Results 81 to 90 of about 522,259 (304)

Review: Burden on Family Caregivers Caring for Patients with Schizophrenia and Its Related Factors [PDF]

, 2011
Background: Family caregiver is the most important person who cares for patient with schizophrenia. However when care is provided for long time, he/she may experiences the burden.Purpose: The purpose was to review concept and factors related to burden on
Rafiyah, I. (Imas)
core   +1 more source

Family Caregivers' Experiences in Nursing Homes: Narratives on Human Dignity and Uneasiness [PDF]

, 2014
This qualitative study focused on dignity in nursing homes from the perspective of family caregivers. Dignity is a complex concept and central to nursing. Dignity in nursing homes is a challenge, according to research.
Aasgaard, Trygve, Caspari, Synnøve, Heggestad, Anne Kari Tolo, Høy, Bente, Lillestø, Britt, Lindwall, Lillemor, Lohne, Vibeke, Nåden, Dagfinn, Rehnsfeldt, Arne, Råholm, Maj-Britt, Slettebø, Åshild, Sæteren, Berit   +11 more
core   +2 more sources

Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley   +1 more source

Engaging Family, Friend, and Neighbor Informal Caregivers [PDF]

, 2017
The David and Lucile Packard Foundation's Children, Families and Communities program is investing in exploratory projects to learn more about informal care settings.

core  

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler, Vivian Maas, Arian Taheri Amin, Jennifer Faber, Tamara Schaprian, Katharina Hill, Matthis Synofzik, Lisa H. Graf, Heike Jacobi, Manuela Lima, Ana F. Ferreira, Bart P. van de Warrenburg, Ilse H. J. Willemse, Dagmar Timmann, Andreas Thieme, Paola Giunti, Hector Garcia‐Moreno, Magda M. Santana, Jeannette Hübener‐Schmid, Elin H. Davies, Thomas Klockgether   +20 more
wiley   +1 more source

Family Caregivers of Older People in Nursing Homes

Asian Nursing Research, 2008
This paper aims to review literature related to the experiences of family caregivers after institutionalization of their older relatives. Methods: Thirty-one research-based articles were reviewed for information on the following six dimensions ...
Eun-Hi Kong, PhD, RN
doaj   +1 more source

Diffusion Spectrum Imaging Maps Early Axonal Loss and a Unique Progressive Signal in Neuronal Intranuclear Inclusion Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To delineate specific in vivo white matter pathology in neuronal intranuclear inclusion disease (NIID) using diffusion spectrum imaging (DSI) and define its clinical relevance. Methods DSI was performed on 42 NIID patients and 38 matched controls.
Kaiyan Jiang, Yixiu Pei, Xiaobao Hu, Ying Xiong, Fang Wang, Yanyan Yu, Min Zhu, Dandan Tan, Meihong Zhou, Daojun Hong, Fuqing Zhou   +10 more
wiley   +1 more source

Promoting preparedness for family caregiving – a randomised controlled intervention in palliative care [PDF]

, 2016
Background: Patients with incurable illness are increasingly being cared for in their homes with the help of palliative home care. However, in this system family caregivers also play an important role and often take a great responsibility for the patient’
Holm, Maja
core   +1 more source

TBK1‐Associated Primary Lateral Sclerosis Followed by Right Temporal Variant Frontotemporal Dementia

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT We report a 58‐year‐old woman with a novel splice‐site variant in the TANK‐binding kinase 1 (TBK1:c.993–2A>C p.Ala332TyrfsTer39) who sequentially developed primary lateral sclerosis (PLS) followed by right temporal variant frontotemporal dementia (rtvFTD). Neuroimaging demonstrated right anterior temporal atrophy before cognitive symptoms, and
Tomoyasu Matsubara, Naoki Kihara, Satoko Miyatake, Koji Fujita, Konoka Tachibana, Ryosuke Miyamoto, Hiroki Yamazaki, Yusuke Osaki, Nazere Keyoumu, Yuki Kuwano, Nobutoshi Morimoto, Suzuran Saito, Eriko Koshimizu, Yoichi Otomi, Kenji Ishibashi, Masafumi Harada, Naomichi Matsumoto, Hiroyuki Morino, Yuishin Izumi   +18 more
wiley   +1 more source

Study on the Current Situation and Influencing Factors of Family Resilience of Patients With Recurrent Cancer and Their Caregivers

Nursing Open
Aim Family resilience plays a crucial role in cancer recurrence patients and their caregivers. However, there are few studies that have studied the family resilience of patients with recurrent cancer and their caregivers at the same time.
Yaoyao Pei, Zhangying Xu, Xingjuan Luo, Feng Wu, Mei Yu, Wei Xiao, Tingting Hu   +6 more
doaj   +1 more source