Results 11 to 20 of about 2,407,465 (287)

“Use it or lose it” as an alternative approach to protect genetic privacy in personalized medicine [PDF]

Urologic Oncology: Seminars and Original Investigations, 2014
Jennifer Wagner, Reed Pyeritz, Jessica Mozersky   +2 more
exaly   +2 more sources

BILL S-231: The Ethics of Familial and Genetic Genealogical Searching in Criminal Investigations

Canadian Journal of Bioethics, 2023
Recent breakthroughs in criminal investigations, especially of high-profile cold cases, have helped to consolidate the role of DNA analysis in investigative contexts.
Katharina Clausius, Erin Kenny, Michael Crawford   +2 more
doaj   +1 more source

Rare disease data stewardship in Canada

FACETS, 2020
The Canadian Genomics Partnership for Rare Diseases, spearheaded by Genome Canada, will integrate genome-wide sequencing to rare disease clinical care in Canada.
Alexander Bernier
doaj   +1 more source

Quantifying Privacy Risks for Continuous Trait Data

Applied Sciences, 2022
In the context of life sciences, the rapid biotechnical development leads to the creation of huge amounts of biological data. The use of such data naturally brings concerns on human genetic privacy breaches, which also discourage biological data sharing.
Muqing He, Deqing Zou, Weizhong Qiang, Shouhuai Xu, Wenbo Wu, Hai Jin   +5 more
doaj   +1 more source

Attitudes of healthy volunteers to genetic testing in phase 1 clinical trials [version 1; peer review: 2 approved]

F1000Research, 2021
Background: Genetic testing in clinical trials introduces several ethical and logistical issues to discuss with potential participants when taking informed consent.
Eric Haan, Sebastian Levesque, Thomas M. Polasek, Sepehr Shakib   +3 more
doaj   +1 more source

Creative beyond TikToks : investigating adolescents' social privacy management on TikTok [PDF]

, 2023
TikTok has been criticized for its low privacy standards, but little is known about how its adolescent users protect their privacy. Based on interviews with 54 adolescents in Switzerland, this study provides a comprehensive understanding of young TikTok ...
Knieps, Melanie, Ebert, Nico, Brucker-Kley, Elke, Hönig, Michael, Strycharz, Joanna, Geppert, Tim   +5 more
core   +1 more source

Privacy Implications of Contacting the At-Risk Relatives of Patients with Medically Actionable Genetic Predisposition, with Patient Consent: A Hypothetical Australian Case Study

BioTech, 2023
Genetic risk information has relevance for patients’ blood relatives. However, cascade testing uptake in at-risk families is
Jane Tiller, Kristen Nowak, Tiffany Boughtwood, Margaret Otlowski   +3 more
doaj   +1 more source

Who’s afraid of genetic tests?: An assessment of Singapore’s public attitudes and changes in attitudes after taking a genetic test

BMC Medical Ethics, 2022
Background As a consequence of precision medicine initiatives, genomic technologies have rapidly spread around the world, raising questions about genetic privacy and the ethics of data sharing. Previous scholarship in bioethics and science and technology
Ross Cheung, Shreshtha Jolly, Manoj Vimal, Hie Lim Kim, Ian McGonigle   +4 more
doaj   +1 more source

Trends in forensic DNA database: transnational exchange of DNA data

Forensic Sciences Research, 2020
The transnational exchange of forensic DNA data has become a modern trend in fighting cross-border crime, terrorism and illegal immigration. Forensic DNA data allow the police to identify, eliminate or link individuals associated with a crime ...
Aaron Opoku Amankwaa
doaj   +1 more source

A systematic literature review of individuals' perspectives on privacy and genetic information in the United States. [PDF]

PLoS ONE, 2018
Concerns about genetic privacy affect individuals' willingness to accept genetic testing in clinical care and to participate in genomics research. To learn what is already known about these views, we conducted a systematic review, which ultimately ...
Ellen W Clayton, Colin M Halverson, Nila A Sathe, Bradley A Malin   +3 more
doaj   +1 more source