An [Imperfect] Case for Dyadic Research in Pediatric Psychosocial Oncology
Pediatric Blood &Cancer, EarlyView.
Stephanie M. Nanos +2 more
wiley +1 more source
The Role of “Adult‐Onset” Cancer Predisposition Genes in Pediatric Cancer: A Comprehensive Review
ABSTRACT Current literature estimates that 10% of pediatric cancers are caused by pathogenic or likely pathogenic (P/LP) germline variants in cancer predisposition genes (CPGs). Variants in CPGs thought to increase cancer risk exclusively during adulthood are referred to as “adult‐onset” CPGs (aoCPGs).
Maria Rozo +5 more
wiley +1 more source
Genetic information: Special or not? Responses from focus groups with members of a health maintenance organization. [PDF]
http://dx.doi.org/10.1002/ajmg.a ...
Culver, Julie O. +5 more
core +1 more source
Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers
ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge +6 more
wiley +1 more source
Performing focus groups: Unsettling 'blueprints' [PDF]
This paper will explore the use of focus groups from two theoretical perspectives: poststructuralism and critical realism. The authors will bring together their understandings of these frameworks in the context of performing the focus group as a ...
Dwyer, Angela E., Christensen, Clare
core
Introduction: Most dentists will, at some point in their career, be faced with an in-office emergency. Dental staff must undergo training in the management of emergencies to a level based on their clinical responsibilities.
K Sneha Shenoy +3 more
doaj +1 more source
ABSTRACT Background Leukemia is the most common childhood cancer in Mexico, and acute lymphoblastic leukemia (ALL) is the most frequent subtype. Exposure to high concentrations of benzene has been associated with ALL incidence, particularly in urban areas. This study evaluated the relationship between distance to benzene emission sources and the number
Orlando Rivera Zurita +5 more
wiley +1 more source
The needs of Maltese families with dependent children : a focus group study among professionals [PDF]
This article seeks to identify the needs of Maltese families with dependent children. The sociocultural context in which Maltese families are embedded will serve as a theoretical framework for this study. A series of six focus groups with experts in the
Inguanez, Joe +5 more
core
Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte +5 more
wiley +1 more source
Practical Guidance for Preparing for and Conducting Focus Groups and Interviews with Community Members for Cancer Research [PDF]
To support meaningful and productive engagement in cancer research, we provide practical guidance for preparing for and conducting focus groups and interviews with community members.
Goodwin, Belinda C. +5 more
core +1 more source

