Results 41 to 50 of about 1,921,607 (358)

Improving mental wellbeing among families and friends of people with alcohol and drug use issues in Darwin, Australia

European Psychiatry
Introduction Families and friends of individuals with alcohol and other drug use (AOD) issues are highly stigmatised and vulnerable, which often leads to social isolation, decreased quality of life, psychosocial vulnerability, heightened distress ...
N. Tari-Keresztes, N. Armstrong, H. Gupta, J. A. Smith, S.-A. Endemann, S. Goding   +5 more
doaj   +1 more source

Emapalumab for Immune Effector Cell‐Associated Hemophagocytic Lymphohistiocytosis‐Like Syndrome Following CD19‐Directed CAR‐T in Two Patients With B‐ALL: Clinical and Biomarker Correlates

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Immune effector cell‐associated hemophagocytic lymphohistiocytosis‐like syndrome (IEC‐HS) is a life‐threatening hyperinflammatory toxicity distinct from cytokine release syndrome (CRS) and neurotoxicity following chimeric antigen receptor T‐cell (CAR‐T) therapy. In a single‐institution retrospective cohort of pediatric and young adult patients
Thomas J. Galletta, Jeremy D. Rubinstein, Christopher E. Dandoy, Ruby Khoury, Angela Faulhaber, Christine L. Phillips, Christa Krupski   +6 more
wiley   +1 more source

Co‐Designing a Social Media and Anxiety Survey: Reflections on the Importance of Centring Mental Health Lived Experience Expertise

Health Expectations
Introduction This study explores a collaborative co‐design process undertaken with people with lived experience expertise (PLEE), to develop a survey investigating experiences of social media and anxiety.
Sharon Lawn, Kerri M. Gillespie, Aakanksha Sahu, Stephanie J. Tobin, Vasundhara Shukla, Rachael Burns, Joanne Cockle, Amrita Dasvarma, Aislin Gleeson, John Milham, Robyn Priest, Puneet Sansanwal, Ashton Spradbury, Anna Zhang, Christine Kaine, Selena E. Bartlett   +15 more
doaj   +1 more source

The usefulness of healthcare resources for people with mental and physical health concerns: a systematic review using co-design principles

Critical Public Health
People living with both mental and physical health concerns are less likely to have their health needs met than people living with just one of these.
Tessa-May Zirnsak, Rosiel Elwyn, Melanie Sherrin, Leighann Spencer, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

Lived experiences of informal caregivers of people with chronic musculoskeletal pain: a systematic review and meta-ethnography [PDF]

, 2021
BACKGROUND: People with chronic pain often seek support from friends and family for everyday tasks. These individuals are termed informal caregivers. There remains uncertainty regarding the lived experiences of these people who care for individuals with ...
Bowlby J., Bronfenbrenner U, GBD, Major CH, Mease P., Merskey H, Sofaer-Bennett B   +6 more
core   +1 more source

The Role of Hematopoietic Cell Transplantation in Ataxia‐Telangiectasia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Ataxia‐telangiectasia (A‐T) is a DNA repair disorder characterized by neurodegeneration, immunodeficiency, and cancer predisposition. Hematopoietic cell transplantation (HCT) is an established therapy in related disorders such as Fanconi anemia (FA) and Nijmegen breakage syndrome (NBS), but its role in A‐T is unclear.
Laila Alkhouli, Seth Rotz, Masatoshi Takagi, Richa Sharma   +3 more
wiley   +1 more source

Co-design of a systematic review: a shared reflection

Critical Public Health
Engaging people who have lived experience (LE) of a topic of enquiry increases the efficacy, integrity and robustness of research. This group bring improvements to all kinds of research, including systematic reviews.
Rosiel Elwyn, Tessa-May Zirnsak, Melanie Sherrin, Michael Burge, Amrita Dasvarma, Judith Drake, Lyn English, Darren Jiggins, Heidi La Paglia Reid, Ailsa Rayner, Leighann Spencer, Russell Roberts, Chris Maylea   +12 more
doaj   +1 more source

'dis ɔhord' : one woman’s experience of confronting and understanding the lived experience of birth. [PDF]

, 2019
This paper is a collaborative piece written by a midwifery academic and an artist. It presents and interprets a number of mixed media art works created by Caroline Calonder in response to the traumatic birth of her son, and utilises findings derived from
Calonder, C., Kay, L.
core   +1 more source

Therapeutic Apheresis in Nigeria: A Multi‐Center Summary of Abstracts From the Inaugural Nigerian Society for Apheresis Scientific Meeting

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Therapeutic apheresis (TA) is an established treatment modality for hematologic, neurologic, and immunologic disorders, yet access remains severely limited in sub‐Saharan Africa. Donor apheresis, including platelet apheresis collection from healthy donors, represents an important complementary modality supporting blood product ...
Nosa Bazuaye, Chimezie Okwuonu, Evelyn Idam, Folasade Adelekan‐Popoola, Shakirat Gold‐Olufadi, Olufunto Olufela Kalejaiye, Abdullateef Ogala, Zinnah Aloziem, Blossom Amamchukwu, Patience Elimia, Mkpoikanabasi Obot‐Obot, Henry Mbakwe, Praises Maduagwuna, Olatunji Akinrodoye, Chiamaka Anyanwu, Benjamin Anyanwu, Adedamola Akinsiku, Oluwatoyin A. Akinsiku, Muzamil O. Hassan, Fatiu A. Arogundade, Olalekan E. Ojo, Homayemem Weli, Jesupelumi Adenihun, Aderemi Adelaja, Ebun Bamgboye, Olalekan Olatise, Ade E. Faponle, Ayoola Odeyemi, Michael Muoka, Stephen Asaolu, Qudrat Busari, Blessing Dawudu, Michael Naiyeju, Rasheed A. Balogun   +33 more
wiley   +1 more source

Doing community involvement care-fully: using an ethic of care to guide involvement in research on women’s health after pregnancy complications and loss

Research Involvement and Engagement
Consumer and Community Involvement (CCI) occurs when people with lived experience collaborate with researchers to design and conduct research. CCI has widely accepted benefits and is increasingly expected by funders and publishers.
Bec Jenkinson, Melanie McKenzie, Ayme Limmer, Valerie Charlton, Leah Hardiman, Anna Lee Ura, Sheleigh Lawler, Carissa Bonner, Jenny Doust   +8 more
doaj   +1 more source