Results 41 to 50 of about 868,551 (294)

Hidden victims of HIV/AIDS : the impact of caregiving on elderly caregivers [PDF]

, 2008
Includes bibliographical references (leaves 92-107).The HIV/AIDS pandemic in South Africa and the concomitant high mortality rate of the middle generation has resulted in an increased number of orphans and vulnerable children (DVCs).
Mangerah, Munirah
core   +1 more source

Burden in primary informal caregivers of children and adolescents with type 1 diabetes: Is it associated with depression, family dysfunction, and glycemic control?

Frontiers in Endocrinology, 2023
ObjectiveThe requirement of a chronic treatment and the increase in life expectancy in children with type 1 diabetes (T1D) leads to the possibility of caregiver burden.
Lourdes Balcázar-Hernández, Hebert Huerta-Martínez, Eulalia Garrido Magaña, Elisa Nishimura-Meguro, Abigail Jiménez Márquez, Aleida Rivera-Hernández   +5 more
doaj   +1 more source

Attitudes and burden in relatives of patients with schizophrenia in a middle income country [PDF]

, 2011
BACKGROUND: Most studies of family attitudes and burden have been conducted in developed countries. Thus it is important to test the generalizability of this research in other contexts where social conditions and extended family involvement may be ...
Peñaloza, Claudia, Alejandro Cuadra-Peralta, Marta Ferrer-García, Caqueo-Urízar Alejandra, Richards-Araya David, Ferrer-García Marta, Caqueo-Urízar, Alejandra, Peñaloza-Salazar Claudia, Claudia Peñaloza-Salazar, Ferrer, Marta (Ferrer García), Cuadra-Peralta, Alejandro, Cuadra-Peralta Alejandro, Gutiérrez-Maldonado José, Alejandra Caqueo-Urízar, José Gutiérrez-Maldonado, David Richards-Araya, Gutiérrez Maldonado, José, Richards-Araya, David   +17 more
core   +2 more sources

From patient advocacy to patient‐driven research: Building active partnerships beginning at the bench to reach the bedside

FEBS Open Bio, EarlyView.
Research is strongest when conducted alongside patients, not just about them. Patient research organizations help integrate patient perspectives into research priorities, study design, and scientific meetings, leading to meaningful patient outcomes and development of relevant therapies.
Jenica H. Kakadia, Rachel Heilmann, Maximiliano Barrientos, Laura MacNeill, Ingrid Vallee, Sarah K. Schultz, Patrick O'Donoghue, Angelica A. Moresco, Victoria M. Siu, Ilka U. Heinemann   +9 more
wiley   +1 more source

Stroke survivors’ health literacy is not associated with caregiver burden: a cross-sectional study

Scientific Reports
Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association ...
Andrea Hess Engström, Sebastian Lindblom, Maria Flink, Susanna Söderberg, Lena von Koch, Charlotte Ytterberg   +5 more
doaj   +1 more source

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller, Vanessa Vallejo, Mónica Povedano Panadés, Orla Hardiman, Véronique Danel‐Brunaud, Senda Ajroud‐Driss, Philippe Couratier, Jeremy Shefner, Anna Gokey, Mike DiCesare, Erin Lennox, Jens Praestgaard, Lucie Brujin, Peggy Allred, Ram Miller   +14 more
wiley   +1 more source

Family resilience and social support as mediators of caregiver burden and capacity in stroke caregivers: a cross-sectional study

Frontiers in Psychology
IntroductionCaring for stroke survivors poses significant challenges to survivors and caregivers; understanding these relationships can inform targeted interventions and support systems.AimThis study investigates the influencing factors of caregiver ...
Qihang Xu, Jingjing Ma, Yiqing Zhang, Jiehua Gan   +3 more
doaj   +1 more source

The Characteristics of Patients Associated With High Caregiver Burden in Parkinson's Disease in Singapore

Frontiers in Neurology, 2019
Introduction: Given the complex multitude of Parkinson's disease (PD) symptoms, caregiving for PD patients can be highly demanding. Our study was aimed to investigate the characteristics of PD patients related to different levels of caregiver burden ...
Mark M. J. Tan, Ee Chien Lim, Nivedita Vikas Nadkarni, Weng Kit Lye, Eng King Tan, Eng King Tan, Kumar M. Prakash, Kumar M. Prakash   +7 more
doaj   +1 more source

Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer's Disease. [PDF]

PLoS ONE, 2015
To assess the direct and indirect effects of patient or caregiver factors on caregiver burden of caring for community-residing people with mild Alzheimer's disease (AD).We conducted a cross-sectional study of patients diagnosed with AD from two hospitals
Hongmei Yu, Xiaocheng Wang, Runlian He, Ruifeng Liang, Liye Zhou   +4 more
doaj   +1 more source

Unraveling 4‐Phenylbutyrate's Therapeutic Role in SLC6A1 Disorders: Pharmacochaperoning Over HDAC Inhibition

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Variants in SLC6A1, encoding the GABA transporter 1 (GAT‐1), cause epilepsy, autism spectrum disorder, and developmental delay via loss of GABA uptake, impaired trafficking, and ER retention. We previously found that 4‐Phenylbutyrate (PBA), an FDA‐approved drug, restores GABA uptake and reduces seizures in SLC6A1‐related disorders ...
Melissa B. DeLeeuw, Karishma Randhave, Ekta Anand, Ziang (Debbie) Song, Wangzhen Shen, Jing‐Qiong Kang   +5 more
wiley   +1 more source