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This document outlines the overall AQUARIUS Data Management Plan (DMP) and describes the planned Data Management approach to handle all Data arising from Transnational Access projects funded by the AQUARIUS project.
Schaap, Dick +12 more
openaire +3 more sources
Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes
Pediatric Blood &Cancer, EarlyView.ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles +4 more
wiley +1 more source
Data Curation Profiling to Assess Data Management Training Needs and Practices to Inform a Toolkit
Data Science Journal, 2020 The purpose of this paper is to explore current data management training needs and practices for Belmont Forum member agencies and researchers to inform a Toolkit.
Bradley Bishop +7 more
doaj +1 more source
TANdoRI Data Management Plan [PDF]
, 2016 The overriding principle of the guidance provided by the RCUK Common Principles on Data Policy is that research data produced using public funds is in the common public good and should be made openly available in a timely manner; access should be ...
Sterling, Mark
core
Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report
Pediatric Blood &Cancer, EarlyView.ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan +6 more
wiley +1 more source
Poland’s first open library research data – from theory to practice
Forum Bibliotek Medycznych, 2020 Polish medical libraries jointly implement the project called Polish Medical Platform – a portal for knowledge and research potential management (PPM).
Agnieszka Milewska, Natalia Wiśniewska
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee +9 more
wiley +1 more source
Information sources in agriculture
Plant, Soil and EnvironmentThe aim of this study is to define data sources and propose methods for effective and secure data management in an agricultural enterprise in the context of using data for decision support. Current developments in information and communication technology
Jan Jarolímek +5 more
doaj +1 more source
Work management plan for data systems and analysis directorate [PDF]
A contract with the Data Systems and Analysis Directorate contains a specified level of resources related to a specific set of work in support of three divisions within the Data Systems and Analysis Directorate.
Nichols, L. R.
core +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Purpose Pediatric central nervous system (CNS) tumors often recur despite multimodality therapy. Although re‐irradiation (re‐RT) has historically been limited by concerns for severe late toxicities, modern techniques have renewed interest in this approach. Proton therapy provides dosimetric advantages that may enable curative re‐treatment with
Jin‐Ho Song +15 more
wiley +1 more source