Results 21 to 30 of about 21,507,917 (245)

Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion. [PDF]

Haemophilia
ABSTRACT Introduction There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
García-Barcenilla S, Rambla Pérez M, Pérez N, Blanco AC, Diaz A, Sarmiento CF, Álvarez Martínez E, de Dios MD, Martínez MDCG, Torres MT, Garrell MT, Caballero Mencía N, Fernández MA.   +12 more
europepmc   +2 more sources

Are we Measuring Knee Proprioception Correctly? A Case-Control Study of Joint Reposition Sense and Reflex Latencies for Measuring Proprioception in Knee Hemophilic Arthropathy. [PDF]

Health Sci Rep
ABSTRACT Background and Aims Knee proprioception deficits have been found in several types of knee injuries using different measurement techniques. In some cases, such as hemophilic arthropathy, such deficits have been largely inferred from the results of gait and postural stability tests.
Alberola Zorrilla P, Escamilla Ugarte R, Pérez Alenda S, Chimeno Hernández A, Sánchez Zuriaga D.   +4 more
europepmc   +2 more sources

JORNADA DO PACIENTE COM HEMOFILIA B

Hematology, Transfusion and Cell Therapy
Objetivos: A Federação Brasileira de Hemofilia (FBH) realizou uma pesquisa qualitativa para as pessoas com Hemofilia B no Brasil. Cerca de 2.277 pessoas têm Hemofilia B, e com essa informação entendeu-se a necessidade de aplicar um questionário.
TMO Pietrobelli
doaj   +2 more sources

Os desafios da Criança com dificuldade de acesso Venoso e o uso de emicizumabe

Jornal de Assistência Farmacêutica e Farmacoeconomia, 2023
A hemofilia seja ela A ou B é classificada como uma doença rara, geralmente é hereditária, ligada ao cromossomo X e por isso sua prevalência se manifesta em sua maioria no sexo masculino.
Elaine Cristina Posener Araújo
doaj   +1 more source

Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe. [PDF]

Haemophilia
ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Batorova A, Banchev A, Boban A, Brand B, Brinza M, Kotnik BF, Kiss C, Puras G, Rajnoch J, Zapotocka E.   +9 more
europepmc   +2 more sources

Exercise Programmes for People With Haemophilia: A Scoping Review. [PDF]

Haemophilia
ABSTRACT Background Advances in haemophilia treatment have enabled safe exercise practice as recommended by disease management guidelines, yet there is no gold‐standard protocol for optimal dose. Emerging therapies could influence exercise recommendations, highlighting the need for evidence‐based guidelines tailored to people with haemophilia to ensure
Veríssimo M, Kuhn T, Ricciardi J, Kosour C, Veríssimo M, Maia F, Ribeiro O, Gasparino RC.   +7 more
europepmc   +2 more sources

CONHECIMENTO DA ENFERMAGEM ACERCA DA HEMOFILIA: UMA REVISÃO INTEGRATIVA DE LITERATURA [PDF]

, 2023
A hemofilia é descrita como uma doença genética recessiva, ligada ao cromossomo X e afeta especialmente os pacientes do sexo masculino. Ela é uma doença causada pelas deficiências dos fatores de coagulação VIII e IX que ocasiona aos seus portadores ...
Djenane Cristovam Souza, Breno Oliveira Amorim, Ioneide Barbosa Coelho, Camila Mahara Dias da Masceno, Elisandra de Castro Silva, Ana Vitória Félix da Silva, Tainara Tejada Camacho, Élida Cristina Barroso Cruz, João Vitor Lacerda dos Santos, Sinicley Emenezes Sousa   +9 more
core   +1 more source

Barriers and facilitators of physical activity in adults with severe haemophilia: A qualitative study

Haemophilia, Volume 29, Issue 5, Page 1334-1342, September 2023., 2023
Abstract Background People with haemophilia (PWH) tend to be less physically active than the general population, but there is a lack of research on the specific barriers and facilitators affecting their participation in physical activities. Objectives This study aims to explore perceived barriers and facilitators to physical activity in severe PWH ...
Claudia Cotino, Sofía Pérez‐Alenda, Carlos Cruz‐Montecinos, Rubén López‐Bueno, Rodrigo Núñez‐Cortés, Luís Suso‐Martí, Guillermo Mendez‐Rebolledo, Lars Louis Andersen, José Casaña, Joaquín Calatayud   +9 more
wiley   +1 more source

Dilemmas on emicizumab in children with haemophilia A: A survey of strategies from PedNet centres

Haemophilia, Volume 29, Issue 5, Page 1291-1298, September 2023., 2023
Abstract Introduction Haemophilia A care has changed with the introduction of emicizumab. Experience on the youngest children is still scarce and clinical practice varies between haemophilia treatment centres. Aim We aimed to assess the current clinical practice on emicizumab prophylaxis within PedNet, a collaborative research platform for ...
Susanna Ranta, Jayashree Motwani, Jan Blatny, Martina Bührlen, Manuel Carcao, Hervé Chambost, Carmen Escuriola, Kathelijn Fischer, Mutlu Kartal‐Kaess, Marloes de Kovel, Gili Kenet, Christoph Male, Beatrice Nolan, Roseline d'Oiron, Martin Olivieri, Ester Zapotocka, Nadine G. Andersson, Christoph Königs   +17 more
wiley   +1 more source

Primary prophylaxis in children with severe haemophilia A and B—Implementation over the last 20 years as illustrated in real‐world data in the PedNet cohorts

Haemophilia, Volume 29, Issue 2, Page 498-504, March 2023., 2023
Abstract Introduction The prophylactic regimen in children with severe haemophilia is suggested in various publications and guidelines. Few data exist on its implementation in clinical practice. Aim To investigate the implementation of primary prophylaxis based on real‐life data from PedNet during the last 20 years. Methods All children from the PedNet
Rolf Ljung, Marloes de Kovel, H. Marijke van den Berg, the PedNet study group   +3 more
wiley   +1 more source