Results 31 to 40 of about 577 (167)

Perdarahan Intrakranial pada Hemofilia: Karakteristik, Tata Laksana, dan Luaran

open access: yesSari Pediatri, 2016
Latar belakang. Perdarahan intrakranial merupakan salah satu penyebab mortalitas tertinggi pada hemofilia dan morbiditas berupa gangguan neurologis.
Novie Amelia C   +3 more
doaj   +1 more source

CONSTRUÇÃO E VALIDAÇÃO DE INSTRUMENTO DE CONSULTA DE ENFERMAGEM PARA PESSOAS COM HEMOFILIA

open access: yesCogitare Enfermagem, 2021
Objetivo: construir e validar um instrumento de consulta de enfermagem para pessoas com hemofilia. Método: estudo metodológico realizado de fevereiro de 2017 a fevereiro de 2018, em um serviço referência de hematologia do Nordeste do Brasil.
Iara Alves Feitoza de Andrade   +5 more
doaj   +1 more source

Pseudotumor Hemofilia, Suatu Komplikasi Hemofilia yang Jarang

open access: yesJurnal Kedokteran Brawijaya, 2016
Pseudotumor adalah kista berisi darah pada jaringan lunak atau tulang. Satu sampai dua persen hemofilia berat menyebabkan pseudotumor, yang bisa berasal dari jaringan lunak atau pada subperiosteal atau area intraosseus. Pseudotumor jarang terjadi namun merupakan komplikasi hemofilia yang berbahaya. Kami laporkan kasus pseudotumor hemofilia pada seorang
Ade Nurshanty, Djoko heri Hermanto
openaire   +2 more sources

Determining meaningful health‐related quality‐of‐life improvement in persons with haemophilia A using the Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL)

open access: yesHaemophilia, Volume 26, Issue 6, Page 1019-1030, November 2020., 2020
Abstract Introduction The Haem‐A‐QoL is frequently utilized in haemophilia clinical trials and captures relevant aspects of disease impact. Thresholds for some domains ‘Physical Health’ (PH), ‘Sports & Leisure’ (S&L) and ‘Total Score’ (TS) have previously been identified to benchmark the amount of change that is meaningful to patients, but not been ...
Sylvia von Mackensen   +5 more
wiley   +1 more source

Molecular characterization of hemophilia B patients in Colombia

open access: yesMolecular Genetics &Genomic Medicine, Volume 8, Issue 5, May 2020., 2020
This is the first molecular characterization of patients with Hemophilia B in Colombia. Using Sanger sequencing we found the patogenic variant in all patients. One large deletion of exon 3 and 4 hasn't been reported previously in international databases.
Yolima A. Parrado Jara   +3 more
wiley   +1 more source

Abordagem fisioterápica na dor e na qualidade de vida de um indivíduo com artrite hemofílica. Relato de caso

open access: yesRevista Dor, 2016
RESUMO JUSTIFICATIVA E OBJETIVOS: A hemofilia é uma coagulopatia congênita, rara e crônica, caracterizada pelos surtos recidivantes de hemartroses.
Matheus Santos Gomes Jorge   +3 more
doaj   +2 more sources

Long‐term analysis of the benefit of prophylaxis for adult patients with severe or moderate haemophilia A

open access: yesHaemophilia, Volume 26, Issue 3, Page 467-477, May 2020., 2020
Abstract Introduction Prophylaxis with factor VIII (FVIII) concentrates in children with haemophilia A (HA) is current standard of care. The benefit of prophylactic treatment for adult HA patients is not commonly accepted. Aim To investigate the benefit of prophylaxis over on‐demand treatment in adult and elderly patients with severe or non‐severe HA ...
Wolfgang Miesbach   +7 more
wiley   +1 more source

ESTUDO DA QUALIDADE DE VIDA DOS PACIENTES COM HEMOFILIA, EM REGIME DE PROFILAXIA, ATENDIDOS EM CENTRO DE REFERÊNCIA DO CEARÁ

open access: yesHematology, Transfusion and Cell Therapy, 2023
Com o avanço dos tratamentos na Hemofilia, a qualidade de vida teve um ganho importante. Entretanto, anteriormente, o cenário era de crianças que não podiam brincar e sangravam constantemente, e muitas delas se tornaram adultos com sequelas articulares ...
NM Beserra   +6 more
doaj   +1 more source

Hemofilia adquirida asociada a la infección por SARS-CoV2

open access: yesGalicia Clínica, 2022
SARS-CoV2 infection has been found to be associated with coagulopathy. Although thrombotic complications have been more frequently reported, hematologic autoimmune disorders have also been described.
Catarina Medeiros   +3 more
doaj   +1 more source

Cumplimiento de los indicadores de gestión del riesgo en salud del modelo de atención en pacientes con hemofilia A y B en una entidad administradora de planes de beneficios

open access: yesInterdisciplinary Journal of Epidemiology and Public Health, 2020
Introducción: En Colombia la hemofilia es considerada la enfermedad huérfana de mayor prevalencia y mayor impacto económico para el sistema de salud colombiano. Por su difícil manejo, diagnóstico, tratamiento, gravedad, discapacidad, mortalidad e impacto
Diana Karolina Ocoro   +1 more
doaj   +1 more source

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