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The challenges of maintaining genetic privacy [PDF]

open access: yeseLife, 2020
Two studies suggest that a determined adversary may be able to obtain genetic information without permission from some genealogy databases.
Shai Carmi
doaj   +4 more sources

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services [PDF]

open access: yesFrontiers in Genetics, 2020
BackgroundThe existing literature has not examined how Chinese direct-to-consumer (DTC) genetic testing providers navigate the issues of informed consent, privacy, and data protection associated with testing services.
Li Du, Meng Wang
doaj   +4 more sources

An overview of human genetic privacy [PDF]

open access: yesAnnals of the New York Academy of Sciences, 2017
The study of human genomics is becoming a Big Data science, owing to recent biotechnological advances leading to availability of millions of personal genome sequences, which can be combined with biometric measurements from mobile apps and fitness trackers, and of human behavior data monitored from mobile devices and social media.
Xintao Wu, Xinghua Shi
exaly   +6 more sources

Attacks on genetic privacy via uploads to genealogical databases [PDF]

open access: yeseLife, 2020
Direct-to-consumer (DTC) genetics services are increasingly popular, with tens of millions of customers. Several DTC genealogy services allow users to upload genetic data to search for relatives, identified as people with genomes that share identical by ...
Michael D Edge, Graham Coop
doaj   +2 more sources

A decade of research on genetic privacy: the findings of the GetPreCiSe Center at Vanderbilt University [PDF]

open access: yesFrontiers in Genetics
Research carried out by Vanderbilt University’s and Medical Center’s federally-funded transdisciplinary, highly interactive GetPreCiSe Center in Excellence for ELSI research on genomic privacy—involving over 40 scholars across computer and social ...
Christopher Slobogin   +10 more
doaj   +2 more sources

The impact of cross-kingdom molecular forensics on genetic privacy [PDF]

open access: yesMicrobiome, 2021
Recent advances in metagenomic technology and computational prediction may inadvertently weaken an individual’s reasonable expectation of privacy. Through cross-kingdom genetic and metagenomic forensics, we can already predict at least a dozen human ...
Eran Elhaik   +4 more
doaj   +2 more sources

The precarious future of consumer genetic privacy. [PDF]

open access: yesScience
Congress and other lawmakers must act to robustly protect direct-to-consumer genetic data and biospecimens into the ...
Ram N   +4 more
europepmc   +4 more sources

Commercial genetic information and criminal investigations: The case for social privacy

open access: yesBig Data & Society, 2023
Taking a DNA test with a commercial company is an increasingly popular enterprise, with tens of millions of consumers worldwide. In recent years, these genetic databases have also been used for so-called investigative genetic genealogy (IGG): uploading a
Nina F. de Groot
doaj   +2 more sources

Protecting Genetic Privacy

open access: yesمجلة العلوم و آفاق المعارف
The article aims to demonstrate the risks posed by biomedical advances in genetic engineering and the consequences of violations of human dignity and the right to genetic privacy if the processing of individuals' genetic data is useful in some areas of ...
Aicha Fadhel
doaj   +3 more sources

Genetic Data Sharing and Privacy [PDF]

open access: yesNeuroinformatics, 2014
Adam R Ferguson   +2 more
exaly   +5 more sources

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