Results 31 to 40 of about 4,828,104 (248)

Reflections on the impact of the Lived Experience Group in the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership Refresh

Research Involvement and Engagement
Background In 2025, Marie Curie and other partners launched the results of a refreshed Priority Setting Partnership with the James Lind Alliance, to identify priorities for palliative and end of life care research, based on the views of people affected ...
Jessica Bush, Jodie Crooks, Anna Dawson, Rashmi Kumar, Alexandra Reece, Diana Robinson, Sabine Best, Briony Hudson   +7 more
doaj   +1 more source

Partnering with patients and the public in the clinical trials ecosystem: a decade of lessons learned and shared

BMJ Open
Background In the health research space, it is becoming more common to see patient and public partners as members of teams and contributing to various initiatives rather than solely as participants in research.
Dawn P Richards, Maureen Smith, Charlotte Munro, Susan Marlin, Marisa Granieri, Christopher Fink, Kathy Kobow, Therese Lane, Donna Lillie, Kimberly Mitchell, Murray Walz   +10 more
doaj   +1 more source

“We Cannot Talk as a Family”: Complexities of Survivorship Communication Among Hispanic/Latino Young Adult Survivors of Childhood Cancer, Parents, and Clinicians

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Young adult childhood cancer survivors (YA‐CCS) have an increased risk of treatment‐related health complications throughout their lives. Lifelong survivorship care is recommended, yet many YA‐CCS experience disruptions in care during pediatric‐to‐adult transitions and do not receive recommended survivorship care.
Kevin Shanchen Pu, Nicole Fernández‐Viña, Briana C. Martin‐Villa, Daniela Ramirez, Rebecca M. Lewinsohn, Mary Smith, Heidi Boynton, Lidia Schapira, Stephanie M. Smith   +8 more
wiley   +1 more source

Embracing embodied movement in eating disorder recovery: matters arising from Bongiorno and Heaner (2025)

Journal of Eating Disorders
This Matters Arising builds upon Bongiorno and Heaner’s (2025) narrative review of resistance training in eating disorder recovery. The authors expand the discussion by situating resistance training within a wider spectrum of embodied movement practices,
James Downs, Hannah Hickinbotham, Eric Pothen   +2 more
doaj   +1 more source

Identifying Patterns of Hospitalizations Among Childhood Cancer Survivors: A Population‐Based Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Childhood cancer survivors (CCSs) experience more hospitalizations than the general population. We aimed to identify distinct hospitalization patterns among Queensland CCSs and the associated characteristics. Methods Cases (aged ≤14 years) diagnosed between 1995 and 2019 while residents of Queensland were identified through the ...
Hai Pham, Teyl Engstrom, Peter Baade, Natalie Bradford, Sarah Pont, Louise Marquart‐Wilson, Natasha Nassar, Jason D. Pole   +7 more
wiley   +1 more source

Co‐Designing a Social Media and Anxiety Survey: Reflections on the Importance of Centring Mental Health Lived Experience Expertise

Health Expectations
Introduction This study explores a collaborative co‐design process undertaken with people with lived experience expertise (PLEE), to develop a survey investigating experiences of social media and anxiety.
Sharon Lawn, Kerri M. Gillespie, Aakanksha Sahu, Stephanie J. Tobin, Vasundhara Shukla, Rachael Burns, Joanne Cockle, Amrita Dasvarma, Aislin Gleeson, John Milham, Robyn Priest, Puneet Sansanwal, Ashton Spradbury, Anna Zhang, Christine Kaine, Selena E. Bartlett   +15 more
doaj   +1 more source

The usefulness of healthcare resources for people with mental and physical health concerns: a systematic review using co-design principles

Critical Public Health
People living with both mental and physical health concerns are less likely to have their health needs met than people living with just one of these.
Tessa-May Zirnsak, Rosiel Elwyn, Melanie Sherrin, Leighann Spencer, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

Bone and Soft Tissue Neoplasms in Infants Versus Older Children: A Report From the Cancer in Young People in Canada Program

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background and Aims Infant bone and soft tissue neoplasms present distinct clinical challenges and lack large‐scale data to inform treatment decisions. This study aims to characterize bone and soft tissue neoplasms in infants in Canada and to compare their outcomes with those of older pediatric patients.
Samuel Sassine, Hallie Coltin, Maria Kondyli, Monia Marzouki, Nicolas Prud'homme, Nida Usmani, Rebecca J. Deyell, Lesleigh Abbott, Tony H. Truong, Sapna Oberoi, Ketan Kulkarni, Josée Brossard, Lynette Bowes, Paul Gibson, Sarah McKillop, Roona Sinha, Lillian Sung, Catherine Vezina, Laura Wheaton, Alexandra P. Zorzi, Marie‐Claude Pelland‐Marcotte, Thai Hoa Tran   +21 more
wiley   +1 more source

Co-design of a systematic review: a shared reflection

Critical Public Health
Engaging people who have lived experience (LE) of a topic of enquiry increases the efficacy, integrity and robustness of research. This group bring improvements to all kinds of research, including systematic reviews.
Rosiel Elwyn, Tessa-May Zirnsak, Melanie Sherrin, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Leighann Spencer, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

Lived Experience and Co-production in Philosophy of Psychiatry, Clinical Practice and Mental Health Research

, 2023
Experts by Experience in the context of mental health are those who have personal experience of using or caring for someone who uses health, mental health and social care services.
Bergqvist, Anna
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