Results 91 to 100 of about 9,259 (230)

Ageing patients with severe haemophilia: complications and comorbidities

Zdravniški Vestnik, 2012
Background: Advances in the treatment of haemophilia patients have led to a significant increase in life expectancy. Diseases and conditions developing now were not previously encountered in this population group as patients were dying younger ...
Saša Anžej Doma, Irena Preložnik Zupan, Dušan Andoljšek, Majda Benedik Dolničar   +3 more
doaj  

Haemophilia B: database of point mutations and short additions and deletions, fifth edition, 1994 [PDF]

, 1994
F. Giannelli, P.M. Green, Steve S. Sommer, D Lillicrap, M. Ludwig, R. Schwaab, P H Reitsma, M. Goossens, A. Yoshioka, G. G. Brownlee   +9 more
openalex   +1 more source

European Principles of Nursing Care for Persons With Inherited Bleeding Disorders

Haemophilia, EarlyView.
ABSTRACT Introduction A nurse is one of the core members of the multidisciplinary haemophilia team. However, what people with inherited bleeding disorders (PwBD) can expect from them has not yet been formally defined. Aim This project, initiated by the EAHAD Nurses Committee, aimed to establish Principles of Nursing Care (PoNC) for PwBD to promote high‐
Nanda Uitslager, Mary Kavanagh, Maj Birkedal, Linda Myrin‐Westesson, the EAHAD Nurses Committee   +4 more
wiley   +1 more source

Consequences of factor IX mutations in 26 families with haemophilia B [PDF]

, 1998
Ann F. Weinmann, M.E.P. Murphy, Arthur R. Thompson   +2 more
openalex   +1 more source

Enhancing Engagement to Support Shared Decision Making Within Haemophilia: Development of Materials for People With Haemophilia, Caregivers and Healthcare Professionals

Haemophilia, EarlyView.
ABSTRACT Introduction Treatment decision making can be complex and challenging for people with haemophilia (PwH) and their caregivers. A shared decision‐making (SDM) approach can ensure that decisions about treatment and care incorporate patients’ beliefs, values, and preferences.
Laura Meade, Haowei (Linda) Sun, Robert J. Klaassen, Roxana Bahar, Shade Olatunde, Michelle Santos, Sheri vanGunst   +6 more
wiley   +1 more source

A USABILITY STUDY ASSESSING HANDLING AND PREFERENCE OF THE CONCIZUMAB PEN-INJECTOR IN PATIENTS WITH HAEMOPHILIA AND CAREGIVERS

Hematology, Transfusion and Cell Therapy, 2023
Introduction: Concizumab is a once-daily prophylactic treatment in development for haemophilia A or B with or without inhibitors, and it is potentially the first treatment for haemophilia patients to be delivered subcutaneously using a prefilled, multi ...
NK Rasmussen, B Berg, JS Neergaard, S Shah, G Ter-Borch, T Sparre, GG Fabbron   +6 more
doaj  

Real-World Effectiveness of rFIXFc Prophylaxis in Patients with Haemophilia B Switched from Standard Half-Life Therapy in Three European Countries. [PDF]

Adv Ther, 2023
Funding E, Lowe G, Poulsen LH, Shapiro S, Oldenburg J, Eriksson D, Falk A, Rich C.   +7 more
europepmc   +1 more source

Severe hepatitis in patients with AIDS and haemophilia B treated with indinavir [PDF]

, 1997
Juzo Matsuda, Kengo Gohchi, Masami Yamanaka   +2 more
openalex   +1 more source

Systemic lupus erythematosus caused acquired hemophilia B without evidence of factor IX inhibitors

Rheumatology &Autoimmunity, EarlyView.
Lifang Wang, Yan Ding, Lei Wang, Lianjie Shi   +3 more
wiley   +1 more source

Developing a Two‐Sided Decision Box to Facilitate Shared Decision‐Making for Switching From Conventional to Pharmacokinetic‐Tailored Prophylaxis in Haemophilia

Haemophilia, EarlyView.
ABSTRACT Introduction Decision‐making in haemophilia is challenging due to the small evidence base, disease heterogeneity, and inter‐patient variability. Shared decision‐making (SDM) supports patient‐clinician decisions. Aim Creation of a two‐sided decision box facilitating SDM for haemophilia patients switching from conventional (weight‐based) to ...
Arun Keepanasseril, Athena Mancini, Megan S. Lowe, Noella Noronha, Alfonso Iorio   +4 more
wiley   +1 more source