alzheimer's disease (AD). Methods: Baseline data from the 18-month, prospective, observational GERAS study of 1,
Catherine Reed, Mark Belger, Grazia Dell'Agnello, Anders Wimo, Josep Maria Argimon, Giuseppe Bruno, Richard Dodel, Josep Maria Haro, Roy W. Jones, Bruno Vellas   +9 more
doaj   +1 more source

An [Imperfect] Case for Dyadic Research in Pediatric Psychosocial Oncology

Pediatric Blood &Cancer, EarlyView.
Stephanie M. Nanos, Lindsay A. Jibb, Gary Rodin   +2 more
wiley   +1 more source

Consensus Standards and Recommendations for Developmental and Cognitive Surveillance, Screening, and Evaluation in Sickle Cell Disease: Executive Summary From the National Alliance of Sickle Cell Centers Neurocognitive Workgroup

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neurodevelopmental and neurocognitive difficulties are prevalent among individuals with sickle cell disease and warrant prompt identification and support. This Special Report provides an executive summary of standards and recommendations for surveillance, screening, and evaluation for development and cognition across the lifespan developed by ...
Alyssa M. Schlenz, Donna Murdaugh, Andrew M. Heitzer, Jennifer N. Longoria, Wendy Santos‐Modesitt, Arianna Martin, Judy Cavazos, Jeff Schatz, Catherine R. Hoyt, Alison King, Eboni I. Lance, Steven Hardy, Marsha Treadwell   +12 more
wiley   +1 more source

Does family confidence bridge child functioning and caregiver burden in early intervention?

PLoS ONE
BackgroundEnhancing caregivers' confidence and competence in early childhood intervention is a priority, focusing on collaboration between professionals and families to improve family well-being and quality of life.
Gabriel Martínez-Rico, Pau García-Grau, Margarita Cañadas-Pérez, Rómulo J González-García   +3 more
doaj   +1 more source

Caregiver's burden in rehabilitation of patients with neurological deficits following traumatic spinal cord injury

Journal of Spinal Surgery, 2017
Introduction: Traumatic spinal cord injury (SCI) is an emerging public health problem reaching epidemic proportions. Reduced functional capacity after SCI not only affects the quality of life (QOL) of the patient, but also creates an added social ...
Vinu V Gopal, P T Baburaj, P K Balakrishnan   +2 more
doaj   +1 more source

Phase Angle as an Early Functional Biomarker of Cancer‐Related Fatigue in Pediatric Oncology: A Prospective Longitudinal Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric cancer remains a leading cause of morbidity and mortality worldwide, particularly in low‐and middle‐income countries. Cancer treatment may impair nutritional status, alter body composition, and exacerbate cancer‐related fatigue (CRF).
Luís Carlos Lopes‐Junior, Luiz Claudio Barreto Silva Neto, Fabiano Kenji Haraguchi, Letícia Batista de Azevedo, Marcelo Brenner Nascimento Carlini, Raphael Manhães Pessanha, Mariana Rabello Laignier, Wesley Rocha Grippa, Tania Mara Lopes Bitti Bortolini, Gláucia Zouain‐Figueiredo, Regina Aparecida Garcia de Lima, Liliana Vasquez   +11 more
wiley   +1 more source

Development and Implementation of a Disease‐Targeted Storybook as a Clinical Tool for Children With Acute Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Although significant progress has been made in childhood leukemia survival, healthcare providers, and caregivers often face challenges in explaining this disease to patients. Disease‐targeted storybooks have been proposed as a tool to facilitate the understanding of diagnoses and treatment.
Nutvipha Ummartyotin, Usanarat Anurathapan, Rawiwan Roongpraiwan, Potchanee Dandamrongrak, Siriporn Nakhonchai, Pawin Numthavaj, Vilawan Chirdkiatgumchai   +6 more
wiley   +1 more source