Results 31 to 40 of about 1,921,607 (358)

“I could be living a totally different life right now”: lived experience and caregiver perspectives on the prevention of eating disorders

Journal of Eating Disorders
Eating disorder prevention is widely acknowledged as a priority for the field. However, little space has been given to investigating how people who have endured the impacts of eating disorders view the subject of prevention.
James Downs, Ellie Smith, Nicky Smith, Suzanne Baker, Helen Missen, Jodie Goodacre, Hannah Hickinbotham, Nicola Hickinbotham, Zoe Hazel, Debbie Taylor, Hope Virgo   +10 more
doaj   +1 more source

Recovery among people with mental health challenges and alcohol and drug use issues in the Northern Territory, Australia

European Psychiatry
Introduction The Northern Territory (NT) has Australia’s highest mental health burden. It has a diverse and transient population, including Aboriginal and Torres Strait Islander people and various multicultural communities.
N. Tari-Keresztes, N. Armstrong, H. Gupta, J. A. Smith, S.-A. Endemann, S. Goding, J. Downes   +6 more
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

The Lived Experience of Ovarian Cancer [PDF]

, 2011
It was estimated that in 2009,21,550 women would be diagnosed with ovarian cancer and 14.600 women would die from it. There are approximately 176,007 women living with ovarian cancer in the US.
Tyll, Jennifer
core   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Reflections on the impact of the Lived Experience Group in the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership Refresh

Research Involvement and Engagement
Background In 2025, Marie Curie and other partners launched the results of a refreshed Priority Setting Partnership with the James Lind Alliance, to identify priorities for palliative and end of life care research, based on the views of people affected ...
Jessica Bush, Jodie Crooks, Anna Dawson, Rashmi Kumar, Alexandra Reece, Diana Robinson, Sabine Best, Briony Hudson   +7 more
doaj   +1 more source

It’s scary, scary, scary …”: the lived experience of asthma. [PDF]

, 2015
The research presented here contributes to a developing sociological-phenomenological empirical corpus of literature by addressing the lived experience of asthma in non-élite sports participants and committed exercisers.
Allen-Collinson, Jacquelyn, Owton, Helen, Siriwardena, Aloysius Niroshan   +2 more
core  

The Influence of Trust in Traditional Contracting: Investigating the "Lived Experience" of Stakeholders [PDF]

, 2015
The traditional procurement approach is ever-present within the construction industry. With fundamental design principles founded on definitive risk allocation, this transactional based approach fails to acknowledge or foster the cooperative ...
Brewer, Graham, Gajendran, Thayaparan, Strahorn, Scott   +2 more
core   +3 more sources

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Embracing embodied movement in eating disorder recovery: matters arising from Bongiorno and Heaner (2025)

Journal of Eating Disorders
This Matters Arising builds upon Bongiorno and Heaner’s (2025) narrative review of resistance training in eating disorder recovery. The authors expand the discussion by situating resistance training within a wider spectrum of embodied movement practices,
James Downs, Hannah Hickinbotham, Eric Pothen   +2 more
doaj   +1 more source