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Experiences of living with dystonia [PDF]

Disability and Rehabilitation, 2019
Dystonia is a chronic and incurable movement disorder. This qualitative study aimed to enhance understanding of the condition by exploring the experience of living with dystonia.Interpretative phenomenological analysis was used to analyse data gathered through semi-structured interviews. Eight participants were recruited via a UK-based dystonia charity.
Andrew Morgan, Fiona J. R. Eccles, Pete Greasley   +2 more
openaire   +2 more sources

Understanding Men’s Engagement and Disengagement When Seeking Support for Mental Health

American Journal of Men's Health, 2023
Men are less likely to utilize health care services compared with women. When it comes to mental health, men have been reported to hold more reluctant attitudes toward engaging with mental health services.
Minjoo Kwon, Sharon Lawn, Christine Kaine   +2 more
doaj   +1 more source

Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year

Research Involvement and Engagement, 2022
Plain English summary In this paper, we describe the development of the Canadian Consortium of Neurodegeneration in Aging (CCNA) Engagement of People with Lived Experience of Dementia (EPLED) cross-cutting program and the first year of the EPLED Advisory
Ellen Snowball, Rosette Fernandez Loughlin, Heather Eagleson, Karen Myers Barnett, Emily McLellan, Denis O’Connor, Catherine Kelly, Christine Thelker, Katherine S. McGilton, Jennifer Bethell   +9 more
doaj   +1 more source

Lived experience to lived experience expertise: embracing lived experience in Australian criminology

Contemporary Justice Review
This paper, authored by some individuals with lived experience of the Australian criminal legal-punishment system, serves as a call to action for their recognition and integration within the criminal legal sector. We highlight the importance of acknowledging the deep personal nature of criminal legal-punishment system experiences, which, though ...
Antojado, Dwayne, Bloggs, Jo, Doyle, Caroline   +2 more
openaire   +3 more sources

Language matters: discourses of therapeutic optimism and recovery in the treatment of eating disorders

BJPsych Bulletin
Aims and method This article explores how clinical language used to describe long-standing and severe eating disorders shapes treatment experiences and outcomes.
James Downs, Marissa Adams, Anna Carnegie   +2 more
doaj   +1 more source

Oral health and mental health: lived experiences of stigma and discrimination for Australians with mental health conditions

BMC Oral Health
Background Oral health disparities persist among people with mental health conditions. They experience high rates of dental disease due to medication side effects, socioeconomic barriers, and stigma.
Anna Ngo, Sharon Lawn, Ava Carter, Lana Earle-Bandaralage, Rachael Hill, Paul Justice, Janet Milford, Christine Nanson, Sarah Reed, Rachel Turner, Alice Tudehope, Christine Kaine   +11 more
doaj   +1 more source

“I could be living a totally different life right now”: lived experience and caregiver perspectives on the prevention of eating disorders

Journal of Eating Disorders
Eating disorder prevention is widely acknowledged as a priority for the field. However, little space has been given to investigating how people who have endured the impacts of eating disorders view the subject of prevention.
James Downs, Ellie Smith, Nicky Smith, Suzanne Baker, Helen Missen, Jodie Goodacre, Hannah Hickinbotham, Nicola Hickinbotham, Zoe Hazel, Debbie Taylor, Hope Virgo   +10 more
doaj   +1 more source

Mental Health Experiences and Needs of Women With Congenital Heart Disease in Pregnancy and Postpartum: A Qualitative Participatory Study

Health Expectations
Background and Aim In the United Kingdom, mental health and maternal health are now key priorities for research among adults with congenital heart disease. However, worldwide, research on the mental health of pregnant and postpartum women with congenital
Caroline J. Huxley, Nigel E. Drury, Anna C. Lavis, Donna Giles, Jo Harrison, Katharina Kaplan, Joanne Lloyd, Tracey Nugent, Charlene Powell, Pameljit Rama, Debbie Rigby, Heather Still, Imogen Tacey‐Green, Karin Eli   +13 more
doaj   +1 more source

A systematic review of measures of the personal recovery orientation of mental health services and staff

International Journal of Mental Health Systems, 2023
Purpose This review aimed to update and extend the Williams and colleagues 2012 systematic review of measures of recovery-orientation of mental health services by examining whether any of the specific knowledge gaps identified in this original review had
Mary Leamy, Una Foye, Anne Hirrich, Dagfin Bjørgen, Josh Silver, Alan Simpson, Madeline Ellis, Karl Johan-Johanson   +7 more
doaj   +1 more source

Recovery among people with mental health challenges and alcohol and drug use issues in the Northern Territory, Australia

European Psychiatry
Introduction The Northern Territory (NT) has Australia’s highest mental health burden. It has a diverse and transient population, including Aboriginal and Torres Strait Islander people and various multicultural communities.
N. Tari-Keresztes, N. Armstrong, H. Gupta, J. A. Smith, S.-A. Endemann, S. Goding, J. Downes   +6 more
doaj   +1 more source