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How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research [PDF]

open access: yesHealth Expectations
Introduction The positive impact of patient and public involvement (PPI) on the relevance, accessibility and acceptability of mental health research is well documented.
Jo Evans   +6 more
doaj   +2 more sources

Beyond Tokenism: Making Lived Experience Leadership Visible in Co‐Produced Research Authorship [PDF]

open access: yesHealth Expectations
Background Co‐production research values the lived/living experience (LE) of people navigating health challenges. Despite this, traditional academic authorship often disregards power dynamics that participatory research seeks to address.
Patte Randal, Stefan Heinz
doaj   +2 more sources

Experiences of living with dystonia [PDF]

open access: yesDisability and Rehabilitation, 2019
Dystonia is a chronic and incurable movement disorder. This qualitative study aimed to enhance understanding of the condition by exploring the experience of living with dystonia.Interpretative phenomenological analysis was used to analyse data gathered through semi-structured interviews. Eight participants were recruited via a UK-based dystonia charity.
Andrew Morgan   +2 more
openaire   +2 more sources

Understanding Men’s Engagement and Disengagement When Seeking Support for Mental Health

open access: yesAmerican Journal of Men's Health, 2023
Men are less likely to utilize health care services compared with women. When it comes to mental health, men have been reported to hold more reluctant attitudes toward engaging with mental health services.
Minjoo Kwon   +2 more
doaj   +1 more source

Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year

open access: yesResearch Involvement and Engagement, 2022
Plain English summary In this paper, we describe the development of the Canadian Consortium of Neurodegeneration in Aging (CCNA) Engagement of People with Lived Experience of Dementia (EPLED) cross-cutting program and the first year of the EPLED Advisory
Ellen Snowball   +9 more
doaj   +1 more source

Lived experience to lived experience expertise: embracing lived experience in Australian criminology

open access: yesContemporary Justice Review
This paper, authored by some individuals with lived experience of the Australian criminal legal-punishment system, serves as a call to action for their recognition and integration within the criminal legal sector. We highlight the importance of acknowledging the deep personal nature of criminal legal-punishment system experiences, which, though ...
Antojado, Dwayne   +2 more
openaire   +3 more sources

Language matters: discourses of therapeutic optimism and recovery in the treatment of eating disorders

open access: yesBJPsych Bulletin
Aims and method This article explores how clinical language used to describe long-standing and severe eating disorders shapes treatment experiences and outcomes.
James Downs   +2 more
doaj   +1 more source

A systematic review of measures of the personal recovery orientation of mental health services and staff

open access: yesInternational Journal of Mental Health Systems, 2023
Purpose This review aimed to update and extend the Williams and colleagues 2012 systematic review of measures of recovery-orientation of mental health services by examining whether any of the specific knowledge gaps identified in this original review had
Mary Leamy   +7 more
doaj   +1 more source

Co-producing rapid research: Strengths and challenges from a lived experience perspective

open access: yesFrontiers in Sociology, 2023
The Lived Experience Researchers (LERs) of the Mental Health Policy Research Unit (MHPRU) reflect on the experience of conducting rapid co-produced research, particularly during the first year of the COVID-19 pandemic. Throughout this perspective article,
Karen Machin   +7 more
doaj   +1 more source

Oral health and mental health: lived experiences of stigma and discrimination for Australians with mental health conditions

open access: yesBMC Oral Health
Background Oral health disparities persist among people with mental health conditions. They experience high rates of dental disease due to medication side effects, socioeconomic barriers, and stigma.
Anna Ngo   +11 more
doaj   +1 more source

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