Results 121 to 130 of about 13,086,034 (342)

Emergencies in Hemophiliacs

Journal of Education and Teaching in Emergency Medicine, 2016
Audience: This modified team-based learning (mTBL) session is appropriate for medical students or emergency medicine residents. Introduction: Hemophilia is an x-linked recessive disorder leading to a decrease in functional clotting factors; there ...
Alisa Wray
doaj   +1 more source

Discovery of an Orally Effective Factor IX-Transferrin Fusion Protein for Hemophilia B

International Journal of Molecular Sciences, 2019
Hemophilia B is a severe blood clotting disorder caused by the deficiency of factor IX (FIX). FIX is not bioavailable when given orally due to poor stability and permeability in the gastrointestinal tract.
Chen Xie, Zhijun Wang, Yang Su, Jeffrey R. Wang, W. Shen   +4 more
semanticscholar   +1 more source

Feasibility of Administering the Patient Reported Outcomes, Burdens and Experiences (PROBE) Questionnaire Through the Canadian Bleeding Disorders Registry (CBDR) and Comparison of Data From the Two Sources

Haemophilia, EarlyView.
ABSTRACT Introduction The Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire can be used to measure quality of life in persons with haemophilia (PWH) and is integrated in the Canadian Bleeding Disorders Registry (CBDR). This offers the opportunity to compare the same data inputted by patients in PROBE and their treating team in ...
Federico Germini, Carlo Cossa, Elisabetta Trinari, Emma Iserman, Quazi Ibrahim, Drashti Pete, Arun Keepanasseril, David Page, Mark W. Skinner, Alfonso Iorio   +9 more
wiley   +1 more source

Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study

Patient Related Outcome Measures, 2019
Tyler W Buckner,1 Robert Sidonio Jr,2 Michelle Witkop,3 Christine Guelcher,4 Susan Cutter,5 Neeraj N Iyer,6 David L Cooper6 1Hemophilia and Thrombosis Center, University of Colorado School of Medicine, Aurora, CO, USA; 2Department of Pediatrics, Aflac ...
Buckner TW, Sidonio Jr R, Witkop M, Guelcher C, Cutter S, Iyer NN, Cooper DL   +6 more
doaj  

People With Haemophilia as Data Coordinators: An Analysis of the Ethics and Feasibility of Self‐Management With Personal Health Records

Haemophilia, EarlyView.
ABSTRACT Background People with haemophilia perform various self‐management tasks, supported by multiple health apps. Personal health records will enable individuals to access and add health information from different institutions in a single digital tool, providing an integrated overview of data.
Martijn R. Brands, Lieke Baas, Mariette H. Driessens, Samantha C. Gouw, Rieke van der Graaf, Karina Meijer, for the SYMPHONY consortium   +6 more
wiley   +1 more source

Representation and Treatment of Haemofilia in the general populaton in Macedonia [PDF]

, 2012
Introduction: Defects in blood coagulation can be congenital or acquired. Haemophilia belongs to the congenital (hereditary) coagulopathies.It is inherited recessively by a mutant gene located on the X-chromosome, therefore it affects only men. Women are
Velickova, Nevenka
core  

Health‐Related Quality of Life, Physical Activity and Joint Health in People With Severe Haemophilia A Receiving Emicizumab: Results From the Phase IV HemiNorth 2 Study

Haemophilia, EarlyView.
ABSTRACT Introduction Despite factor (F)VIII prophylaxis, a perceived increased risk of bleeding for some people with severe haemophilia A (PwSHA) exists, limiting physical activity (PA) and restricting quality of life (QoL). Aim HemiNorth 2 (EudraCT# 2020‐003256‐32) is an interventional study evaluating the impact of switching from FVIII prophylaxis ...
Jan Astermark, Susanna Ranta, Linda Myrin‐Westesson, Marianne Hoffmann, Sandrine Quere, Amparo Yovanna Castro Sanchez, Susan Robson, Tünde Czirok, Riitta Lassila, Pål André Holme   +9 more
wiley   +1 more source

Hemophilia B in a Pair of Monozygotic Negro Twins [PDF]

, 1964
Israel Roisenberg
openalex   +1 more source

Association of inferior vena cava filter placement for venous thromboembolic disease and a contraindication to anticoagulation with 30-day mortality [PDF]

, 2018
Importance: Despite the absence of data from randomized clinical trials, professional societies recommend inferior vena cava (IVC) filters for patients with venous thromboembolic disease (VTE) and a contraindication to anticoagulation therapy.
Brown, David L, Novak, Eric, Saeed, Mohammed J, Turner, Tyson E   +3 more
core   +1 more source

Determining the Impact of Combination Oral Contraceptives on Von Willebrand Factor and Factor VIII in Healthy Patients and Patients With Von Willebrand Disease: A Scoping Review and Meta‐Analysis

Haemophilia, EarlyView.
ABSTRACT Introduction Von Willebrand disease (VWD) is a bleeding disorder characterized by a deficiency or dysfunction of Von Willebrand factor (VWF) and/or Factor VIII (FVIII), critical coagulation proteins. Individuals with VWD often use combination oral contraceptives (COCs) to manage heavy menstrual bleeding.
Eve Justason, Anna M. Ishchuk, Benjamin P. Ott, M. E. Sophie Gibson, Paula D. James   +4 more
wiley   +1 more source