Results 61 to 70 of about 3,128,226 (276)

Parent‐to‐Child Information Disclosure in Pediatric Oncology

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Despite professional consensus regarding the importance of open communication with pediatric cancer patients about their disease, actual practice patterns of disclosure are understudied. Extant literature suggests a significant proportion of children are not told about their diagnosis/prognosis, which is purported to negatively ...
Rachel A. Kentor, Flora Hoodin, Michelle Byrd, Kristin A. Kullgren, Leah LaLonde, Lauren Benkoske, Patrick Smith, Dawn Carson, Karen MacDonald, Susumu Inoue, Brenda Kitchen, Kate Gowans, Gregory A. Yanik   +12 more
wiley   +1 more source

Open Access to research data as a driver for Open science

JLIS.it, 2015
I due giorni dedicati al tema Open Access to research data as a driver for Open Science (Atene, 15 e 16 gennaio 2015), evento conclusivo del progetto europeo RECODE - Policy RECommendations for Open Access to Research Data in Europe sono stati un ...
Elena Giglia
doaj   +1 more source

Radiotherapy Delivery in Deep Inspiration for Pediatric Patients—Final Results of the Phase II Feasibility Study TEDDI

Pediatric Blood &Cancer, EarlyView.
Abstract Introduction The TEDDI trial tested the feasibility and reproducibility of deep‐inspiration breath‐hold (DIBH) in pediatric patients referred for radiotherapy. This report presents final results, including patient‐reported outcomes (PRO) and dosimetric comparison of DIBH and free‐breathing (FB).
Daniella Elisabet Østergaard, Anni Young Lundgaard, Laura Ann Rechner, Danijela Dejanovic, Hanne Krogh Rose, Jolanta Hansen, Leila Vaalavirta, Miia Mokka, Marianne Aznar, Peder Skov Wehner, Lisa Lyngsie Hjalgrim, Maja Vestmø Maraldo   +11 more
wiley   +1 more source

The Standardized Data Management Plan for Educational Research

International Journal of Digital Curation
Although there is an increasing number of tools and support opportunities, research data management is still challenging. Conventional templates of data management plans (DMP) guide users, but hardly support them in implementing and realizing data ...
Sebastian Netscher, Harald Kaluza, Reiner Mauer, Kati Mozygemba, Karsten Stephan   +4 more
doaj   +1 more source

Predicting Chronicity in Children and Adolescents With Newly Diagnosed Immune Thrombocytopenia at the Timepoint of Diagnosis Using Machine Learning‐Based Approaches

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objectives To identify predictors of chronic ITP (cITP) and to develop a model based on several machine learning (ML) methods to estimate the individual risk of chronicity at the timepoint of diagnosis. Methods We analyzed a longitudinal cohort of 944 children enrolled in the Intercontinental Cooperative immune thrombocytopenia (ITP) Study ...
Severin Kasser, Alice Bizeul, Meera Chitlur, Hugo Donato, Jelena Roganovic, Julia E. Vogt, Thomas Kühne   +6 more
wiley   +1 more source

Baltic Gender Data Management Plan : Version 1 [PDF]

, 2017
Provides a summary of the Data Management Plan (DMP) addressing FAIR (findable, accessible, interoperable, re-usable) data, allocation of resources, data security and ethical ...
Matthes, Katja, Mehrtens, Hela
core  

Writing a MRC / NC3R Data Management Plan [PDF]

The Medical Research Council expects funded researchers to manage and share research data in a manner that maximizes opportunities for future research and complies with best practice in the relevant subject domain.
Knight, G
core   +1 more source

Prognostic Impact of Treatment Modalities, Including Targeted Compartmental Radio‐Immunotherapy, in a Cohort of Neuroblastoma Patients With CNS Metastases at Relapse

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neuroblastoma (NB) with central nervous system (CNS) metastases is rare at diagnosis, but occurs more often during relapse/progression. Patients with CNS metastases face a dismal prognosis, with no standardized curative treatment available.
Vicente Santa‐Maria Lopez, Anna Felip‐Badia, Marina Caballero‐Bellon, Nazaret Sanchez‐Sierra, Alicia Castañeda, Moira Garraus, Maite Gorostegui, Margarida Simão‐Rafael, Juan Pablo Muñoz, Marta Perez‐Somarriba, Salvador Mañe, Mariana Cecilia Planells, Sara Perez‐Jaume, Jaume Mora   +13 more
wiley   +1 more source

Data Curation Profiling to Assess Data Management Training Needs and Practices to Inform a Toolkit

Data Science Journal, 2020
The purpose of this paper is to explore current data management training needs and practices for Belmont Forum member agencies and researchers to inform a Toolkit.
Bradley Bishop, Hannah Gunderman, Rowena Davis, Tina Lee, Rebecca Howard, Robert Samors, Fiona Murphy, Judit Ungvari   +7 more
doaj   +1 more source

Data Management And Data Management Plans

, 2017
Modern research requires special tooling, software and processes that allow researchers to link, transform, visualise and interpret the data. Lack of proper data management practices can lead in extreme cases to irreversible loss of data. As a consequence, reproducibility of scientific experiments can be questioned.
openaire   +1 more source