Results 1 to 10 of about 293,560 (258)

Doing community involvement care-fully: using an ethic of care to guide involvement in research on women’s health after pregnancy complications and loss

Research Involvement and Engagement
Consumer and Community Involvement (CCI) occurs when people with lived experience collaborate with researchers to design and conduct research. CCI has widely accepted benefits and is increasingly expected by funders and publishers.
Bec Jenkinson, Melanie McKenzie, Ayme Limmer, Valerie Charlton, Leah Hardiman, Anna Lee Ura, Sheleigh Lawler, Carissa Bonner, Jenny Doust   +8 more
doaj   +1 more source

An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid

BMC Public Health
Background Around one in ten people who contract Covid-19 report ongoing symptoms or ‘Long Covid’. Without any known interventions to cure the condition, forms of self-management are routinely prescribed by healthcare professionals and described by ...
Fiona J. Leggat, Celayne Heaton-Shrestha, Jessica Fish, Aloysius Niroshan Siriwardena, Anne Domeney, Carol Rowe, Ian Patel, Judith Parsons, John Blair, Fiona Jones   +9 more
doaj   +1 more source

Commercial or industrial use of mental health data for research: primer and best-practice guidelines from the DATAMIND patient/public Lived Experience Advisory Group

Frontiers in Psychiatry
BackgroundRoutinely collected health data, such as that held by United Kingdom (UK) national health services (NHS), has important research uses. However, its use requires public trust and transparency.
Linda A. Jones, Corrine Barber, Naomi Clements-Brod, Jan Davies, Marcos DelPozo-Banos, Andrea Hughes, Matthew H. Iveson, Diksha Jain, Ann John, Aideen Maguire, Clara Martins de Barros, Andrew M. McIntosh, Michael McTernan, Jan Speechley, Robert J. Stewart, Robert J. Stewart, Jane Taylor, Jane Taylor, Louise Ting, Rudolf N. Cardinal, Rudolf N. Cardinal, Rudolf N. Cardinal   +21 more
doaj   +1 more source

“It’s like going through life at a mediocre level”: a qualitative study of the meaning and impact of fatigue in children and young people with sickle cell disease

BMC Pediatrics
Background Fatigue is increasingly recognised as a prevalent and debilitating symptom for children and young people (CYP) with long-term conditions (LTCs), significantly affecting their family, social and educational participation. In sickle cell disease
Brenda Agyeiwaa Poku, Karl Michael Atkin, John David Grainger, Iyamide Thomas, Rachael Oshinbolu, Abubakar Mohammed, Edith Kyewalyanga, Susan Kirk   +7 more
doaj   +1 more source

A three-way partnership: reflections and lessons from co-producing social care research with practitioners, researchers and the public

Research Involvement and Engagement
Background Co-production in social care research seeks to bridge the gap between academic inquiry, frontline practice, and lived experience by actively involving practitioners, researchers, and public members as equal partners throughout the research ...
Julia Greig, Wenjing Zhang, Kate Wortham, Karin Webb, Eirini-Christina Saloniki, Robin Darton, Ann-Marie Towers, Helen Salisbury, Janet Richardson-Simmonds, Sharon Leaver   +9 more
doaj   +1 more source

Who gets to decide? Matters arising from Robinson et al. (2024), “Can people with longstanding bulimia nervosa suffer from severe and enduring eating disorder? A qualitative study”

Journal of Eating Disorders
Written by a researcher with lived experience of long-standing bulimia nervosa, this Matters Arising piece commends Robinson et al. (2024)’s study for its focus on exploring the subjective experiences of patients who are often overlooked in clinical and ...
James Downs
doaj   +1 more source

Collective responsibility and ecological thinking in eating disorders: moving beyond individualistic models of illness and recovery

Journal of Eating Disorders
Eating disorder treatment and recovery are often framed as matters of individual responsibility, with change positioned as dependent on the person’s motivation, insight, and willingness to recover.
James Downs
doaj   +1 more source

Development of the Japanese Version of the Views on Inpatient Care (VOICE-J): Service Users’ Perspectives on Psychiatric Inpatient Care

Journal of Patient Experience
The quality of psychiatric inpatient care is a pressing concern in Japan, where hospitalization is prolonged and coercive practices remain common. Incorporating patients’ perspectives is essential for evaluation and service improvement.
Yuki Miyamoto RN, PHN, PhD, Risa Kotake RN, MSc, Emiko Otsu-Mitsui MSN, RN, PHN, CNS, Manami Tsunemoto, Tomoko Shinmura, Utako Sawada RN, PhD, Kaori Tsuzuki, Neteru Masukawa, Jo Evans MA, MSc, Daisuke Nishi MD, PhD   +9 more
doaj   +1 more source

The Lived Experience [PDF]

New Theatre Quarterly, 2002
JAN KOTT was a seminal critical mind of the twentieth century and one of the last of its theatre intellectuals. I mourn him as a friend and colleague. It is now almost half a century since this Polish expatriate first published Shakespeare Our Contemporary, a book that exploded our thinking about how Shakespeare could be produced on stage.
openaire   +1 more source

Facilitators and barriers to participation of patients with treatment resistant depression in a randomised controlled trial of two forms of personalised magnetic resonance imaging targeted transcranial magnetic stimulation (the BRIGhTMIND trial)

BMC Psychiatry
Background Magnetic resonance imaging (MRI) can personalise the site of transcranial magnetic stimulation (TMS) delivered as a course of 20 sessions for treatment-resistant depression (TRD). Facilitators and barriers to a randomised controlled trial (RCT)
Clement Boutry, Lucy Webster, Louise Thomson, Delilah Harding, Isabel Reid, Peter Bates, John Gledhill, Rebecca McNaughton, Jane Eastham, Joanne Ooi, Andy Willis, Sonal Marner, Richard Morriss   +12 more
doaj   +1 more source