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The success of the Saudi Human Genome Program (SHGP), one of the top ten genomic programs worldwide, is highly dependent on the Saudi population embracing the concept of participating in genetic testing.
Abdulmajeed F. Alrefaei +5 more
doaj +1 more source
Genetic privacy and piracy [PDF]
On the eve of a decision on a new gene diagnostics law in Germany, the debate about risks and benefits, although important, must not derail essential legislation.
openaire +2 more sources
Privacy-preserving cancer type prediction with homomorphic encryption
Cancer genomics tailors diagnosis and treatment based on an individual’s genetic information and is the crux of precision medicine. However, analysis and maintenance of high volume of genetic mutation data to build a machine learning (ML) model to ...
Esha Sarkar +5 more
doaj +1 more source
Normative framework for the protection against genetic discrimination in Serbia [PDF]
The paper is devoted to a normative framework of protection against genetic discrimination in the legal system of the Republic of Serbia, contained in the Law on Patients Rights, as of 2013 and in the Law on Prevention and diagnostics of genetic ...
Petrušić Nevena
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تطبيقات الحق في خصوصية البيانات الجينية. [PDF]
يشكل الحق في الخصوصية الجينية أحد أبرز التحديات القانونية والأخلاقية في العصر الحديث، نظرًا للتقدم الهائل في تقنيات التحليل الجيني، وما نتج عنه من قدرة غير مسبوقة على الوصول إلى معلومات دقيقة وحساسة عن الفرد، وتتميز هذه المعلومات بطابعها الفريد، إذ لا ...
زمن صعب سرحان علي الزبيدي
doaj +1 more source
The recent advances in genome sequencing technologies provide unprecedented opportunities to understand the relationship between human genetic variation and diseases.
Esha Sarkar +5 more
doaj +1 more source
The collection of genetic and health information by employers for reasons that are unrelated to the health and safety of workers is an undue infringement of the right to privacy, and consequently should be firmly prohibited by statute.
Patrik S. Florencio, Erik D. Ramanathan
doaj +1 more source
Privately computing set-maximal matches in genomic data
Background Finding long matches in deoxyribonucleic acid (DNA) sequences in large aligned genetic sequences is a problem of great interest. A paradigmatic application is the identification of distant relatives via large common subsequences in DNA data ...
Katerina Sotiraki, Esha Ghosh, Hao Chen
doaj +1 more source
Understanding ethical concerns in social media privacy studies [PDF]
There are myriad ethical considerations with conducting social media studies, in particular those investigating privacy concerns in such sites. We are interested in understanding how to address these concerns, and in particular wish to discuss our ...
Hutton, Luke +2 more
core +2 more sources
The Genetic Privacy of Presidential Candidates [PDF]
Advances in genomics make it more likely that in the next presidential campaign, DNA will be collected and analyzed to assess genetic risk information that could be used against presidential candidates. Dr. Robert Green and George Annas argue that using genetic information to disparage opponents has no place in presidential campaigns.
Robert C, Green, George J, Annas
openaire +2 more sources

