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Lunch and Learn Workshop Data Management Plans
Presentation slides on Data management ...
Data Management Services, Zach S. Henderson Library
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ABSTRACT Febrile neutropenia (FN) is a frequent and serious complication in children receiving cancer therapy. Standardizing FN management across Asia is challenging due to variable healthcare infrastructure, diagnostic capacity, and infection patterns; however, it could improve resource use and patient outcomes.
Joliza Patricia Cañeba +29 more
wiley +1 more source
The Dataset Finder: A Tool Utilizing Data Management Plans as a Key to Data Discoverability
In the past years, there has been an increased interest in sharing and reusing research data. While the importance of sharing data is urgent for enabling collaboration, many research projects are currently struggling with setting up a strategy and the ...
Soo-Yon Kim +4 more
doaj +1 more source
ABSTRACT Background and Aims Infant bone and soft tissue neoplasms present distinct clinical challenges and lack large‐scale data to inform treatment decisions. This study aims to characterize bone and soft tissue neoplasms in infants in Canada and to compare their outcomes with those of older pediatric patients.
Samuel Sassine +21 more
wiley +1 more source
ABSTRACT Background Outcomes in relapsed or refractory pediatric and AYA bone sarcomas remain poor, and the impact of early referral to specialized sarcoma centers on survival is unclear. Early centralization of care may improve local and systemic treatment quality, but evidence in this population is limited.
Justyna Antoniuk‐Majchrzak +9 more
wiley +1 more source
Data Management in Distributed, Federated Research Infrastructures: The Case of EPOS
Data management is a key activity when Open Data stewardship through services complying with the FAIR principles is required, as it happens in many National and European initiatives.
Daniele Bailo +10 more
doaj +1 more source
ABSTRACT Purpose To explore caregivers' experiences and perceptions of the nutritional challenges faced by children and adolescents undergoing cancer treatment, including oral intake and the use of nutritional support. Methods This was a qualitative study based on focus groups with parents and caregivers at a Brazilian pediatric oncology hospital ...
Danyelle Apparecida Balsamão Marques +5 more
wiley +1 more source
To provide more tailored, discipline-specific guidance on data management, Science Europe suggested the concept of domain data protocols. Based on this concept, the project Domain Data Protocols for Educational Research developed a first domain data ...
Sebastian Netscher +5 more
doaj +1 more source
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling +2 more
wiley +1 more source
Data Management Plans (presenter notes)
Whatever form your research takes you will be using, collecting and generating a large volume of data. It is important to have a plan to manage this information, not just to help you work more efficiently but because many funders demand evidence of a ...
Claire Sewell
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