Results 11 to 20 of about 5,379,197 (286)

Development and validation of a psoriasis treatment acceptability measure through group concept mapping

Health and Quality of Life Outcomes, 2023
Background Psoriasis is a common autoimmune dermatologic condition which has a pronounced negative impact on patient quality of life and disease burden.
Stacie Hudgens, Amy Howerter, Shannon Keith, Colby Evans, Corey Pelletier   +4 more
doaj   +1 more source

Concept confirmation of the Treatment Administration Satisfaction Questionnaire (TASQ) in rare paroxysmal nocturnal hemoglobinuria

Journal of Patient-Reported Outcomes, 2021
Background This study was conducted to evaluate content validity of the IntraVenous and SubCutaneous Treatment Administration Satisfaction Questionnaires (TASQ-IV and TASQ-SC), for use in a clinical trial population of participants with paroxysmal ...
Helen Doll, Ufuk Coşkun, Chris Hartford, Ioannis Tomazos   +3 more
doaj   +1 more source

A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

Journal of Patient-Reported Outcomes, 2021
Background Patient-reported outcome measures (PROs) used to measure symptoms of patients with paroxysmal nocturnal hemoglobinuria (PNH) in trials do not measure PNH symptoms comprehensively and do not assess daily fluctuations in symptoms.
R. Paola Daly, Jessica J. Jalbert, Shannon Keith, Tara Symonds, Jamile Shammo   +4 more
doaj   +1 more source

Practice Patterns and Training Needs Among Physicians Certifying Patients for Medical Marijuana in Florida

Journal of Primary Care & Community Health, 2021
Background: Little is known about the clinical training or practice experiences among physicians who certify patients for medical marijuana. The objective of this study was to determine information sources, factors influencing recommendations, clinical ...
Ruba Sajdeya, Anna Shavers, Jennifer Jean-Jacques, Brianna Costales, Sebastian Jugl, Carly Crump, Yan Wang, Luran Manfio, R. Nathan Pipitone, Martha S. Rosenthal, Almut G. Winterstein, Robert L. Cook   +11 more
doaj   +1 more source

Clinical Diagnosis of Placenta Accreta and Clinicopathological Outcomes [PDF]

, 2019
Objective To investigate the association between the intraoperative diagnosis of placenta accreta at the time of cesarean hysterectomy and pathological diagnosis.
Cahill, Alison G., Hirshberg, Jonathan S., Macones, George A., Rosenbloom, Joshua I., Stout, Molly J., Tuuli, Methodius G.   +5 more
core   +1 more source

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: quantitative study findings

Journal of Patient-Reported Outcomes, 2022
Highlights Historically, provisioned handheld devices [PD] have been provided to participants to enter patient-reported outcome (PRO) data during a clinical trial.
Stacie Hudgens, Louise Newton, Sonya Eremenco, Mabel Crescioni, Tara Symonds, Philip C. G. Griffiths, David S. Reasner, Bill Byrom, Paul O’Donohoe, Susan Vallow, the Patient-Reported Outcome (PRO) Consortium and Electronic Clinical Outcome Assessment (eCOA) Consortium   +10 more
doaj   +1 more source

Dispensing of antibiotics without prescription in the metropolitan area of Athens, Greece, in 2021—Can new legislation change old habits?

Antimicrobial Stewardship & Healthcare Epidemiology, 2023
Objective: To assess the effect of new legislation on the dispensing of antimicrobials without prescription from pharmacies in Greece. Design: In-person survey.
Ioannis Kopsidas, Lydia Kokkinidou, Dioni Pinelopi Petsiou, Eleni Kourkouni, Christos Triantafyllou, Grammatiki-Christina Tsopela, Theoklis Zaoutis   +6 more
doaj   +1 more source

Patient-reported outcomes of periacetabular osteotomy from the prospective ANCHOR cohort study [PDF]

, 2017
BACKGROUND: Current literature describing the periacetabular osteotomy (PAO) is mostly limited to retrospective case series. Larger, prospective cohort studies are needed to provide better clinical evidence regarding this procedure.
Amstutz, Beck, Bellamy, Biedermann, Clavien, Clohisy, Clohisy, Clohisy, Clohisy, Clohisy, Daniel J. Sucato, David A. Podeszwa, Dindo, Duncan, Ernest L. Sink, Ganz, Geneva Baca, Harris, Hartig-Andreasen, Ira Zaltz, Jack Baty, Jeffrey Ackerman, John C. Clohisy, Lequesne, Matheney, Matta, McKinley, Michael B. Millis, Murphy, Nepple, Nilsdotter, Ninomiya, Paul E. Beaulé, Perry L. Schoenecker, Peters, Rafael J. Sierra, Robert T. Trousdale, Robertson, Salter, Siebenrock, Sink, Sink, Steel, Steppacher, Steppacher, Sugano, Troelsen, Tönnis, Tönnis, Wiberg, Yasunaga, Young-Jo Kim, Zaltz, Ziebarth   +53 more
core   +2 more sources

Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

Orphanet Journal of Rare Diseases, 2021
Background Niemann-Pick disease type C (NPC) is a debilitating condition that impacts patients’ and caregivers’ quality of life (QOL) and reduces the patient’s life expectancy.
Eugen Mengel, Marc C. Patterson, Michael Chladek, Christina Guldberg, Christine í Dali, Tara Symonds, Lucy Lloyd-Price, Toni Mathieson, Joslyn Crowe, Claire Burbridge   +9 more
doaj   +1 more source

Hypomethylation of CYP2E1 and DUSP22 Promoters Associated With Disease Activity and Erosive Disease Among Rheumatoid Arthritis Patients. [PDF]

, 2018
OBJECTIVE:Epigenetic modifications have previously been associated with rheumatoid arthritis (RA). In this study, we aimed to determine whether differential DNA methylation in peripheral blood cell subpopulations is associated with any of 4 clinical ...
Barcellos, Lisa F, Chernitskiy, Vladimir, Criswell, Lindsey A, Graf, Jonathan, Harrison, Ruby, Holingue, Calliope, Imboden, John, Link, Thomas, Mok, Amanda, Quach, Diana, Quach, Hong L, Rhead, Brooke, Shao, Xiaorong, Sinclair, Elizabeth   +13 more
core   +1 more source