Results 71 to 80 of about 1,926,704 (269)

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright, Morgan A. Paul, Selena Murcia Mendez, Emily Jones, Lucille Lokko, Chelsea Heneghan, Nicholas Purol, Morgan Arnold, Rahela Aziz‐Bose, Colleen A. Kelly, Sandi L. Pruitt, Joanne Wolfe, Kira Bona, Puja J. Umaretiya   +13 more
wiley   +1 more source

Data Management And Data Management Plans

, 2017
Modern research requires special tooling, software and processes that allow researchers to link, transform, visualise and interpret the data. Lack of proper data management practices can lead in extreme cases to irreversible loss of data. As a consequence, reproducibility of scientific experiments can be questioned.
openaire   +1 more source

The Fate (Outcome) of Clinically Apparent Single Lesion and Oligofocal Nephroblastomatosis Treated According to SIOP/GPOH Protocols for Wilms Tumor

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The management of clinically apparent single lesions or oligofocal nephroblastomatosis, a facultative precursor of nephroblastoma, remains debated. Methods We retrospectively analyzed 37 patients with clinically apparent single or oligofocal nephroblastomatosis (two to three lesions per kidney) among 2347 patients registered between
Nils Welter, Jens‐Peter Schenk, Jenny Wegert, Manfred Gessler, Leo Kager, Stefan Wagenpfeil, Marina Müller, Jean‐Michel Wolff, Joerg Fuchs, Steven W. Warmann, Clemens‐Magnus Meier, Jochen Hubertus, Christian Rübe, Christian Vokuhl, Patrick Melchior, Lena Tschirner, Norbert Graf, Rhoikos Furtwängler   +17 more
wiley   +1 more source

Data Management and Data Management Plans

, 2019
Presentation describing some of the methods I use for establishing good data collection practices. Includes information on data management plans, which are now required for most federal grant agencies. A well-documented data collection, management, processing, and cleaning plan implemented when data is being collected is an excellent foundation for ...
openaire   +1 more source

Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles, Greg Russell, Leila H. DeWitt, Kimberly Montez, Callie L. Brown   +4 more
wiley   +1 more source

Data Management and Data Management Planning

, 2019
Presentation given at the "Ask Me Anything Call on Data Management and Data Planning" at the Research Data Alliance (RDA) Early Career and Engagement IG at the 18th of September 2019.
openaire   +1 more source

The Dataset Finder: A Tool Utilizing Data Management Plans as a Key to Data Discoverability

Data Science Journal
In the past years, there has been an increased interest in sharing and reusing research data. While the importance of sharing data is urgent for enabling collaboration, many research projects are currently struggling with setting up a strategy and the ...
Soo-Yon Kim, Steffen Hillemacher, Max Kocher, Bernhard Rumpe, Sandra Geisler   +4 more
doaj   +1 more source

Feasibility and Safety of High‐Dose Proton Re‐Irradiation in Recurrent Pediatric Central Nervous System Tumors: A Single‐Institution Retrospective Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Pediatric central nervous system (CNS) tumors often recur despite multimodality therapy. Although re‐irradiation (re‐RT) has historically been limited by concerns for severe late toxicities, modern techniques have renewed interest in this approach. Proton therapy provides dosimetric advantages that may enable curative re‐treatment with
Jin‐Ho Song, Jonathan Baron, Carlos Chavez Perez, Sidharth Ramesh, Jane Minturn, Kavita A. Desai, Amish C. Shah, Jean M. Belasco, Kristina A. Cole, Michael J. Fisher, Phillip B. Storm, Peter M. Madsen, Goldie Kurtz, Robert A. Lustig, Christine Hill‐Kayser, Michael J. LaRiviere   +15 more
wiley   +1 more source

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek, Lori Wiener, Stephanie Veldhuijzen van Zanten, Donna Johnston, Fyeza Hasan, Adam Rapoport, Nathasha Datoo, Kimberley Widger, Sumit Gupta, Karen Fergus, Anthony K. C. Chan, Alisha Kassam, Emily McCullogh, Dave Lysecki   +13 more
wiley   +1 more source

A research data management (RDM) community for ELIXIR [version 2; peer review: 2 approved]

F1000Research
Research data management (RDM) is central to the implementation of the FAIR (Findable Accessible, Interoperable, Reusable) and Open Science principles.
Clare Garrard, Teresa D’Altri, Xenia Perez-Sitja, Minna Ahokas, Niclas Jareborg, Flavio Licciulli, Ivan Mičetić, Nils-Christian Lübke, Helena Schnitzer, Daniel Wibberg, Yvonne Kallberg, Flora D'Anna, Patricia M. Palagi, Mijke Jetten, Korbinian Bösl, Wei Gu, Munazah Andrabi, Katharina F. Heil, Susanna-Assunta Sansone, Ana M. P. Melo, Jiri Vondrasek, Daniel Faria, Ulrike Wittig, Anastasis Oulas, Jorge Oliveira, Pinar Alper, Robert Andrews, Siiri Fuchs, Celia van Gelder, Thanasis Vergoulis, Brane Leskošek, Krzysztof Poterlowicz, Patrick Ruch, Nazeefa Fatima   +33 more
doaj   +1 more source