Results 11 to 20 of about 6,358 (202)

Effectiveness of progressive moderate-vigorous intensity elastic resistance training on quality of life and perceived functional abilities in people with hemophilia: Secondary analysis of a randomized controlled trial. [PDF]

Eur J Haematol, 2023
Abstract Introduction and Aim Strength exercise training is advised for people with hemophilia (PWH); however, few studies have been published and have methodological limitations. The purpose of this study was to evaluate the effectiveness of progressive elastic resistance training on quality of life and perceived functional abilities in PWH.
Cruz-Montecinos C, Pérez-Alenda S, Casaña J, Carrasco JJ, Andersen LL, López-Bueno R, Nuñez-Cortés R, Bonanad S, Querol F, Calatayud J.   +9 more
europepmc   +2 more sources

Prophylaxis and hemophilia care in LATAM: Baring it all-Highlights from the CLAHT 2021 symposium. [PDF]

EJHaem, 2022
Abstract A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 in Colombia to highlight the issues of ...
DiMinno GG, Araujo Cabrera LM, Loayza Urcia N, Bordone R, Murillo CM, Beltran JC, Mathew P.   +6 more
europepmc   +2 more sources

Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion. [PDF]

Haemophilia
ABSTRACT Introduction There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
García-Barcenilla S, Rambla Pérez M, Pérez N, Blanco AC, Diaz A, Sarmiento CF, Álvarez Martínez E, de Dios MD, Martínez MDCG, Torres MT, Garrell MT, Caballero Mencía N, Fernández MA.   +12 more
europepmc   +2 more sources

Are we Measuring Knee Proprioception Correctly? A Case-Control Study of Joint Reposition Sense and Reflex Latencies for Measuring Proprioception in Knee Hemophilic Arthropathy. [PDF]

Health Sci Rep
ABSTRACT Background and Aims Knee proprioception deficits have been found in several types of knee injuries using different measurement techniques. In some cases, such as hemophilic arthropathy, such deficits have been largely inferred from the results of gait and postural stability tests.
Alberola Zorrilla P, Escamilla Ugarte R, Pérez Alenda S, Chimeno Hernández A, Sánchez Zuriaga D.   +4 more
europepmc   +2 more sources

Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe. [PDF]

Haemophilia
ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Batorova A, Banchev A, Boban A, Brand B, Brinza M, Kotnik BF, Kiss C, Puras G, Rajnoch J, Zapotocka E.   +9 more
europepmc   +2 more sources

Surgery in a Patient with Haemophilia A and Lymphoma. [PDF]

Case Rep Hematol, 2020
An increased incidence of haematologic malignancies and other cancer types among patients with haemophilia compared with matched controls has been reported in several longitudinal studies. Tumours initially misdiagnosed as haematomas and conversely haematomas mistaken for tumours have been reported.
Cruz MS, Santillan J, Lesser J, Ortiz J, Forzani L, Plaza P.   +5 more
europepmc   +2 more sources

Barriers and facilitators of physical activity in adults with severe haemophilia: A qualitative study

Haemophilia, Volume 29, Issue 5, Page 1334-1342, September 2023., 2023
Abstract Background People with haemophilia (PWH) tend to be less physically active than the general population, but there is a lack of research on the specific barriers and facilitators affecting their participation in physical activities. Objectives This study aims to explore perceived barriers and facilitators to physical activity in severe PWH ...
Claudia Cotino, Sofía Pérez‐Alenda, Carlos Cruz‐Montecinos, Rubén López‐Bueno, Rodrigo Núñez‐Cortés, Luís Suso‐Martí, Guillermo Mendez‐Rebolledo, Lars Louis Andersen, José Casaña, Joaquín Calatayud   +9 more
wiley   +1 more source

Dilemmas on emicizumab in children with haemophilia A: A survey of strategies from PedNet centres

Haemophilia, Volume 29, Issue 5, Page 1291-1298, September 2023., 2023
Abstract Introduction Haemophilia A care has changed with the introduction of emicizumab. Experience on the youngest children is still scarce and clinical practice varies between haemophilia treatment centres. Aim We aimed to assess the current clinical practice on emicizumab prophylaxis within PedNet, a collaborative research platform for ...
Susanna Ranta, Jayashree Motwani, Jan Blatny, Martina Bührlen, Manuel Carcao, Hervé Chambost, Carmen Escuriola, Kathelijn Fischer, Mutlu Kartal‐Kaess, Marloes de Kovel, Gili Kenet, Christoph Male, Beatrice Nolan, Roseline d'Oiron, Martin Olivieri, Ester Zapotocka, Nadine G. Andersson, Christoph Königs   +17 more
wiley   +1 more source

Primary prophylaxis in children with severe haemophilia A and B—Implementation over the last 20 years as illustrated in real‐world data in the PedNet cohorts

Haemophilia, Volume 29, Issue 2, Page 498-504, March 2023., 2023
Abstract Introduction The prophylactic regimen in children with severe haemophilia is suggested in various publications and guidelines. Few data exist on its implementation in clinical practice. Aim To investigate the implementation of primary prophylaxis based on real‐life data from PedNet during the last 20 years. Methods All children from the PedNet
Rolf Ljung, Marloes de Kovel, H. Marijke van den Berg, the PedNet study group   +3 more
wiley   +1 more source

Validation of PROMIS Profile‐29 in adults with hemophilia in the Netherlands

Journal of Thrombosis and Haemostasis, Volume 19, Issue 11, Page 2687-2701, November 2021., 2021
Abstract Background The Patient‐Reported Outcomes Measurement Information System (PROMIS) Profile‐29 questionnaire is widely used worldwide, but it has not yet been validated in the Netherlands, nor in persons with hemophilia. Objective To validate the Dutch‐Flemish version of the PROMIS‐29 Profile v2.01 in adults with hemophilia.
Erna C. van Balen, Lotte Haverman, Shermarke Hassan, Elisabeth M. Taal, Cees Smit, Mariëtte H. Driessens, Erik A. M. Beckers, Michiel Coppens, Jeroen Eikenboom, Hélène L. Hooimeijer, Frank W. G. Leebeek, Lize F. D. van Vulpen, Saskia E. M. Schols, Caroline B. Terwee, Frits R. Rosendaal, Johanna G. van der Bom, Samantha C. Gouw   +16 more
wiley   +1 more source