Results 21 to 30 of about 3,304,776 (205)

Patient Experience Journal Awards: Celebrating our 2019 Recipients

Patient Experience Journal, 2020
In association with The Beryl Institute, Patient Experience Journal introduced the inaugural Patient Experience Journal (PXJ) Awards. The annual awards celebrate important contributions to the literature and articles of impact in research and practice ...
Patient Experience Journal
doaj  

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Health‐Related Social Needs in Children With Sickle Cell Disease Are Associated With Worse Health‐Related Quality of Life

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with sickle cell disease (SCD) face multiple acute and chronic medical complications that may impact their quality of life as reported by patients themselves. Health‐related social needs (HRSNs), such as food and housing insecurity, are common in people with SCD, but the association between HRSNs and patient‐reported ...
Sarah J. Marks, Molly Sonenklar, Cerelia Donald, Cecelia Valrie, Wally Smith, India Sisler   +5 more
wiley   +1 more source

Special Issue – July 2021 The Impact of Inequity & Health Disparities on the Human Experience

Patient Experience Journal, 2020
Patient Experience Journal (PXJ) is excited to announce the call for submissions for its July 2021 special issue on the impact of racial inequality, health disparities, and discrimination on the human experience.
Patient Experience Journal
doaj  

L’approche biographique et la temporalité des soins palliatifs aux enfants malades chroniques: des apprentissages qui se tissent entre la vie et la mort

Cadernos de Pesquisa, 2020
Resumé La confrontation à la mort d’un enfant, à la souff rance de sa famille, aux limites et possibilités de la médecine, aux dilemmes éthiques, au sentiment de culpabilité sont des éléments présents dans la prise en charge palliative pour les ...
Camila Aloisio Alves
doaj   +1 more source

Genomic Diversity and Clinical Variability in Pediatric Primary Cutaneous Anaplastic Large Cell Lymphoma: A Case Series

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Primary cutaneous anaplastic large cell lymphoma (pcALCL) is a rare pediatric CD30‐positive T‐cell lymphoproliferative disorder with an excellent prognosis, but its genomic drivers are poorly defined. We report three children with skin‐limited disease demonstrating striking molecular heterogeneity, including NPM::ALK, NUP214::FRK, and a novel ...
Shoshana Greenberger, Efrat Bar‐Ilan, Victoria Marcu, Evgeny Grishin, Rinat Yacobi, Aviv Barzilai, Hana Golan, Assaf Arie Barg   +7 more
wiley   +1 more source

Are Fertility Preservation Procedures Before Gonadotoxic Therapy and Hematopoietic Stem Cell Transplantation Feasible and Safe in Very Young Children? A Retrospective Cohort Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Fertility preservation (FP) is increasingly integrated into the care of pediatric patients exposed to gonadotoxic therapy or conditioning for hematopoietic stem cell transplantation (HSCT), yet perioperative data in infants and toddlers remain scarce.
Kerstin Saalabian, Yannick Braun, Till‐Martin Theilen, Anke Barnbrock, Theresa Rohm, Fabienne Hammant, Nicole Sänger, Aynura Abbasova‐Semiz, Jan‐Henning Klusmann, Thomas Klingebiel, Udo Rolle, Peter Bader, Henning C. Fiegel, Andrea Jarisch   +13 more
wiley   +1 more source

PXJ Volume 12 – Key Theme Summary and Article Index

Patient Experience Journal
Volume 12 of the Patient Experience Journal showcases a global dedication to advancing human experience in healthcare, illuminating both existing challenges and crucial emerging practices. The content, spanning three issues, emphasizes that improving the
Patient Experience Journal
doaj   +1 more source

VOYAGE INITIATIQUE DANS LE DÉSERT EXUPÉRIEN [PDF]

Studii si Cercetari Filologice: Seria Limbi Romanice, 2018
Antoine de Saint-Exupéry nous propose par l'intermédiaire de son œuvre un voyage initiatique dans le désert de l'Afrique. Ce voyage commence dans le roman « Courrier Sud», continue dans « Terre des Hommes » et finit dans le désert du Sahara au moment ...
Doina TANASE
doaj  

« Appelsinpiken » et le tourisme expérientiel en Andalousie : Géographie de l’émotion

Via@, 2015
En 2008, le succès littéraire de Jöstein Gaarder, « La Belle aux oranges » fut porté sur grand écran dans le cadre d’une coproduction entre la Norvège, l’Allemagne et l’Espagne (Eva Dahr, 2009).
Maria del Carmen Puche Ruiz
doaj   +1 more source