Results 61 to 70 of about 919,726 (297)

Neurocognitive, School‐Based, and Quality of Life Outcomes for Youth With Sickle Cell Disease and Thalassemia: A Scoping Review

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling   +2 more
wiley   +1 more source

Caregiver Burden in Patients with Pulmonary Hypertension

open access: yes, 2020
Both quality of life (QoL) and caregiver burden are essential constructs in patients with pulmonary hypertension (PH) however; their relationship has never been investigated before.
KOCAKAYA, DERYA   +8 more
core   +1 more source

Dementia caregiving characteristics, elder impairment, and caregiver strain and burden [PDF]

open access: yes, 2010
This study assessed the influence of caregiver characteristics on perceived elder impairment, caregiver burden, and caregiver strain in a study of 292 dementia caregivers in Iowa.
Heinz, Melinda
core   +1 more source

Measuring the Caregiver Burden of Caring for Community-Residing People with Alzheimer's Disease. [PDF]

open access: yesPLoS ONE, 2015
To assess the direct and indirect effects of patient or caregiver factors on caregiver burden of caring for community-residing people with mild Alzheimer's disease (AD).We conducted a cross-sectional study of patients diagnosed with AD from two hospitals
Hongmei Yu   +4 more
doaj   +1 more source

Lorlatinib‐Containing Therapy for MYCN‐Amplified, ALK‐Mutated Neuroblastoma With Bulky Leptomeningeal Relapse: A Case Report

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Central nervous system (CNS) relapse of neuroblastoma carries a poor prognosis, and craniospinal irradiation (CSI) poses substantial long‐term toxicity in young children. We report a toddler with MYCN‐amplified neuroblastoma harboring somatic ALK R1275Q who developed extensive leptomeningeal relapse with paraplegia.
Jinwoo Kim   +11 more
wiley   +1 more source

Stroke survivors’ health literacy is not associated with caregiver burden: a cross-sectional study

open access: yesScientific Reports
Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association ...
Andrea Hess Engström   +5 more
doaj   +1 more source

Family resilience and social support as mediators of caregiver burden and capacity in stroke caregivers: a cross-sectional study

open access: yesFrontiers in Psychology
IntroductionCaring for stroke survivors poses significant challenges to survivors and caregivers; understanding these relationships can inform targeted interventions and support systems.AimThis study investigates the influencing factors of caregiver ...
Qihang Xu   +3 more
doaj   +1 more source

The Characteristics of Patients Associated With High Caregiver Burden in Parkinson's Disease in Singapore

open access: yesFrontiers in Neurology, 2019
Introduction: Given the complex multitude of Parkinson's disease (PD) symptoms, caregiving for PD patients can be highly demanding. Our study was aimed to investigate the characteristics of PD patients related to different levels of caregiver burden ...
Mark M. J. Tan   +7 more
doaj   +1 more source

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres   +6 more
wiley   +1 more source

Factors influencing the caregiver burden for family caregivers of people with moderate-to-severe dementia: A structural equation modeling analysis.

open access: yesPLoS ONE
BackgroundDementia poses an increasingly serious public health challenge worldwide, particularly in China, where home-based care remains the primary form of management. Family caregivers of older adults with moderate-to-severe dementia often experience a
Hong Qi   +5 more
doaj   +1 more source

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