Results 31 to 40 of about 4,859,999 (297)

Provider and Parent Perspectives on Prioritizing the “Asking and Monitoring” Pediatric Cancer Psychosocial Standards of Care

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The Standards for Psychosocial Care for Children with Cancer and Their Families (“Standards”) are evidence‐based guidelines for psychosocial care in pediatric oncology. Care related to the three “Asking and Monitoring” Standards—Assessment of Psychosocial Needs, Assessment of Financial Needs, and Monitoring Neurocognitive Problems ...
Julia B. Tager, Natalie Koskela‐Staples, Emily M. Pariseau, Michele Scialla, Kimberly Buff, Lori Wiener, Victoria Sardi Brown, Anne E. Kazak, Kimberly S. Canter   +8 more
wiley   +1 more source

Reflections on the impact of the Lived Experience Group in the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership Refresh

Research Involvement and Engagement
Background In 2025, Marie Curie and other partners launched the results of a refreshed Priority Setting Partnership with the James Lind Alliance, to identify priorities for palliative and end of life care research, based on the views of people affected ...
Jessica Bush, Jodie Crooks, Anna Dawson, Rashmi Kumar, Alexandra Reece, Diana Robinson, Sabine Best, Briony Hudson   +7 more
doaj   +1 more source

Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared

BMJ Open
Background In the health research space, it is becoming more common to see patient and public partners as members of teams and contributing to various initiatives rather than solely as participants in research.
Dawn P Richards, Maureen Smith, Charlotte Munro, Susan Marlin, Marisa Granieri, Christopher Fink, Kathy Kobow, Therese Lane, Donna Lillie, Kimberly Mitchell, Murray Walz   +10 more
doaj   +1 more source

A Situational Assessment of the Diagnostic Landscape and Organizational Readiness to Implement Next‐Generation Sequencing at Two Childhood Cancer Treatment Centers in Ghana

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Next‐generation sequencing (NGS) has emerged as a promising approach to improve diagnostic accuracy, but its feasibility in low‐ and middle‐income countries remains unknown. This study characterized the diagnostic landscape and assessed organizational readiness for NGS implementation at two childhood cancer treatment centers in Accra ...
Melissa Carvalho, Emmanuella Amoako, Nihad Salifu, Lily Gloria Tagoe, Yaw Bediako, Michelle Hermiston, Catherine Segbefia   +6 more
wiley   +1 more source

Embracing embodied movement in eating disorder recovery: matters arising from Bongiorno and Heaner (2025)

Journal of Eating Disorders
This Matters Arising builds upon Bongiorno and Heaner’s (2025) narrative review of resistance training in eating disorder recovery. The authors expand the discussion by situating resistance training within a wider spectrum of embodied movement practices,
James Downs, Hannah Hickinbotham, Eric Pothen   +2 more
doaj   +1 more source

Referral Practices and Utilisation of Paediatric Oncology Physiotherapy Services in Ghana: A Cross‐Sectional Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Physical rehabilitation is highly recognised in improving the quality of life of cancer survivors through prehabilitation, sequelae management and palliative care, yet its integration into routine care in Ghana has not been characterised, leading to potential gaps in service access.
Dorothy Ekua Adjabu, Philip Junior Nyarko, Precious Madzimbe, Kofi Adesi Kyei, Tawagidu Mohammed, Sandra Banini   +5 more
wiley   +1 more source

Co‐Designing a Social Media and Anxiety Survey: Reflections on the Importance of Centring Mental Health Lived Experience Expertise

Health Expectations
Introduction This study explores a collaborative co‐design process undertaken with people with lived experience expertise (PLEE), to develop a survey investigating experiences of social media and anxiety.
Sharon Lawn, Kerri M. Gillespie, Aakanksha Sahu, Stephanie J. Tobin, Vasundhara Shukla, Rachael Burns, Joanne Cockle, Amrita Dasvarma, Aislin Gleeson, John Milham, Robyn Priest, Puneet Sansanwal, Ashton Spradbury, Anna Zhang, Christine Kaine, Selena E. Bartlett   +15 more
doaj   +1 more source

The usefulness of healthcare resources for people with mental and physical health concerns: a systematic review using co-design principles

Critical Public Health
People living with both mental and physical health concerns are less likely to have their health needs met than people living with just one of these.
Tessa-May Zirnsak, Rosiel Elwyn, Melanie Sherrin, Leighann Spencer, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

Beyond the Document: A Single‐Center Qualitative Study of Survivorship Care Plan Barriers and Opportunities Across Pediatric Oncology Stakeholders

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivorship care plans (SCPs) summarize cancer treatment and guide risk‐based follow‐up for cancer survivors, yet remain difficult to create, share, and use. Stakeholder perspectives are needed to inform usable approaches.
Molly S. Talman, Emma Fleisher, Megan E. Salwei, Debra Friedman, Laurie Novak   +4 more
wiley   +1 more source

Co-design of a systematic review: a shared reflection

Critical Public Health
Engaging people who have lived experience (LE) of a topic of enquiry increases the efficacy, integrity and robustness of research. This group bring improvements to all kinds of research, including systematic reviews.
Rosiel Elwyn, Tessa-May Zirnsak, Melanie Sherrin, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Leighann Spencer, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source