Results 11 to 20 of about 3,229,491 (248)

Concept confirmation of the Treatment Administration Satisfaction Questionnaire (TASQ) in rare paroxysmal nocturnal hemoglobinuria

Journal of Patient-Reported Outcomes, 2021
Background This study was conducted to evaluate content validity of the IntraVenous and SubCutaneous Treatment Administration Satisfaction Questionnaires (TASQ-IV and TASQ-SC), for use in a clinical trial population of participants with paroxysmal ...
Helen Doll, Ufuk Coşkun, Chris Hartford, Ioannis Tomazos   +3 more
doaj   +1 more source

A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

Journal of Patient-Reported Outcomes, 2021
Background Patient-reported outcome measures (PROs) used to measure symptoms of patients with paroxysmal nocturnal hemoglobinuria (PNH) in trials do not measure PNH symptoms comprehensively and do not assess daily fluctuations in symptoms.
R. Paola Daly, Jessica J. Jalbert, Shannon Keith, Tara Symonds, Jamile Shammo   +4 more
doaj   +1 more source

Practice Patterns and Training Needs Among Physicians Certifying Patients for Medical Marijuana in Florida

Journal of Primary Care & Community Health, 2021
Background: Little is known about the clinical training or practice experiences among physicians who certify patients for medical marijuana. The objective of this study was to determine information sources, factors influencing recommendations, clinical ...
Ruba Sajdeya, Anna Shavers, Jennifer Jean-Jacques, Brianna Costales, Sebastian Jugl, Carly Crump, Yan Wang, Luran Manfio, R. Nathan Pipitone, Martha S. Rosenthal, Almut G. Winterstein, Robert L. Cook   +11 more
doaj   +1 more source

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: quantitative study findings

Journal of Patient-Reported Outcomes, 2022
Highlights Historically, provisioned handheld devices [PD] have been provided to participants to enter patient-reported outcome (PRO) data during a clinical trial.
Stacie Hudgens, Louise Newton, Sonya Eremenco, Mabel Crescioni, Tara Symonds, Philip C. G. Griffiths, David S. Reasner, Bill Byrom, Paul O’Donohoe, Susan Vallow, the Patient-Reported Outcome (PRO) Consortium and Electronic Clinical Outcome Assessment (eCOA) Consortium   +10 more
doaj   +1 more source

Dispensing of antibiotics without prescription in the metropolitan area of Athens, Greece, in 2021—Can new legislation change old habits?

Antimicrobial Stewardship & Healthcare Epidemiology, 2023
Objective: To assess the effect of new legislation on the dispensing of antimicrobials without prescription from pharmacies in Greece. Design: In-person survey.
Ioannis Kopsidas, Lydia Kokkinidou, Dioni Pinelopi Petsiou, Eleni Kourkouni, Christos Triantafyllou, Grammatiki-Christina Tsopela, Theoklis Zaoutis   +6 more
doaj   +1 more source

Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective

Orphanet Journal of Rare Diseases, 2021
Background Niemann-Pick disease type C (NPC) is a debilitating condition that impacts patients’ and caregivers’ quality of life (QOL) and reduces the patient’s life expectancy.
Eugen Mengel, Marc C. Patterson, Michael Chladek, Christina Guldberg, Christine í Dali, Tara Symonds, Lucy Lloyd-Price, Toni Mathieson, Joslyn Crowe, Claire Burbridge   +9 more
doaj   +1 more source

Epidemiology and clinical outcomes [PDF]

European Heart Journal, 2015
Download the Issue @ a Glance podcast Subscribe to the EHJ Podcast ![Graphic][1] Epidemiology has revealed important differences in the onset and frequency of cardiovascular risk factors and disease among males and females. Both the presentation of symptoms and the natural course may differ among men and women, for instance in coronary disease1–3 ...
openaire   +3 more sources

Frequency of thrombocytopenia in severe COVID-19

Pakistan Journal of Pharmaceutical Sciences, 2022
To aim of the study was to determine the frequency of thrombocytopenia and its effect on clinical outcomes in South Asian patients admitted with severe COVID-19.
Mehak Hanif, Kamran Khan Sumalani, Zarkesh Shaikh, Vishal Mandhan, Shahbaz Haider   +4 more
doaj   +1 more source

Developing Angelman syndrome-specific clinician-reported and caregiver-reported measures to support holistic, patient-centered drug development

Orphanet Journal of Rare Diseases, 2023
Background Angelman syndrome (AS) is a rare, heterogenous neurogenetic condition, which significantly impacts the lives of people with AS and their families. Valid and reliable measures reporting key symptoms and functional impairments of AS are required
Siobhan Connor-Ahmad, Jorrit Tjeertes, Michael Chladek, Louise Newton, Tara Symonds, Susanne Clinch, Brenda Vincenzi, Fiona McDougall   +7 more
doaj   +1 more source

Burden of illness of trigeminal neuralgia among patients managed in a specialist center in England

The Journal of Headache and Pain, 2020
Background Trigeminal neuralgia (TN) causes severe episodic, unilateral facial pain and is initially treated with antiepileptic medications. For patients not responding or intolerant to medications, surgery is an option.
Lasair O’Callaghan, Lysbeth Floden, Lisa Vinikoor-Imler, Tara Symonds, Kathryn Giblin, Chris Hartford, Joanna M. Zakrzewska   +6 more
doaj   +1 more source