Results 201 to 210 of about 13,301,732 (374)

Inherited bleeding disorders-experience of a not-for-profit organization in Pakistan [PDF]

, 2018
Patient registry is a powerful tool for planning health care and setting groundwork for research. This survey reports a detailed registry of inherited bleeding disorders (IBD) and their management at a not-for-profit organization in a developing country ...
Baloch, Shahida, Bhanbhro, Fareeda, Hussain, Shabneez, Junaid, Mubashra, Memon, Rab Nawaz, Moiz, Bushra, Musheer, Farhana, Najmuddin, Akbar, Parvin, Azra, Ullah, Hayat   +9 more
core   +1 more source

Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe

Haemophilia, EarlyView.
ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Angelika Batorova, Atanas Banchev, Ana Boban, Brigitte Brand, Melen Brinza, Barbara Faganel Kotnik, Csongor Kiss, Gediminas Puras, Jan Rajnoch, Ester Zapotocka   +9 more
wiley   +1 more source

Diagnosis And Treatment Of Congenital Hemophilia With Inhibitors. A Latin American Perspective [PDF]

, 2015
The Committee of Latin America on the Therapeutics of Inhibitor Groups (CLOTTING) is composed of a number of hemophilia specialists from Latin America. The group aims to encourage the adoption of a good standard of care for Latin American patients with ...
Bianco R.P., Chavez J.G., Cruz G.J., Grecco I.R., Mendoza S., Murillo C.M., Ozelo M.C., Ruiz-Saez A., Solano M.H., Villaca P.R.   +9 more
core  

Trends in Treatment of Severe Haemophilia and Impact on Inhibitor Assessment by the EUHASS Registry

Haemophilia, EarlyView.
ABSTRACT Background The last 15 years have seen new extended half‐life (EHL) recombinant FVIII/IX concentrates and nonreplacement therapy for haemophilia A (emicizumab) introduced in Europe. These changes affect FVIII/IX exposure in previously untreated patients (PUPs) and previously treated patients (PTPs) with severe haemophilia A and B (SHA and SHB)
Kathelijn Fischer, Riitta Lassila, Flora Peyvandi, Alex Gatt, Samantha C. Gouw, Rob Hollingsworth, Thierry Lambert, Radoslaw Kaczmarek, Diana Carbonero, Michael Makris, the EUHASS participants   +10 more
wiley   +1 more source

Multimodal Exercise Program of Balance and Strength Improves Dynamic Balance, Strength and Functionality and Decreases the Risk of Falls in Adults With Haemophilia

Haemophilia, EarlyView.
ABSTRACT Introduction Haemophilia is a hereditary bleeding disorder that leads to joint damage and musculoskeletal impairments, affects balance and increases the risk of falls. Although exercise is beneficial, little is known about the clinical effects of programmes that focus on balance and proprioception in people with haemophilia (PwH).
Ana Chimeno‐Hernández, Sofía Pérez‐Alenda, Carlos Cruz‐Montecinos, Juan. J. Carrasco, Marta Aguilar‐Rodriguez   +4 more
wiley   +1 more source

Nephrotic Syndrome as a Complication of Immune Tolerance in Hemophilia B [PDF]

, 1997
Bruce M. Ewenstein, C. Takemoto, Indira Warrier, Jeanne M. Lusher, P. Saidi, Joan Eisele, Lawrence J. Ettinger, Donna DiMichele   +7 more
openalex   +1 more source

The UK Infected Blood Inquiry: A Personal Reflection

Haemophilia, EarlyView.
ABSTRACT The UK Infected Blood Inquiry (IBI) considered the transfusion transmitted infections hepatitis B and C, HIV, and vCJD. The inquiry lasted 6 years during 2018 to 2024 and reported to the UK parliament on 20 May, 2024. It concluded that at least 3000 people died because of the recklessness and obstinacy of officialdom and it has been reported ...
Christine A. Lee
wiley   +1 more source

Molecular diagnosis of hemophilia A and B. Report of five families from Costa Rica

Revista de Biología Tropical, 2004
Hemophilia Aand B are X-chromosome linked bleeding disorders caused by deficiency of the respective coagulation factor VIII and IX. Affected individuals develop a variable phenotype of hemorrhage caused by a broad range of mutations within the Factor ...
Lizbeth Salazar-Sánchez, Guillermo Jiménez-Cruz, Pilar Chaverri, Winnie Schröder, Karin Wulff, Gerardo Jiménez-Arce, Miriam Sandoval, Patricia Ramírez, F.H Herrmann   +8 more
doaj  

Hemophilia B Gene Therapy with a High‐Specific‐Activity Factor IX Variant

New England Journal of Medicine, 2017
Lindsey A. George, S. Sullivan, A. Giermasz, J. Rasko, B. Samelson-Jones, J. Ducore, A. Cuker, L. Sullivan, S. Majumdar, J. Teitel, C. McGuinn, M. Ragni, A. Luk, Daniel J. Hui, Fraser Wright, Yifeng Chen, Yun Liu, Katie Wachtel, Angela Winters, S. Tiefenbacher, V. Arruda, J. C. M. van der Loo, O. Zelenaia, D. Takefman, M. Carr, L. Couto, X. Anguela, K. High   +27 more
semanticscholar   +1 more source

Cyclosporine treatment of acquired hemophilia due to factor VIII antibodies [PDF]

, 2000
Acquired hemophilia, caused by autoantibodies against coagulation factor VIII, is usually treated with steroids, cyclophosphamide, intravenous gammaglobulins and sporadically other drugs.
Baele, Gaston, Derom, Eric, Petrovic, Mirko   +2 more
core