Effectiveness of progressive moderate‐vigorous intensity elastic resistance training on quality of life and perceived functional abilities in people with hemophilia: Secondary analysis of a randomized controlled trial [PDF]
European Journal of Haematology, Volume 110, Issue 3, Page 253-261, March 2023., 2023 Abstract Introduction and Aim Strength exercise training is advised for people with hemophilia (PWH); however, few studies have been published and have methodological limitations. The purpose of this study was to evaluate the effectiveness of progressive elastic resistance training on quality of life and perceived functional abilities in PWH.
Carlos Cruz‐Montecinos +9 more
wiley +2 more sources
Prophylaxis and hemophilia care in LATAM: Baring it all—Highlights from the CLAHT 2021 symposium [PDF]
eJHaem, Volume 3, Issue 4, Page 1287-1299, November 2022., 2022 Abstract A large group of countries constitute Latin American (LATAM) countries, where hemophilia care is as varied as the landscape of this region. To better understand the care provided to persons with bleeding disorders, especially hemophilia, a symposium was organized as part of the CLAHT Congress 2021 in Colombia to highlight the issues of ...
Giovanni G. DiMinno +6 more
wiley +2 more sources
Safety and Efficacy of Damoctocog Alfa Pegol in Previously Treated Children Aged 7 to < 12 Years With Severe Haemophilia A in the Phase 3, Open Label Alfa‐PROTECT Main Study [PDF]
European Journal of Haematology, Volume 116, Issue 4, Page 435-442, April 2026.ABSTRACT Background In the earlier PROTECT VIII Kids study (NCT01775618), damoctocog alfa pegol was efficacious for prevention and treatment of bleeds in children aged < 12 years with severe haemophilia A. Objective Assess the safety of damoctocog alfa pegol, including hypersensitivity and loss of efficacy (LoE) due to an immune response to ...
Margareth C. Ozelo +13 more
wiley +2 more sources
Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion [PDF]
Haemophilia, Volume 31, Issue 5, Page 981-987, September 2025.ABSTRACT Introduction There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
Sara García‐Barcenilla +12 more
wiley +2 more sources
Are we Measuring Knee Proprioception Correctly? A Case‐Control Study of Joint Reposition Sense and Reflex Latencies for Measuring Proprioception in Knee Hemophilic Arthropathy [PDF]
Health Science Reports, Volume 8, Issue 11, November 2025.ABSTRACT Background and Aims Knee proprioception deficits have been found in several types of knee injuries using different measurement techniques. In some cases, such as hemophilic arthropathy, such deficits have been largely inferred from the results of gait and postural stability tests.
Pilar Alberola Zorrilla +4 more
wiley +2 more sources
Exercise Programmes for People With Haemophilia: A Scoping Review [PDF]
Haemophilia, Volume 32, Issue 2, Page 381-401, March/April 2026.ABSTRACT Background Advances in haemophilia treatment have enabled safe exercise practice as recommended by disease management guidelines, yet there is no gold‐standard protocol for optimal dose. Emerging therapies could influence exercise recommendations, highlighting the need for evidence‐based guidelines tailored to people with haemophilia to ensure
Maísa Veríssimo +7 more
wiley +2 more sources
Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe [PDF]
Haemophilia, Volume 31, Issue 5, Page 893-902, September 2025.ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Angelika Batorova +9 more
wiley +2 more sources
Haemophilia, Volume 29, Issue 5, Page 1334-1342, September 2023., 2023 Abstract Background People with haemophilia (PWH) tend to be less physically active than the general population, but there is a lack of research on the specific barriers and facilitators affecting their participation in physical activities. Objectives This study aims to explore perceived barriers and facilitators to physical activity in severe PWH ...
Claudia Cotino +9 more
wiley +1 more source
Dilemmas on emicizumab in children with haemophilia A: A survey of strategies from PedNet centres
Haemophilia, Volume 29, Issue 5, Page 1291-1298, September 2023., 2023 Abstract Introduction Haemophilia A care has changed with the introduction of emicizumab. Experience on the youngest children is still scarce and clinical practice varies between haemophilia treatment centres. Aim We aimed to assess the current clinical practice on emicizumab prophylaxis within PedNet, a collaborative research platform for ...
Susanna Ranta +17 more
wiley +1 more source
Concizumab en pacientes con Hemofilia A/B: una revisión sistemática
Revista del Cuerpo Médico Hospital Nacional Almanzor Aguinaga Asenjo, 2022 Objetivo: Evaluamos sistemáticamente la eficacia de Concizumab en pacientes con Hemofilia A/B. Material y Métodos: Se buscaron en cinco bases de datos hasta mayo de 2022 ensayos controlados aleatorios en adultos con Hemofilia A/B grave con o sin inhibidores tratados con Concizumab en comparación con la atención estándar o el placebo.
Ana Valle-Chafloque +5 more
openaire +1 more source