Results 41 to 50 of about 4,828,104 (248)

Impact of Initial Treatment Setting on Survival in Relapsed Pediatric and AYA Bone Sarcomas: A Secondary Analysis of a Prospective Clinical Trial

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Outcomes in relapsed or refractory pediatric and AYA bone sarcomas remain poor, and the impact of early referral to specialized sarcoma centers on survival is unclear. Early centralization of care may improve local and systemic treatment quality, but evidence in this population is limited.
Justyna Antoniuk‐Majchrzak, Katarzyna Bilska, Tomasz Koziński, Jadwiga Węcławek‐Tompol, Dorota Sega‐Pondel, Radosław Chaber, Wanda Badowska, Katarzyna Rosłan, Hanna Koseła‐Paterczyk, Anna Raciborska   +9 more
wiley   +1 more source

Doing community involvement care-fully: using an ethic of care to guide involvement in research on women’s health after pregnancy complications and loss

Research Involvement and Engagement
Consumer and Community Involvement (CCI) occurs when people with lived experience collaborate with researchers to design and conduct research. CCI has widely accepted benefits and is increasingly expected by funders and publishers.
Bec Jenkinson, Melanie McKenzie, Ayme Limmer, Valerie Charlton, Leah Hardiman, Anna Lee Ura, Sheleigh Lawler, Carissa Bonner, Jenny Doust   +8 more
doaj   +1 more source

Acute COVID-19, the Lived Experience, and Lessons to Learn for Future Pandemics [PDF]

, 2023
Objectives: The study aimed to increase the understanding of the lived experience of patients during the acute phase of a coronavirus disease 2019 (COVID-19) infection.
Owen-Toon, R., Ashton, R., Ferraro, F., Faghy, M., Skipper, L.   +4 more
core   +1 more source

Neurocognitive, School‐Based, and Quality of Life Outcomes for Youth With Sickle Cell Disease and Thalassemia: A Scoping Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling, Hakim Tokhi, Alexander A. Boucher   +2 more
wiley   +1 more source

Improving mental wellbeing among families and friends of people with alcohol and drug use issues in Darwin, Australia

European Psychiatry
Introduction Families and friends of individuals with alcohol and other drug use (AOD) issues are highly stigmatised and vulnerable, which often leads to social isolation, decreased quality of life, psychosocial vulnerability, heightened distress ...
N. Tari-Keresztes, N. Armstrong, H. Gupta, J. A. Smith, S.-A. Endemann, S. Goding   +5 more
doaj   +1 more source

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres, Cristina Tarango, Ashley Childress, Chunyan Liu, Evan Thomas, Jennifer Pomales, Eric S. Mullins   +6 more
wiley   +1 more source

An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid

BMC Public Health
Background Around one in ten people who contract Covid-19 report ongoing symptoms or ‘Long Covid’. Without any known interventions to cure the condition, forms of self-management are routinely prescribed by healthcare professionals and described by ...
Fiona J. Leggat, Celayne Heaton-Shrestha, Jessica Fish, Aloysius Niroshan Siriwardena, Anne Domeney, Carol Rowe, Ian Patel, Judith Parsons, John Blair, Fiona Jones   +9 more
doaj   +1 more source

Exploring the 'lived experience' of project work with continental philosophical perspectives [PDF]

, 2017
In this thesis, it is demonstrated that Continental philosophical perspectives can assist in accessing, understanding and communicating the ‘lived experience’ of project work.
van der Hoorn, Bronte
core   +1 more source

The human gut microbiome across the life course

FEBS Letters, EarlyView.
Despite significant individual variation and continuous change throughout life, the human gut microbiome follows some life stage‐specific trends. This article provides a brief overview of how gut microbiome composition shifts across different phases of life. Created in BioRender. Özkurt, E. (2026) https://BioRender.com/8q4nrnc.
Alise J. Ponsero, Basak Bahcivanci, Antonietta Hayhoe, Animesh Acharjee, Ezgi Özkurt   +4 more
wiley   +1 more source

Special Issue – July/August 2020: Sustaining a Focus on Human Experience in the Face of COVID-19 [PDF]

, 2020
At this critical time in our shared history, we are faced with a powerful challenge, the rapid impact of COVID-19 on our healthcare systems and community.
Journal, Patient Experience, Patient Experience Journal   +1 more
core   +1 more source