Results 21 to 30 of about 3,439,839 (252)

L’approche biographique et la temporalité des soins palliatifs aux enfants malades chroniques: des apprentissages qui se tissent entre la vie et la mort

Cadernos de Pesquisa, 2020
Resumé La confrontation à la mort d’un enfant, à la souff rance de sa famille, aux limites et possibilités de la médecine, aux dilemmes éthiques, au sentiment de culpabilité sont des éléments présents dans la prise en charge palliative pour les ...
Camila Aloisio Alves
doaj   +1 more source

The HIT Network for Children and Adolescents With CNS Tumors Facilitates Improvements of Diagnostic Assessments, Multimodal Treatments, Individual Counseling, and Research in Germany, Austria, and Switzerland

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The HIT network was established in 2000 to create a population‐based structure aiming to improve survival rates and reduce late effects for children with central nervous system (CNS) tumors by conducting comprehensive clinical trials.
Stefan Rutkowski, Michael C. Frühwald, Gudrun Fleischhack, Stephan Tippelt, Pablo Hernáiz‐Driever, Olaf Witt, Astrid Gnekow, Christof Kramm, Matthias Eyrich, Johannes E. A. Wolf, Hermann Müller, Carsten Friedrich, Uwe R. Kordes, Denise Obrecht‐Sturm, Petra Ketteler, Barbara von Zezschwitz, Pascal Johann, Dominik Sturm, Karoline Nemes, Stefan Schönberger, Till Milde, Brigitte Bison, Monika Warmuth‐Metz, Torsten Pietsch, Ulrich Schüller, Arend Koch, David Capper, Martin Hasselblatt, Christian Thomas, Christian Hagel, Stefan M. Pfister, Felix Sahm, David T. W. Jones, Martin U. Schuhmann, Jürgen Krauss, Pedram Emami, Ahmed El Damaty, Rolf D. Kortmann, Rudolf Schwarz, Jürgen Debus, Mechthild Krause, Fabian Pohl, Holger Ottensmeier, Lisa Bußenius, Katja Baust, Andreas Faldum, Cecile Ronckers, Desiree Grabow, Martin Benesch, Thomas Perwein, Karin Dieckmann, Irene Slavc, Johannes Gojo, Nicolas U. Gerber, André O. von Bueren, Katrin Scheinemann, Gabriele Calaminus, Beate Timmermann, Ulrich‐Wilhelm Thomale, Martin Mynarek   +59 more
wiley   +1 more source

Special Issue – July 2021 The Impact of Inequity & Health Disparities on the Human Experience

Patient Experience Journal, 2020
Patient Experience Journal (PXJ) is excited to announce the call for submissions for its July 2021 special issue on the impact of racial inequality, health disparities, and discrimination on the human experience.
Patient Experience Journal
doaj  

New μs isomers in Tz=1 nuclei produced in the 112Sn(63A MeV)+natNi reaction [PDF]

, 1997
Expérience GANIL, équipement SISSI ...
Anne, R., Auger, G., Borcea, C., Corre, J.M., Doerfler, T., Fomichov, A., Grawe, H., Grevy, S., Grzywacz, R., Guillemaud-Mueller, D., Huyse, M., Janas, Z., Keller, H., Lewitowicz, M., Lukyanov, S., Mueller, A.C., Orr, N.A., Ostrowski, A., Penionzhkevich, Yu., Piechaczek, A., Pougheon, F., Rykaczewski, K., Saint-Laurent, M.G., Schmidt-Ott, W.D., Sorlin, O., Szerypo, J., Tarasov, O., Wauters, J., Zylicz, J.   +28 more
core   +3 more sources

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware, Colter K. Clayton, Fang Wang, Sedigheh Mirzaei, Kyla Shelton, Tara M. Brinkman, Victoria Willard, Katianne M. Howard Sharp, Kevin Krull, Lindsay F. Schwartz, Melissa M. Hudson, Gregory T. Armstrong, Kirsten K. Ness, Rachel T. Webster   +13 more
wiley   +1 more source

Expérience scolaire, expérience sportive : deux expériences à concilier [PDF]

, 2015
Mon travail traite de l’expérience sportive et scolaire de jeunes suivant une formation pour une discipline sportive à haut niveau. Je me suis particulièrement intéressée aux motivations qui incitent les jeunes à vouloir concilier les deux expériences ...
Louis, Amélie, Perrin, Denis
core  

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Patient activation—encompassing knowledge, confidence, and skills in managing individual's health—is a cornerstone of person‐centered care. However, its significance among childhood, adolescent, and young adult cancer survivors (CAYACS) remains unexplored. This article examines the application of the 13‐item Patient Activation Measure (
Charlotte Demoor‐Goldschmidt, Anne Maas, Gisela Michel, Amandine Bertrand, Kristen E. T. Thornton, Martine Bellanger, Anna‐Liesa Filbert, Desiree Grabow, Monica Muraca, Katharina Roser, Sara Oberti, Jelena Roganovic, Hanne Cathrine Lie   +12 more
wiley   +1 more source

VOYAGE INITIATIQUE DANS LE DÉSERT EXUPÉRIEN [PDF]

Studii si Cercetari Filologice: Seria Limbi Romanice, 2018
Antoine de Saint-Exupéry nous propose par l'intermédiaire de son œuvre un voyage initiatique dans le désert de l'Afrique. Ce voyage commence dans le roman « Courrier Sud», continue dans « Terre des Hommes » et finit dans le désert du Sahara au moment ...
Doina TANASE
doaj  

« Appelsinpiken » et le tourisme expérientiel en Andalousie : Géographie de l’émotion

Via@, 2015
En 2008, le succès littéraire de Jöstein Gaarder, « La Belle aux oranges » fut porté sur grand écran dans le cadre d’une coproduction entre la Norvège, l’Allemagne et l’Espagne (Eva Dahr, 2009).
Maria del Carmen Puche Ruiz
doaj   +1 more source

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia, Giulia Reggiani, Elizabeth J. Maran, Maria Elisa Delle Fave, Ilaria Baido, Anna Chiara Frigo, Maria Paola Boaro, Raffaella Colombatti   +7 more
wiley   +1 more source