The diagnosis of hereditary angioedema: family caregivers’ experiences [PDF]
, 2018 The aim of this study was to understand the experiences of family caregivers in the process of diagnosing hereditary angioedema. An interpretive and qualitative research methodology based on Gadamer’s philosophical hermeneutics was carried out.
Cayetano Fernández-Sola +7 more
core +1 more source
International consensus on the diagnosis and management of pediatric patients with hereditary angioedema with C1-Inhibitor deficiency [PDF]
, 2016 BACKGROUND: The consensus documents published to date on hereditary angioedema with C1-inhibitor deficiency (C1-INH-HAE) have focused on adult patients. Many of the previous recommendations have not been adapted to pediatric patients.
Agostoni +122 more
core +3 more sources
Value co-creation in healthcare: evidence from innovative therapeutic alternatives for hereditary angioedema [PDF]
, 2018 Background Our research focuses on the co-creation of value in healthcare with reference to a case of hereditary angioedema with C1 inhibitor deficiency (C1-INH-HAE). Our work is mainly based on the concept of value co-creation in healthcare.
Barbarino, Alessandro +3 more
core +1 more source
design of the HELP study extension [PDF]
, 2017 Background Hereditary angioedema (HAE) is characterized by recurrent attacks of subcutaneous or submucosal edema. Attacks are unpredictable, debilitating, and have a significant impact on quality of life.
Banerji, Aleena +11 more
core +1 more source
A Case Report of Angioedema and Anaphylactic Shock Induced by Ingestion of Polyethylene Glycol [PDF]
, 2020 Introduction: We report one of few documented cases of a severe anaphylactic reaction with angioedema to polyethylene glycol (PEG).Case Report: The patient presented 30 minutes after onset of his symptoms and quickly developed hypoxia and hypotension ...
Osborn, Lesley, Rossi, Amy
core
Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies [PDF]
, 2015 Background Hereditary Angioedema (HAE), a rare genetic disease, manifests as intermittent, painful attacks of angioedema. Attacks vary in frequency and severity and include skin, abdominal and life-threatening laryngeal swellings.
Bruce Zuraw +8 more
core +2 more sources
Кардиоваскулярная терапия и профилактика, 2023 Hereditary angioedema is a rare (1:50,000) hereditary chronic disease from the group of primary immunodeficiencies, which manifests in the form of recurrent skin and mucous membrane edema of the respiratory tract and gastrointestinal tract.Pathogenesis ...
E. A. Rogozhkina +3 more
doaj +1 more source
An adolescent girl with signs and symptoms of anaphylaxis and negative immunologic workup: a case report. [PDF]
, 2020 BackgroundThe increasing incidence of allergies and allergic reactions among children and adults has become a major public health concern. The etiology of allergic reactions can often be confirmed based on a detailed history and supportive testing ...
Bauer, Maureen +4 more
core
Estimation of EuroQol 5-Dimensions health status utility values in hereditary angioedema [PDF]
, 2016 Objective: To estimate health status utility (preference) weights for hereditary angioedema (HAE) during an attack and between attacks using data from the Hereditary Angioedema Burden of Illness Study in Europe (HAE-BOIS-Europe) survey.
Aygören-Pürsün, Emel +6 more
core +2 more sources