Results 91 to 100 of about 8,221,216 (305)

Neurocognitive, School‐Based, and Quality of Life Outcomes for Youth With Sickle Cell Disease and Thalassemia: A Scoping Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling, Hakim Tokhi, Alexander A. Boucher   +2 more
wiley   +1 more source

Representation of Sickle Cell Disease Patients in Pediatric and Adult Care: What We Discovered Using Informatics for Integrating Biology and the Bedside (i2b2) Data

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Transitioning from pediatric to adult care is a high‐risk period for individuals with sickle cell disease (SCD). An initial observation at one academic medical center suggested a sex‐based disparity in clinic populations, prompting a national investigation.
Laurie J. Duckworth, Kholod Alhassan, Ada De La Osa, John Stephen, Yue Yao, Diana J. Wilkie   +5 more
wiley   +1 more source

First, do no harm: The patient\u27s experience of avoidable suffering as harm [PDF]

, 2018
Although my entire career has been spent in Patient Experience, nothing I have learned from data, evidence-based practice, or experience-based correlations, has been near as impactful as what I learned from being a patient.
Ashley Bauer, Bauer, Ashley, MHA
core   +1 more source

Lorlatinib‐Containing Therapy for MYCN‐Amplified, ALK‐Mutated Neuroblastoma With Bulky Leptomeningeal Relapse: A Case Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Central nervous system (CNS) relapse of neuroblastoma carries a poor prognosis, and craniospinal irradiation (CSI) poses substantial long‐term toxicity in young children. We report a toddler with MYCN‐amplified neuroblastoma harboring somatic ALK R1275Q who developed extensive leptomeningeal relapse with paraplegia.
Jinwoo Kim, Minji Kim, Nani Jung, Sung Eun Kim, Ji Yoon Kim, Mi Ae Chu, Jung Eun Kwon, Yeo Hyang Kim, So Mi Lee, Ki‐Su Park, Jeong Eun Lee, Ye Jee Shim   +11 more
wiley   +1 more source

Co-production in HIV research: a case study from the COVID-19 pandemic

Research Involvement and Engagement
Background Co-produced research is an approach where people with lived experience voluntarily engage as collaborators throughout the entire research process.
Vasiliki Papageorgiou, Jane Bruton, Halle Johnson, Silvia Petretti, Wezi Thamm, Joshua Anderson, Husseina Hamza, Helen Ward   +7 more
doaj   +1 more source

SOME EXPERIENCES WITH NEW EXPERIMENTS [PDF]

School Science and Mathematics, 1904
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openaire   +2 more sources

The CℓOVER experiment

SPIE Proceedings, 2008
ClOVER is a multi-frequency experiment optimised to measurethe Cosmic Microwave Background (CMB) polarization, inparticular the B-mode component. ClOVER comprises two instruments observing respectively at 97 GHz and 150/225 GHz.The focal plane of both instruments consists of an array ofcorrugated feed-horns coupled to TES detectors cooled at 100mK. The
Piccirillo L., Ade P., Audley M. D., Baines C., Battye R., Brown M., Calisse P., Challinor A., Duncan W. D., Ferreira P., Gear W., Glowacka D. M., Goldie D., Grimes P. K., Halpern M., Haynes V., Hilton G. C., Irwin K. D., Johnson B., Jones M., Lasenby A., Leahy P., Leech J., Lewis S., Maffei B., Martinis L., Mauskopf P. D., Melhuish S. J., North C. E., O'Dea D., Parsley S., Pisano G., Reintsema C. D., Savini G., Sudiwala R. V., Sutton D., Taylor A., Teleberg G., Titterington D., Tsaneva V. N., Tucker C., Watson R., Withington S., Yassin G., Zhang J.   +44 more
openaire   +1 more source

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres, Cristina Tarango, Ashley Childress, Chunyan Liu, Evan Thomas, Jennifer Pomales, Eric S. Mullins   +6 more
wiley   +1 more source

Improving Patient Experience Through Digital Transformation: A Real-World Implementation Study of the GEDYT 360 Connect Model

International Journal of Clinical Practice
Improving patient experience is a key strategic priority in contemporary healthcare systems. A real-world observational implementation study with a quasiexperimental before–after design was conducted over a 6-month period in Argentina.
Julia Ismael, Mariel Soria, María Belén Juzviaczck, Mariana Unía, Ariel Leonardo Fernández, Luis Ernesto Caro, Cecilio Luis Cerisoli   +6 more
doaj   +1 more source

An Experiment on the Core [PDF]

, 2008
Each of n (greater than or equal to) 1 identical buyers (and m (greater than or equal to) 1 identical sellers) wants to buy (sell) a single unit of an indivisible good. The core predicts a unique and extreme outcome: the entire surplus is split evenly among the buyers when m > n and among the sellers when m < n; the long side gets nothing.
Daniel Friedman, Huibin Yan
openaire   +3 more sources