Results 31 to 40 of about 1,882,484 (309)

The usefulness of healthcare resources for people with mental and physical health concerns: a systematic review using co-design principles

Critical Public Health
People living with both mental and physical health concerns are less likely to have their health needs met than people living with just one of these.
Tessa-May Zirnsak, Rosiel Elwyn, Melanie Sherrin, Leighann Spencer, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

Outcomes of Live Virus Vaccination in Patients With Vascular Anomalies Being Treated With Sirolimus

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Live vaccination in patients with vascular anomalies (VA) receiving sirolimus remains controversial due to immunosuppressive effects and theoretical risks. Procedure This single‐center retrospective study included patients with VA less than 4 years old at the start of sirolimus therapy who were incompletely vaccinated.
Svatava Merkle, Kiersten Ricci, Kelly Blache, Rebecca A. Marsh, Adrienne M. Hammill, Elissa Engel   +5 more
wiley   +1 more source

Co-design of a systematic review: a shared reflection

Critical Public Health
Engaging people who have lived experience (LE) of a topic of enquiry increases the efficacy, integrity and robustness of research. This group bring improvements to all kinds of research, including systematic reviews.
Rosiel Elwyn, Tessa-May Zirnsak, Melanie Sherrin, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Leighann Spencer, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

'dis ɔhord' : one woman’s experience of confronting and understanding the lived experience of birth. [PDF]

, 2019
This paper is a collaborative piece written by a midwifery academic and an artist. It presents and interprets a number of mixed media art works created by Caroline Calonder in response to the traumatic birth of her son, and utilises findings derived from
Calonder, C., Kay, L.
core   +1 more source

Pediatric Oncology Nursing Competencies in Latin America and the Caribbean: A Scoping Review to Inform Practice, Education, and Research

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Nurses are central to cancer care for children and adolescents, yet no comprehensive synthesis has defined essential core competencies for pediatric oncology nursing (PON) practice internationally, particularly in Latin America and the Caribbean (LAC).
Luís Carlos Lopes‐Júnior, Edmara Bazoni Soares Maia, Soad Fuentes‐Alabí, Courtney E. Sullivan, Monnie Abraham, Mauricio Maza, Liliana Vásquez Ponce, Regina Aparecida Garcia Lima   +7 more
wiley   +1 more source

Doing community involvement care-fully: using an ethic of care to guide involvement in research on women’s health after pregnancy complications and loss

Research Involvement and Engagement
Consumer and Community Involvement (CCI) occurs when people with lived experience collaborate with researchers to design and conduct research. CCI has widely accepted benefits and is increasingly expected by funders and publishers.
Bec Jenkinson, Melanie McKenzie, Ayme Limmer, Valerie Charlton, Leah Hardiman, Anna Lee Ura, Sheleigh Lawler, Carissa Bonner, Jenny Doust   +8 more
doaj   +1 more source

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright, Morgan A. Paul, Selena Murcia Mendez, Emily Jones, Lucille Lokko, Chelsea Heneghan, Nicholas Purol, Morgan Arnold, Rahela Aziz‐Bose, Colleen A. Kelly, Sandi L. Pruitt, Joanne Wolfe, Kira Bona, Puja J. Umaretiya   +13 more
wiley   +1 more source

An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid

BMC Public Health
Background Around one in ten people who contract Covid-19 report ongoing symptoms or ‘Long Covid’. Without any known interventions to cure the condition, forms of self-management are routinely prescribed by healthcare professionals and described by ...
Fiona J. Leggat, Celayne Heaton-Shrestha, Jessica Fish, Aloysius Niroshan Siriwardena, Anne Domeney, Carol Rowe, Ian Patel, Judith Parsons, John Blair, Fiona Jones   +9 more
doaj   +1 more source

Interpreting Lived Experience through Writing Online in a Graduate Seminar [PDF]

, 2005
Participants in an online doctoral seminar participated in the use of a writing strategy to explore the sociocultural contexts of their lived experience.
Courtland, Mary Clare, LaFleur, Gail, McClelland, Ken, Novak, John, Shaw, Joan, Sider, Steve   +5 more
core   +1 more source

Lived experience in patients with recurrent glioblastoma in Japan: A narrative study

, 2017
Glioblastoma (GBM) is well known to have one of the poorest prognoses among all cancers. Patients with GBM in progression-free survival (PFS) may be relatively stable and can often maintain their quality of life. Thus, PFS is a desirable goal.
Arakawa, Yoshiki, Asase, Mariko, Chikada, Ai, Nin, Kazuko, Takekuma Katsumata, Asako, Takenouchi, Sayaka   +5 more
core   +2 more sources