Results 171 to 180 of about 42,485 (257)

Real world testing and cost‐effectiveness analysis of subcutaneous EEG (REAL‐ASE): Protocol for a prospective multicentre interventional trial

Epilepsia Open, EarlyView.
Abstract Objective Epilepsy is a common condition associated with significant morbidity, mortality, and costs. Poor documentation of seizures is a major challenge in epilepsy care. Objective seizure counting with mobile devices may mitigate this challenge and improve patient management.
Matthew McWilliam, Pedro F. Viana, Eren Dursun, Joe Davies, Joel S. Winston, Jessica Agren, Harutomo Hasegawa, Jonas Duun‐Henriksen, Mark P. Richardson   +8 more
wiley   +1 more source

Baseline survey on the scope of education and training for rare bone and mineral diseases. [PDF]

Arch Osteoporos
Hamdy NAT, Iotova V, Casareto L, Gallerani E, Pereira A, Sangiorgi L, ERN BOND Education & Training Working Group.   +6 more
europepmc   +1 more source

Genetic testing practices across European epilepsy centers: An ERN EpiCARE survey

Epilepsia Open, EarlyView.
Abstract Objective Genetic testing plays an increasing role in the diagnostic pathway for rare and complex epilepsies. However, significant heterogeneity persists in access, implementation, and interpretation across Europe. This study aimed to assess genetic testing practices, accessibility, and challenges across expert epilepsy centers within the ...
Sébile Tchaicha, Johanna Van Hulle, Eva Brilstra, Andreas Brunklaus, Gaetano Cantalupo, Martin Geroldinger, Amy McTague, Reetta Kälviäinen, Eulalia Turón‐Viñas, Alexis Arzimanoglou, Rikke S. Møller, Rima Nabbout   +11 more
wiley   +1 more source

Incidence, pathogenesis, clinical manifestations, and pharmacological management of the 2026 Andes virus outbreak. [PDF]

Virol J
Ghasemiyeh P, Mohammadi-Samani S.
europepmc   +1 more source

Evaluation of current practices and communication surrounding sudden unexpected death in epilepsy (SUDEP): A survey analysis of healthcare practitioners

Epilepsia Open, EarlyView.
This graphical abstract provides an overview of the results of this survey of health care practitioners on their SUDEP awareness, including SUDEP training, knowledge of guidelines and risk factors, and patient counseling practices. Abstract Objective To characterize healthcare providers' awareness and education regarding SUDEP and their approaches to ...
Katherine C. Nickels, Carly Katterman, Kelly Gwin, Carla Schad   +3 more
wiley   +1 more source

Enhancing patient involvement through shared decision-making: Are we there yet in multiple myeloma? Findings from a cross-country survey. [PDF]

PLoS One
Verbeke C, Broekmans J, Schoefs E, Ten Seldam S, Morgan K, Joyner K, Duncan E, Aviv A, Shoham V, Delforge M, Vanhellemont A, Janssens R, Bohyn A, Huys I.   +13 more
europepmc   +1 more source

From first seizure to specific antiseizure medication in Dravet syndrome: Quantifying delays in the DS'coverED study

Epilepsia Open, EarlyView.
Abstract Objective Dravet syndrome (DS) is a rare early‐onset developmental and epileptic encephalopathy with persistent delays between seizure onset and diagnosis. The DS'coverED study aimed to characterize current diagnostic timelines by examining each step and its duration, identifying residual barriers, and actionable solutions to optimize the ...
Loucas Christodoulou, Maria Ballarà Petitbò, Sergio Aguilera Albesa, Simona Borroni, Perrine Hugon, Ratna Kumar, Tullio Messana, Pierre Meyer, Frédéric Villéga, Kerstin A. Klotz   +9 more
wiley   +1 more source

Patients' and healthcare professionals' experiences of malnutrition risk management in heart failure: a qualitative study. [PDF]

Front Nutr
Liu M, Xiong Z, Xu Y, Shen Q, Sun X, Liu S, Chen X, Xiong X.   +7 more
europepmc   +1 more source

Attitudes toward sodium valproate use, withdrawal, and counseling in people of reproductive potential: A scoping review

Epilepsia Open, EarlyView.
Abstract Regulatory restrictions and evolving clinical guidelines have aimed to reduce sodium valproate use in people of reproductive potential over the past decade due to its teratogenic risk. While clinical evidence and policy responses are well established, stakeholder perspectives remain less explored.
Katherine Wang, Sarah Loveday, Monica S. Cooper, Emma Macdonald‐Laurs   +3 more
wiley   +1 more source

Knowledge, awareness, and practices of adverse drug reaction reporting among healthcare professionals in the Ashanti region of Ghana. [PDF]

Indian J Pharmacol
Fiagbey EDK, Nyame L, Bao Z, Kipanga ZG, Lamptey INL, Nyame DK, Dekyem H, Maigari YN, Abdon AE, Thomford KP, Zou J.   +10 more
europepmc   +1 more source